1
40
7
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Title
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November 2019 List
Text
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November 2019 List
URL Address
<a href="http://doi.org/10.7748/ncyp.2019.e1199" target="_blank" rel="noreferrer noopener">http://doi.org/10.7748/ncyp.2019.e1199</a>
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Title
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Approaches to community-based palliative care provision by children's hospices in the UK
Publisher
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Nursing children and young people.
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
advance care planning; child health; palliative nursing; article; child; controlled study; female; human; human experiment; Internet; major clinical study; male; out-of-hours care; prescription; questionnaire; registered nurse; telephone; workforce
Creator
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Tatterton MJ
Description
An account of the resource
The number of children in the UK with life-limiting conditions and the demand for home-based palliative care is increasing. Children's hospices remain a dominant provider of palliative care. This study aimed to determine the approaches taken by children's hospices across the UK in meeting the planned and unplanned health needs of children and their families who receive palliative care at home. In addition, the survey aimed to identify the professional composition of community teams and the number of children and families supported by each service. An internet-based questionnaire survey was sent to all children's hospices in the UK, comprising ten questions exploring the size of the team, geographical areas covered, workforce composition, services offered and approaches to managing unplanned, out of hours care. Responses were received from 14 (26%) of the hospices. A total of 1,618 children and their families were being cared for by these hospices, of whom 825 received care at home. Registered nurses constituted the greatest proportion of staff and were employed by all teams. Care provided at home was broadly split into two categories: planned short breaks and responsive palliative nursing. The latter comprised advance care planning, anticipatory prescribing and active symptom control. Out of hours care was usually offered in the form of telephone support. Models of community-based care are evolving to include nurses practising at specialist and advanced levels, allowing more children with increasingly complex conditions to be cared for at home.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.7748/ncyp.2019.e1199" target="_blank" rel="noreferrer noopener">10.7748/ncyp.2019.e1199</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Advance Care Planning
Article
Child
Child Health
Controlled Study
Female
Human
Human Experiment
Internet
Major Clinical Study
Male
November 2019 List
Nursing children and young people.
out-of-hours care
palliative nursing
prescription
Questionnaire
registered nurse
Tatterton MJ
Telephone
workforce
-
Dublin Core
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Title
A name given to the resource
2018 Developing World List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Developing World 2018 List
URL Address
<a href="http://doi.org/10.1097/JPN.0000000000000361" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1097/JPN.0000000000000361</a>
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Title
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Brazilian Neonatal Nurses' Palliative Care Experiences
Publisher
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The Journal of perinatal & neonatal nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
quality of life; infant; grief; newborn; Brazil; vulnerable population; education; palliative therapy; thematic analysis; human experiment; genetic transcription; neonatal intensive care unit; human; article; female; male; controlled study; interview; clinical article; neonatal nurse; convenience sample; exploratory research; quality of nursing care; registered nurse; teaching hospital
Creator
An entity primarily responsible for making the resource
de Castro de Oliveira F; Cleveland LM; Darilek U; Borges Silva AR; Carmona EV
Identifier
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<a href="http://doi.org/10.1097/JPN.0000000000000361" target="_blank" rel="noreferrer noopener">10.1097/JPN.0000000000000361</a>
2018
Article
Borges Silva AR
Brazil
Carmona EV
Cleveland LM
Clinical Article
Controlled Study
Convenience Sample
Darilek U
de Castro de Oliveira F
Developing World 2018 List
Education
Exploratory Research
Female
genetic transcription
Grief
Human
Human Experiment
Infant
Interview
Male
Neonatal Intensive Care Unit
Neonatal Nurse
Newborn
Palliative Therapy
Quality Of Life
quality of nursing care
registered nurse
teaching hospital
The Journal Of Perinatal & Neonatal Nursing
Thematic Analysis
vulnerable population
-
Dublin Core
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Title
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April 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April List 2024
URL Address
<a href="http://doi.org/10.1097/NJH.0000000000001018" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1097/NJH.0000000000001018</a>
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Title
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Changing the Landscape of the Neighborhood: The Expanding Role of the Pediatric Palliative Advanced Practice Registered Nurse
Publisher
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Journal of Hospice and Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2024
Subject
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child; article; human; palliative therapy; pharmacology; adolescent; evidence based practice; emergency care; medical society; consensus; special situation for pharmacovigilance; neighborhood; registered nurse
Creator
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Sartor N; Bass AK; Overstreet K
Description
An account of the resource
There is a dearth of information on the role of the pediatric palliative advanced practice registered nurse (APRN) reported in the literature, and yet, the role is expanding. Advances in technology and health care are helping children with medical complexity live longer, and the demand for pediatric palliative care is growing. As programs expand to meet this need, there are new opportunities for pediatric palliative APRNs to practice outside acute care consultative models, within large children's hospitals. The aim of this article was to describe the expanding role of the pediatric palliative APRN using a progressive case study that describes how these expanding roles can collaborate using evidence-based practice and expert consensus to define their roles. If pediatric palliative APRNs hesitate to define their practice, others will define it for them.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/NJH.0000000000001018" target="_blank" rel="noreferrer noopener">10.1097/NJH.0000000000001018</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2024
Adolescent
April List 2024
Article
Bass AK
Child
Consensus
Emergency Care
evidence based practice
Human
Journal of Hospice and Palliative Nursing
Medical Society
neighborhood
Overstreet K
Palliative Therapy
pharmacology
registered nurse
Sartor N
special situation for pharmacovigilance
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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March 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2020 List
URL Address
<a href="https://pediatrics.aappublications.org/content/144/2_MeetingAbstract/442">https://pediatrics.aappublications.org/content/144/2_MeetingAbstract/442</a>
Dublin Core
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Title
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Development of an innovative program to improve provision of palliative and hospice care to children and families in the community: The story of QoLA Kids
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
cancer patient; cancer prognosis; catchment; child; childhood cancer; conference abstract; controlled study; counselor; distress syndrome; female; Hospice Care; hospital personnel; human; magnet; major clinical study; male; nurse practitioner; outpatient; palliative therapy; patient referral; pediatric hospital; pediatric patient; prognosis; program impact; quality of life; registered nurse; social worker
Creator
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Kiefer A C; Kaye E C; Blazin L J; Baker J N
Description
An account of the resource
Background: Approximately 500,000 children in the United States suffer from serious illnesses each year and 50,000 die annually. Hospice and palliative care services are known to be beneficial for many children with serious illnesses and their families; however, hospice services only reach about 10% of eligible children who die in the United States, with the majority of pediatric patients receiving care through adult hospice organizations. Program Design: The Quality of Life for All (QoLA) Kids program, established in August 2012, is an outpatient, community-based pediatric palliative care and hospice program that strives to enhance quality of life for pediatric patients and families, provide care coordination across multiple settings, mitigate physical, psychosocial, and spiritual distress, ensure a comfortable and peaceful death in the patient's preferred setting, and support bereaved family members and hospital staff. The program represents a partnership between two MAGNET-certified pediatric hospitals and a local home health and hospice agency. QoLA Kids comprises an extensive interdisciplinary team including physicians, nurse practitioners, registered nurses, medical social workers, spiritual counselors, child life specialists, and administrative support staff. Patients are enrolled on either the palliative care or hospice arm of the program, with flexibility to transition easily between arms as clinical status and goals of care evolve. Eligibility for the hospice arm necessitates an expected prognosis of 6 months or less left to live. Program Impact: Since programmatic inception nearly 6 years ago, QoLA Kids has served a total of 330 children and families in the local catchment area. Approximately 41% of patients (n=135) were enrolled on the palliative arm, with the remaining 59% enrolled on hospice (n=195). Between 2012-2017, the mean number of days from enrollment to death was 142 days for patients on the hospice arm (n=76) and 288 for patients on the palliative care arm (n=5). The percentage of patients with malignancies who received palliative care prior to death increased from 71% to 97% within 2 years following program implementation. Conclusions/Future Directions: QoLA Kids is an innovative program that facilitates the provision of palliative care and hospice services and resources to children with serious illness and their families in the community. Through this program, children and families have been able to access palliative care services in their community well before the end of life. After program initiation, an increase in the number of palliative care consults was also seen within the pediatric oncology patient population suggesting that the program may provide an incentive for referral to palliative care. Further investigation is needed to identify optimal metrics for ascertaining the physical and psychosocial benefits from this innovative program.
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Baker J N
Blazin L J
Cancer Patient
Cancer Prognosis
catchment
Child
Childhood Cancer
conference abstract
Controlled Study
Counselor
Distress Syndrome
Female
Hospice Care
hospital personnel
Human
Kaye E C
Kiefer A C
magnet
Major Clinical Study
Male
March 2020 List
Nurse Practitioner
Outpatient
Palliative Therapy
Patient Referral
Pediatric Hospital
pediatric patient
Pediatrics
Prognosis
program impact
Quality Of Life
registered nurse
Social Worker
-
Dublin Core
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Title
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March 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2019.12.299" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2019.12.299</a>
Dublin Core
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Title
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Key Findings of the Structures and Processes of Inpatient Pediatric Palliative Care Programs (S737)
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
burnout; child; clergy; conference abstract; controlled study; female; health care delivery; health care system; hospital patient; human; major clinical study; male; palliative therapy; physician; practice guideline; registered nurse; social worker
Creator
An entity primarily responsible for making the resource
Rogers M; Williams C; Klick J; Friebert S; Heitner R
Description
An account of the resource
Objectives: * Examine the key structures and processes of inpatient pediatric palliative care programs in the United States. * Assess the degree of variation in program delivery, staffing, and patient volumes. * Identify three threats and three opportunities to the standardization of pediatric palliative care practice. Original Research Background: Over the past ten years, health care systems have begun to recognize pediatric palliative care (PPC) programs as the standard of practice in providing high-quality care. Despite this culture shift, little is known about how PPC programs operate, the services they provide, or the staffing required to provide them sustainably. Research Objectives: To examine the key structures and processes of PPC programs.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2019.12.299" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2019.12.299</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Burnout
Child
Clergy
conference abstract
Controlled Study
Female
Friebert S
Health Care Delivery
Health Care System
Heitner R
Hospital Patient
Human
Journal of Pain and Symptom Management
Klick J
Major Clinical Study
Male
March 2020 List
Palliative Therapy
Physician
Practice Guideline
registered nurse
Rogers M
Social Worker
Williams C
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2018 List
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2018 List
URL Address
<a href="http://doi.org/10.1089/jpm.2018.29007.abstract" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/jpm.2018.29007.abstract</a>
Dublin Core
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Title
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Nurses' knowledge, beliefs, practices, and barriers to pediatric palliative care
Publisher
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Journal of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
human; child; palliative therapy; controlled study; conference abstract; outpatient department; registered nurse; continuing education; pediatric nursing
Creator
An entity primarily responsible for making the resource
DeAnda K; Adlard K; Fry-Bowers EK
Description
An account of the resource
Description: Thousands of children in the United States die each year and many more live with illnesses which reduce their quality of life and contribute to suffering. Pediatric palliative care is the specialized medical care of children living with life limiting illnesses and en-compasses full spectrum care which focuses on the needs of the child and their family. While there have been great strides in improving the delivery of care to these children, many barriers have been identified which contribute to late referral, or a complete lack of referral to palliative care services. This study examined pedi-atric nurses knowledge, beliefs and practices regarding pediatric palliative care as well as identified perceived barriers to the im-plementation of pediatric palliative care across units at an academic children's hospital. A descriptive cross-sectional web-based survey was used to assess pediatric nursing professionals' knowledge, beliefs, and practices regarding pediatric palliative care as well as perceived barriers to the implementation of pediatric palliative care across units at an academic children's hospital. Descriptive and basic inferential analysis were performed on the results of the web-based survey looking at knowledge, beliefs, practices and perceived barriers of pediatric palliative care nurses across all units of a children's hospital. The survey was sent to all registered nurses on both the inpatient and outpatient units with 331 RN's responding in the four weeks the survey was open. This poster will highlight analysis of the data obtained in relation to nurses' knowledge, beliefs, practices and perceived barriers to pediatric palliative care. The results obtained in this study will provide a better a understanding of what nursing professionals currently perceive about pediatric palliative care in an effort to guide continuing education as well as facilitate process improvement suggestions to reduce barriers of pediatric palliative care in the acute hospital setting.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2018.29007.abstract" target="_blank" rel="noreferrer noopener">10.1089/jpm.2018.29007.abstract</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Adlard K
August 2018 List
Child
conference abstract
continuing education
Controlled Study
DeAnda K
Fry-Bowers EK
Human
Journal of Palliative Medicine
outpatient department
Palliative Therapy
Pediatric Nursing
registered nurse
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
March 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March List 2024
URL Address
<a href="http://doi.org/10.1016/j.nepr.2024.103885" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.nepr.2024.103885</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Training perinatal nurses in palliative communication by using scenario-based simulation: A quasi-experimental study
Publisher
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Nurse Education in Practice
Date
A point or period of time associated with an event in the lifecycle of the resource
2024
Subject
The topic of the resource
interpersonal communication; nurse; palliative therapy; quasi experimental study; simulation; Taiwan; training; article; communication skill; continuing education; controlled study; delivery room; experimental design; female; health care personnel; human; intensive care unit; learning; newborn; purposive sample; registered nurse; structured questionnaire; teaching; terminal disease; therapy
Creator
An entity primarily responsible for making the resource
Chen HW; Cheng SF; Hsiung Y; Chuang YH; Liu TY; Kuo CL
Description
An account of the resource
Aim: This study aimed to assess the impact of two educational modules on enhancing the communication confidence, competence and performance of perinatal nurses in the context of palliative care. Background: Concerns have arisen regarding the preparedness of perinatal nurses in delivering palliative care, especially in terms of deficiencies in communication skills and negative attitudes toward making life-support decisions for parents facing neonates with terminal conditions. Bridging this gap necessitates improved perinatal palliative care education for healthcare providers. Research has shown that simulation-based teaching effectively enhances procedural competence, communication skills and confidence among healthcare professionals. However, comprehensive curricula focusing on perinatal palliative communication remain limited. Design: This study used a quasi-experimental design employing a two-group repeated measure approach. It involved a purposive sample of 79 perinatal nurses from a hospital in northern Taiwan. Methods: A palliative communication course specifically designed for registered nurses in perinatal units was developed. Participants were allocated to either the experimental group (Scenario-Based Simulation, SBS) or the control group (traditional didactic lecture). Communication confidence and competence were assessed before and immediately after the course through structured questionnaires. Learning satisfaction was collected post-intervention and participants underwent performance evaluation by standardized parents one week later. Results: A significant training gap in palliative care exists among nurses in OB/GYN wards, delivery rooms and neonatal critical care units, highlighting the need for continuing education. All 79 participants completed the training course. Following the intervention, nurses in the SBS group (n=39) exhibited significant improvements in self-reported confidence (p <0.05), competence (p <0.01) and performance (p <0.001) in neonatal palliative communication compared with the traditional didactic lecture group (n=40). The SBS group also received higher satisfaction ratings from nurse learners (p <0.001). Conclusions: The research findings support scenario-based simulation as a more effective educational approach compared with traditional didactic lectures for enhancing communication confidence and competence. These results were further reinforced by evaluation from standardized patients, highlighting the value of direct feedback in enhancing nurses' performance. Tailoring SBS designs to diverse nursing contexts and incorporating a flipped approach can further enrich the overall learning experience. Given its high effectiveness and positive reception, we recommend integrating this educational module into palliative care training programs for perinatal nurses.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.nepr.2024.103885" target="_blank" rel="noreferrer noopener">10.1016/j.nepr.2024.103885</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2024
Article
Chen HW
Cheng SF
Chuang YH
Communication Skill
continuing education
Controlled Study
Delivery Room
experimental design
Female
Health Care Personnel
Hsiung Y
Human
Intensive Care Unit
Interpersonal Communication
Kuo CL
Learning
Liu TY
March List 2024
Newborn
Nurse
Nurse Education In Practice
Palliative Therapy
Purposive Sample
quasi experimental study
registered nurse
Simulation
structured questionnaire
Taiwan
Teaching
terminal disease
Therapy
Training