1
40
3
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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June 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2022 List
URL Address
<a href="https://www.sciencedirect.com/science/article/pii/S1744165X23000136?via%3Dihub">https://www.sciencedirect.com/science/article/pii/S1744165X23000136?via%3Dihub</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Spiritual and cultural influences on end-of-life care and decision-making in NICU
Publisher
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Seminars in Fetal and Neonatal Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Terminal Care; Decision Making; End-of-life; Rituals; Neonates; Cultures; Religions; Spiritual; Traditions
Creator
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Ng PC; Fung GPG
Description
An account of the resource
Understanding and respecting the spiritual beliefs, ethnic roots, cultural norms and customs of individual families is essential for neonatologists to provide clinically appropriate and humane end-of-life care. This review describes the religious/philosophical principles, cultural-related practices/rituals, and traditions in end-of-life care in major spiritual groups of today's multi-cultural, multi-faith societies. The spiritual groups include Christians, Muslims, Jewish Judaism believers and Asian religious/philosophy followers such as Buddhists, Hindus, Taoists, Confucianism devotees and ancestral worshippers. It is vital to understand that substantial variation in views and practices may exist even within the same religion and culture in different geographic locations. Ethical views and cultural practices are not static elements in life but behave in a fluidic and dynamic manner that could change with time. Interestingly, an evolving pattern has been observed in some Asian and Middle East countries that more parents and/or religious groups are beginning to accept a form of redirection of care most compatible with their spiritual belief and culture. Thus, every family must be assessed and counseled individually for end-of-life decision-making. Also, every effort should be made to comply with parents' requests and to treat infants/parents of different religions and cultures with utmost dignity so that they have no regret for their irreversible decisions.
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Identifier
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<a href="https://www.sciencedirect.com/science/article/pii/S1744165X23000136?via%3Dihub">10.1016/j.siny.2023.101437</a>
2023
Cultures
Decision Making
end-of-life
Fung GPG
June 2022 List
Neonates
Ng PC
Religions
Rituals
Seminars in Fetal and Neonatal Medicine
spiritual
Terminal Care
Traditions
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2022 List
URL Address
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/02692163221093145</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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How Can We Measure Quality of Dying, Death, and Quality of Care at the End-of-Life for Children and Young Adults? A Scoping Literature Review
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
child; human; pain; female; male; adult; cancer; pediatric; sibling; caregiver; life; review; Cinahl; Embase; Medline; PsycINFO; palliative; questionnaire; mother; heart; of; therapy; spiritual; quality; study; disease; patient; abstract; care; conference; controlled; intensive; unit; systematic; young; terminal; advanced
Creator
An entity primarily responsible for making the resource
Mayland CR; Sunderland K; Taylor P; Powell P; Turner N; Cox V; Gillman C; Cooper M; Zeigler L; Flemming K; Fraser L
Description
An account of the resource
Background/aims: The death of a child or young adult is fundamentally painful. Evaluating end-of-life care experiences can identify specific needs and ensure good quality care is provided. Our aim was to identify tools assessing quality of dying, death or end-oflife care for children and young adults.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">10.1177/02692163221093145</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
abstract
Adult
advanced
Cancer
CARE
Caregiver
Child
Conference
controlled
Cooper M
Cox V
Disease
Female
Flemming K
Fraser L
Gillman C
Heart
Human
intensive
Life
Male
Mayland CR
Mother
Pain
Palliative
Palliative Medicine
Patient
Pediatric
Powell P
Quality
Questionnaire
Review
September 2022 List
Sibling
spiritual
study
Sunderland K
systematic
Taylor P
terminal
Therapy
Turner N
Unit
young
Zeigler L
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2019 Oncology List
Text
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Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1002/pbc.27764" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/pbc.27764</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Spiritual assessment and spiritual care offerings as a standard of care in pediatric oncology: A recommendation informed by a systematic review of the literature
Publisher
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Pediatric Blood and Cancer
Date
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2019
Subject
The topic of the resource
chaplain; palliative; pediatric; pediatric oncology; spiritual; spirituality
Creator
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Robert R; Stavinoha P; Jones B L; Robinson J; Larson K; Hicklen R; Smith B; Perko K; Koch K; Findley S; Weaver M S
Description
An account of the resource
Children with cancer and their families experience shifts in spiritual wellness from diagnosis through treatment and survivorship or bereavement. An interdisciplinary team conducted a systematic review of quantitative and qualitative research on spiritual assessments, interventions, and outcomes in childhood cancer following PRISMA guidelines using a PROSPERO registered protocol. Thirty-nine well-designed studies were included in the final analysis. The findings from this systematic review indicate the need for early spiritual assessment with offering of continued support for the spiritual functioning of children with cancer and their families as a standard of care.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pbc.27764" target="_blank" rel="noreferrer noopener">10.1002/pbc.27764</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Chaplain
Findley S
Hicklen R
Jones B L
Koch K
Larson K
Oncology 2019 List
Palliative
Pediatric
Pediatric Blood and Cancer
Pediatric Oncology
Perko K
Robert R
Robinson J
Smith B
spiritual
Spirituality
Stavinoha P
Weaver M S