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40
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Dublin Core
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Title
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March 2024 List
Text
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Citation List Month
March List 2024
URL Address
<a href="http://doi.org/10.57187/s.3498" target="_blank" rel="noreferrer noopener"> http://doi.org/10.57187/s.3498</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The funding of specialised paediatric palliative care in Switzerland: a conceptualisation and modified Delphi study on obstacles and priorities
Publisher
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Swiss Medical Weekly
Date
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2023
Subject
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Delphi study; funding; modified Delphi study; palliative therapy; pediatrics; Switzerland; adult; aged; article; clinical practice; consensus development; Delphi Technique; evidence based medicine; female; health care cost; health care delivery; health service; human; male; Palliative Care; practice guideline; program effectiveness; program sustainability; reimbursement; Switzerland
Creator
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Mitterer S; Zimmermanna K; Fink G; Simon M; Gerber AK; Bergstrasser E
Description
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BACKGROUND: Effective funding models are key for implementing and sustaining critical care delivery programmes such as specialised paediatric palliative care (SPPC). In Switzerland, funding concerns have frequently been raised as primary barriers to providing SPPC in dedicated settings. However, systematic evidence on existing models of funding as well as primary challenges faced by stakeholders remains scarce. AIMS: The present study’s first aim was to investigate and conceptualise the funding of hospital-based consultative SPPC programmes in Switzerland. Its second aim was to identify obstacles to and priorities for funding these programmes sustainably. METHODS: A 4-step process, including a document analysis, was used to conceptualise the funding of hospital-based consultative SPPC programmes in Switzerland. In consultation with a purposefully selected panel of experts in the subject, a 3-round modified Delphi study was conducted to identify funding-relevant obstacles and priorities regarding SPPC. RESULTS: Current funding of hospital-based consultative specialised paediatric palliative care programmes is complex and fragmented, combining funding from public, private and charitable sources. Overall, 21 experts participated in the first round of the modified Delphi study, 19 in round two and 15 in round three. They identified 23 obstacles and 29 priorities. Consensus (>70%) was obtained for 12 obstacles and 22 priorities. The highest level of consensus (>90%) was achieved for three priorities: the development of financing solutions to ensure long-term funding of SPPC programmes; the provision of funding and support for integrated palliative care; and sufficient reimbursement of inpatient service costs in the context of high-deficit palliative care patients. CONCLUSION: Decision- and policy-makers hoping to further develop and expand SPPC in Switzerland should be aware that current funding models are highly complex and that SPPC funding is impeded by many obstacles. Considering the steadily rising prevalence of children with life-limiting conditions and the proven benefits of SPPC, improvements in funding models are urgently needed to ensure that the needs of this highly vulnerable population are adequately met.
Identifier
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<a href="http://doi.org/10.57187/s.3498" target="_blank" rel="noreferrer noopener">10.57187/s.3498</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Adult
Aged
Article
Bergstrasser E
Clinical Practice
Consensus Development
Delphi Study
Delphi Technique
evidence based medicine
Female
Fink G
Funding
Gerber AK
Health Care Cost
Health Care Delivery
Health Service
Human
Male
March List 2024
Mitterer S
modified Delphi study
Palliative Care
Palliative Therapy
Pediatrics
Practice Guideline
program effectiveness
Program Sustainability
Reimbursement
Simon M
Swiss Medical Weekly
Switzerland
Zimmermanna K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2018 List
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2018 List
URL Address
<a href="http://doi.org/10.1007/s00520-018-4193-2" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s00520-018-4193-2</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Wrapped with love-art therapy in paediatric palliative care
Publisher
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Supportive Care in Cancer
Date
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2018
Subject
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human; child; expectation; female; male; palliative therapy; comfort; controlled study; conference abstract; narrative; human experiment; art therapy; extended family; grandchild; grandparent; program effectiveness; rest
Creator
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King J
Description
An account of the resource
Introduction To discuss the extended family support that is required in children's palliative care, focusing on Grandparents, who sometimes may be seen as the 'forgotten mourners'. Objectives Utilizing art psychotherapy in a group setting to encourage peer support between ten grandparents (bereaved and non-bereaved) within our inaugural weekend Camp program. Methods Detailing one art therapy session the first morning of the Camp where each of the group chose a pebble to represent their grandchild. They were then invited to choose a different layer, from an extensive array of art materials, to represent each of the important people that wrap, swaddle, comfort, protect, support, and surround this child. There was time dedicated to share their experience and/or artwork within the confidential safe space of the group. This allowed them to express some of the difficulties of having a grandchild with a life limiting illness and the dynamics within the extended family. Results Anonymous pre-and post-narrative evaluations were used to assess expectations prior to the Grandparents weekend and the effectiveness of the program. Discussions within the group at the end of the session and throughout the rest of the weekend revealed that although it had been hard for some to open up, and at times emotional, it was therapeutic and helped form strong bonds within the grandparents. Conclusions It was a useful tool to share internally with the multi-disciplinary team, with added insight utilizing this creative medium. Would possibly like to evaluate more specifically the art therapy component of the program in future camps.
Identifier
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<a href="http://doi.org/10.1007/s00520-018-4193-2" target="_blank" rel="noreferrer noopener">10.1007/s00520-018-4193-2</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Art Therapy
August 2018 List
Child
Comfort
conference abstract
Controlled Study
Expectation
extended family
Female
grandchild
grandparent
Human
Human Experiment
King J
Male
Narrative
Palliative Therapy
program effectiveness
rest
Supportive Care In Cancer