1
40
3
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Text
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URL Address
<a href="http://doi.org/10.1016/j.arcped.2014.05.012" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.arcped.2014.05.012</a>
Dublin Core
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Title
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[Pediatric palliative care: A national survey of French pediatric residents' knowledge, education, and clinical experience]
Publisher
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Archives De Pediatrie
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Education; continuing; Medical; professional issues
Creator
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Lefeubvre C; Viallard ML; Schell M
Description
An account of the resource
BACKGROUND: The need for educational training of healthcare professionals in palliative care is an important issue. Training and practice of pediatric residents in the field of pediatric palliative care (PPC) has never been assessed, although the organization of the medical curriculum in France is currently being revised. MATERIALS AND METHODS: This study presents a national survey of pediatric residents, using a computerized anonymous questionnaire. Four different areas were studied: epidemiological data, theoretical and practical knowledge, education, and clinical experience in PPC. RESULTS: The response rate was 39% (n=365/927). Whatever their age or regional location, 25% of residents did not know any details of the French law concerning patients' rights and the end of life. Experience with PPC starts very early since 77% of the first-year pediatric residents experienced at least one child in a palliative care and/or end-of-life situation. During their entire residency, 87% of the residents had experience with PPC and nearly all (96%) end-of-life care. Furthermore, 76% had participated in announcing palliative care (cancer, ICU, etc.) or a serious illness, and 45% had met and discussed with bereaved parents. Furthermore, while 97% of the pediatric residents received training in adult palliative care, mainly before their residency, only 60% received specific PPC training. DISCUSSION AND CONCLUSION: Ninety-six percent of all French pediatric residents encountered a PPC situation during their residency. That 77% of them had experienced PPC during their first year of residency shows the importance of early training in PPC for pediatric residents. Furthermore, this study points out that there is a significant lack in PPC training since 40% of all residents in the study received no specific PPC training. Progress in education remains insufficient in the dissemination of knowledge on the legal framework and concepts of palliative medicine: while the medical curriculum is being revised, we suggest that training in medical ethics and PPC should be introduced very early and systematically.
2014-08
Identifier
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<a href="http://doi.org/10.1016/j.arcped.2014.05.012" target="_blank" rel="noreferrer">10.1016/j.arcped.2014.05.012</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Archives de Pediatrie
Backlog
Continuing
Education
Journal Article
Lefeubvre C
Medical
professional issues
Schell M
Viallard ML
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1097/NMC.0000000000000025" target="_blank" rel="noreferrer">http://doi.org/10.1097/NMC.0000000000000025</a>
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Title
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Impact of a pediatric quality of life program on providers' moral distress
Publisher
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The American Journal Of Maternal Child Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
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professional issues; Burnout; moral distress
Creator
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Brandon D; Ryan D; Sloane R; Docherty SL
Description
An account of the resource
PURPOSE: To evaluate the impact of the introduction of a new pediatric palliative care program on the pattern of moral distress in pediatric healthcare providers (HCPs). STUDY DESIGN AND METHODS: We used a before and after cross-sectional survey design to study the impact of the Pediatric Quality of Life (QoL) Program on the moral distress of pediatric HCPs at a single center. Moral distress is measured in both intensity and frequency. The sample came from lists of all pediatric providers (nurses, physicians, social workers, therapists, dieticians, chaplains, administrators) serving the inpatient and outpatient pediatric areas of a southeastern academic tertiary medical center. RESULTS: The intensity of moral distress from situations focused on "individual responsibility" and "not in the best interest of the patient" were similar before and after program implementation, but the intensity of distress related to "work quality of life" decreased after program implementation. Situations causing moral distress when the "care given was not in the patient's best interest" occurred less frequently after program implementation. Providers disagreed with statements that "work-related distress" impacted their personal or professional life. The number of providers who were considering leaving the institution within 6 months decreased following program implementation. CLINICAL IMPLICATIONS: After implementation of the Pediatric QoL Program, nurses and other providers encountered morally distressing situations less often. Providers also answered that they had greater comfort with and competence in providing care focused on patients' quality of life after completing the program. As palliative care programs include many activities that reduce moral distress, nurses should actively take advantage of participation in debriefing sessions and staff education to maximize their work quality of life.
2014-06
Identifier
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<a href="http://doi.org/10.1097/NMC.0000000000000025" target="_blank" rel="noreferrer">10.1097/NMC.0000000000000025</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Backlog
Brandon D
Burnout
Docherty SL
Journal Article
Moral Distress
professional issues
Ryan D
Sloane R
The American Journal Of Maternal Child Nursing
-
Dublin Core
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Title
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March 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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March 2022 List
URL Address
<a href="http://doi.org/10.7748/ncyp.2022.e1403" target="_blank" rel="noreferrer noopener">http://doi.org/10.7748/ncyp.2022.e1403</a>
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Title
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Nurses' experiences of managing vulnerability when working with seriously ill children
Publisher
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Nursing Children and Young People
Date
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2022
Subject
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clinical; grief; professional issues; child health; end of life care; professional; attitudes to death; nurses’ wellbeing
Creator
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Nugent A; Donohue G; Higgins A
Description
An account of the resource
BACKGROUND: Nurses who work with very unwell or dying children may experience intense sorrow and distress in response to loss, which can take an emotional toll on them, potentially affecting care provision. AIM: This study aimed to explore the experiences of children's nurses who work with seriously ill children and to gain an insight into the dynamics involved in working with children and their families, as well as the nurses' experiences of managing their own vulnerability. METHODS: In-depth interviews were conducted with five children's nurse participants, and data were analysed using interpretive phenomenological analysis. FINDINGS: Three thematic categories were identified - 'being emotionally full', 'navigating the rules of grief' and 'prism of time'. Caring for seriously ill and dying children is a unique type of nursing and is often regarded as contrary to the 'natural' process of life. Findings were dominated by unresolved grief and the mechanisms used to cope with this emotional pain. CONCLUSION: Nurse educators must be aware of the strategies that people use to avoid engaging with painful emotional experiences. Without this understanding and self-awareness, children's nurses can be caught in a cycle of unresolved grief that affects their own health and could affect their ability to engage with children and families in an empathetic and supportive way.
Identifier
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<a href="http://doi.org/10.7748/ncyp.2022.e1403" target="_blank" rel="noreferrer noopener">10.7748/ncyp.2022.e1403</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
attitudes to death
Child Health
Clinical
Donohue G
End Of Life Care
Grief
Higgins A
March 2022 List
Nugent A
nurses’ wellbeing
Nursing Children and Young People
Professional
professional issues