Browse Items · Pediatric Palliative Care Library

Supporting the family after the death of a child.

The death of a child can have a devastating effect on the family. The pediatrician has an important role to play in supporting the parents and any siblings still in his or her practice after such a death. Pediatricians may be poorly prepared to…

Changes in siblings after the death of a child from cancer.

IMPLICATIONS FOR PRACTICE: Our findings offer guidance to improve aftercare for bereaved siblings and their families. Additional research is needed to further delineate the needs of bereaved siblings and to develop strategies to promote adaptation to…

Peer relationships of bereaved siblings and comparison classmates after a child's death from cancer

OBJECTIVES: To compare peer relationships among bereaved siblings and matched classmates, and to examine gender, grade level, and time since death as moderators. METHODS: Families were recruited from cancer registries at four hospitals 3-12 months…

The forgotten griever: a nationwide follow-up study of mortality subsequent to the death of a sibling

Previous findings have suggested that the loss of a family member is associated with mortality among bereaved family members. The least-studied familial relationship in the bereavement literature is that of siblings, although loss of a sibling may…

A qualitative study of advice from bereaved parents and siblings.

Despite a growing bereavement literature, relatively little is known about what families find helpful after a child's death and how best to assist them during the grieving process. In this qualitative study, the authors explored advice from 40…

Tags: 2011, Backlog, Barrera M, Davies B, Foster TL, Gerhardt CA, Gilmer MJ, Hogan N, IM, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Miller KS, sibling bereavement, Thompson AL, Vannatta K

Indicators of family resilience after the death of a child

The aim of this study was to identify and describe resilience qualities in families after losing a child. Questionnaires, including an open-ended question, were utilized to collect data independently from the parents and siblings of the deceased in…

Swedish parents' experiences of parenthood and the need for support to siblings when a baby is stillborn

BACKGROUND: It has been argued that having a stillborn baby in the family affects older siblings more than parents realize. The aim of this study was to describe parenthood and the needs of siblings after stillbirth from the parents' perspective.…

Tags: 2011, Adolescent, Adult, Avelin P, Backlog, Birth (berkeley, Calif.), Child, Erlandsson K, Female, Hildingsson I, Humans, Infant, Journal Article, Male, Parenting, Preschool, Rådestad I, sibling bereavement, Siblings, Stillbirth, Sweden

Young children's experiences of sibling death

1995-02

Tags: 1995, Backlog, Dowden S, Holaday Bonnie, Journal Article, Journal of Pediatric Nursing, sibling bereavement

A child dies, a child survives: the impact of sibling loss

When a child dies, the survivors-both parents and the remaining children—must adapt to a new reality. The immediate effect of sibling death is to precipitate grief and to increase the psychologic vulnerability of the remaining children. Communication…

Tags: 1992, Backlog, Gibbons MB, Journal Article, Journal Of Pediatric Health Care, sibling bereavement

Risk factors in the adjustment of siblings of children with cancer

The study investigated the psychological adjustment of 99 siblings of children with cancer. At 6 months post-diagnosis, 24 siblings had scores in the borderline or clinical range on parent- and teacher-completed measures of behavioural adjustment and…

Self-concept of siblings of children with cancer

Childhood cancer can have detrimental effects on the psychosocial well-being of healthy siblings of children with cancer. The limited research done over the past 40 years has identified adjustment difficulties such as poor self-concept, depression,…

Adolescent Sibling Bereavement: An Ongoing Attachment

A taxonomy of the adolescent sibling bereavement process was developed from the responses of 157 bereaved adolescents to the question "If you could ask or tell your dead sibling something, what would it be?" The taxonomy had six mutually exclusive…

Tags: 1992, Backlog, DeSantis L, Hogan N, Journal Article, Qualitative Health Research, sibling bereavement

Adolescent sibling bereavement as a catalyst for spiritual development: a model for understanding.

While our understanding of adolescent bereavement has greatly expanded in recent years, one area yet to be clarified is the relationship between grief following a significant loss and spirituality. This article strengthens our understanding of this…

Sibling bereavement: a concept analysis.

Investigators of sibling bereavement contend that the death of a sibling represents a unique and intense loss experience. The empirical literature, however, lacks conceptual clarity about the characteristics of sibling bereavement. Metaphors of…

Tags: 1997, Adult, Backlog, Bereavement, Concept Formation, Death, Death studies, Humans, Journal Article, Mahon MM, Models, Psychological, Research Design, Robinson L, Self Concept, sibling bereavement, Sibling Relations, T, United States

Sibling bereavement: research-based guidelines for nurses. [Review] [27 refs]

Despite the marked improvement in the treatment of childhood cancer in recent decades, there are children who die, leaving behind a legacy of grief for all who knew them, including their siblings. Nurses can play a significant role in facilitating…

Tags: 1993, Backlog, Davies B, IM, Journal Article, N, Seminars In Oncology Nursing, sibling bereavement

Childhood bereavement after the death of a sibling.

The article describes a study designed to explore the processes of sibling bereavement and to compare children's impressions with those of their parents. The Institute of Medicine model was used as a sensitizing framework for the study. Constant…

Psychological Tasks for Bereaved Children

The grief process in bereaved children is conceptualized as a series of psychological tasks that must be accomplished over time. Early tasks include understanding and self-protection

Tags: 1992, American Journal of Orthopsychiatry, Backlog, Baker John E, Gross Esther, Journal Article, Sedney MA, sibling bereavement

Long-Term Outcomes of Adolescent Sibling Bereavement

The experience of sibling bereavement is relatively unexamined in the literature; the long-term effects of such an experience have received even less attention. In this study, grounded theory techniques for the analysis of qualitative data were used…

Tags: 1991, Backlog, Bereavement, Davies B, Journal Article, Journal Of Adolescent Research, sibling bereavement

Long-Term Effects of Sibling Death during Adolescence

The authors explored the long-term consequences for adolescents of surviving a sibling afflicted with cystic fibrosis. Seventy-five adults were interviewed whose siblings had died from cystic fibrosis in the 1960s and 1970s. Subjects were drawn from…

Tags: 1991, Backlog, Fanos JH, Journal Article, Journal Of Adolescent Research, Nickerson BG, sibling bereavement

Adolescent Bereavement Long-Term Responses to a Sibling's Death from Cancer

The long-term effects of bereavement were assessed 7 to 9 years after death by interviews with 31 adolescent siblings from 21 families who participated in a longitudinal study of home carefor children with cancer. Categorical analysis of the…

Tags: 1991, Backlog, Campos RG, Journal Article, Journal Of Adolescent Research, Martinson IM, sibling bereavement

Patterns of grief in young children following the death of a sibling

Abstract Specific grief behaviors observed in children ages 4-16 years in the 2 years after the death of a sibling are reported. Using the Child Behavior Checklist (CBCL), the parents of 90 boys and girls rated the occurrence of behavior problems in…

Tags: 1995, Backlog, Davies B, Death, Death studies, Grief, Journal Article, McCown DE, sibling bereavement

Impact of a chronic illness in childhood: siblings' perceptions

This project investigated siblings' perceptions of family disruption when a brother or sister had cystic fibrosis (CF) or asthma. Data were gathered by phone interviews and questionnaires. Phone interviews were conducted with siblings of chronically…

Tags: 1996, Adolescent, Attitude To Health, Backlog, Child, Chronic Disease, Cystic Fibrosis, Derouin D, Female, Humans, Issues In Comprehensive Pediatric Nursing, Jessee PO, Journal Article, Male, Nursing Methodology Research, Pediatric Nursing, Questionnaires, sibling bereavement, Sibling Relations

Treasure Weekend: supporting bereaved siblings

The importance of allowing bereaved siblings the opportunity to be involved and mourn the loss of a sibling family member has gained increasing recognition. Child family members may need support in the same way that parents might need support to cope…

Children's descriptions of their feelings and what they found helpful during bereavement

Although clinicians have described the value of support groups in assisting children mourn the death of someone close, little is known about helping children with bereavement. By understanding what helps children mourn, nurses can better facilitate a…

Tags: 1995, Anger, Art Therapy, Backlog, Bereavement, Child, Child Psychology, Female, Humans, Journal Article, Lehna CR, Male, Nursing Methodology Research, Preschool, Self-Help Groups, sibling bereavement, The American Journal of Hospice & Palliative Care

The death of a twin

Death or disability is much more common in multiple births than single children, especially in the perinatal period. Parents face particular problems in that their loss may be underestimated; their grieving may be impeded by the confusion between the…

Tags: 1995, Adolescent, Adult, Backlog, Bryan EM, Child, Child Psychology, Counseling, Death, Female, Fetal Death, Grief, Guilt, Humans, Infant, Journal Article, Male, Newborn, Palliative Medicine, Parent-child Relations, Preschool, sibling bereavement, Social Support, Twins

Things that help and hinder adolescent sibling bereavement

A taxonomy of the things that help and hinder adolescents' sibling bereavement was developed from the responses of 140 bereaved adolescents to the questions What helped you cope with your sibling's death? and What made it harder to cope with your…

Effects of sudden infant death on bereaved siblings: a comparative study

This study investigated behavioural problems (as rated by mothers) in 38 children who had been suddenly bereaved of an infant sibling between 3 and 27 months previously. These children were compared with 40 children matched on age, gender, family…

Siblings of a child with cancer

A total of 21 healthy siblings were interviewed about their experiences when a brother or sister is diagnosed with cancer. Information about the illness, opinions about who should inform siblings, social support, specific worries and worst memories…

Comparing parent loss with sibling loss

The death of a loved one is a traumatic loss for children, but little attention has been paid to how children's responses vary according to who died--a parent or a sibling. This article reports the findings of a comparison between children's…

Bereavement and mourning in pediatric rehabilitation settings

Developmental changes in children's acquisition of death concepts and in their emotional reactions are reviewed. Moderating variables that may affect the nature of grieving processes after parental or sibling death are discussed, including…

Tags: 1993, Attitude To Death, Backlog, Bereavement, Brain Injuries, Child, Death studies, Donders J, Hospitalized, Humans, Journal Article, Male, Parents, Preschool, Rehabilitation Centers, sibling bereavement, Sibling Relations, United States

Meeting the bereavement needs of kids in patient/families--not just playing around

Children grieve differently than adults. Although the unit of care in hospice is the patient and family, emphasis is often on the grown members of the family and the anticipatory grief and bereavement needs of children and adolescents are sometimes…

Sibling grief: a case report

The intensity of sibling grief and the significance of sibling mourning are described in research studies. Yet, nurses caring for dying children may be unaware of these findings and may not offer adequate support to assist siblings in working through…

Tags: 1991, Adaptation, Archives Of Psychiatric Nursing, Art, Attitude To Death, Backlog, Bereavement, Child, Family Therapy, Grief, Heiney SP, Humans, Journal Article, Male, Psychological, sibling bereavement, Sibling Relations

The effects of time on the adolescent sibling bereavement process.

1988-08

Tags: 1988, Backlog, Hogan NS, Journal Article, N, Paediatric Nursing, sibling bereavement

Shared life space and sibling bereavement responses.

1988-12

Tags: 1988, Backlog, Bereavement, Cancer Nursing, Davies B, IM, Journal Article, N, sibling bereavement

The Effects of Group Therapy on Siblings of Pediatric Oncology Patients

The stress and psychological difficulties of siblings of children with cancer is well documented. Siblings must cope with a myriad of emotions, isolation from the family, and many changes in daily life. Therefore, a need exists to determine the…

Tags: 1990, Backlog, Ettinger RS, Ettinger S, Goon-Johnson K, Heiney SP, Journal Article, Journal Of Pediatric Oncology Nursing, sibling bereavement

Adolescent Reactions to Sibling Death: Perceptions of Mothers, Fathers, and Teenagers

1990-03

Tags: 1990, Backlog, Balk D, Hogan NS, Journal Article, Nursing Research, sibling bereavement

The Response of Children to the Dying and Death of a Sibling

1989-01

Tags: 1989, Backlog, Birenbaum LK, Journal Article, McCown DE, Omega, Phillips DS, Robinson MA, sibling bereavement, Stewart BJ

Effects of sibling death on teenagers

This study reports the effects of sibling death on 33 adolescents from white, middle- to upper-middle income families. Contact was made through mutual support groups for bereaved parents. A focused interview was used to gather data on bereavement…

Facilitating children's grief

A program of education and support is essential for children and their parent or adult caregivers when the children have experienced the death of a significant person. Children need guidance on how to deal with their profound feelings of grief. The…

Tags: 2003, Adolescent, Adult, Backlog, Child, Child Psychology, Communication, Counseling, Death, Grief, Humans, Interpersonal Relations, Journal Article, Riely M, School Nursing, Self-Help Groups, sibling bereavement, The Journal Of School Nursing: The Official Publication Of The National Association Of School Nurses

Quality of life and psychological adaptation in siblings of paediatric cancer patients, 2 years after diagnosis

Several studies have been conducted on sibling psychosocial adaptation to cancer in a brother or sister, but little is known on how the long-term adaptation of siblings to the illness develops. The concept quality of life has primarily been applied…

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