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Dublin Core
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Title
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November 2021 List
Text
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Citation List Month
November 2021 List
URL Address
<a href="http://doi.org/10.3390/children8090802" target="_blank" rel="noreferrer noopener">http://doi.org/10.3390/children8090802</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Palliative Care in Pediatric Pulmonology
Publisher
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Children
Date
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2021
Subject
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palliative care; quality of life; bronchopulmonary dysplasia; communication; pulmonary hypertension; cystic fibrosis; psychosocial support; neuromuscular disease; lung transplant; pediatric pulmonology; primary palliation
Creator
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Baumann T; Das S; Jarrell JA; Nakashima-Paniagua Y; Benitez EA; Gazzaneo MC; Villafranco N
Description
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Children with End Stage Lung Disease (ESLD) are part of the growing population of individuals with life-limiting conditions of childhood. These patients present with a diverse set of pulmonary, cardiovascular, neuromuscular, and developmental conditions. This paper first examines five cases of children with cystic fibrosis, bronchopulmonary dysplasia, neuromuscular disease, pulmonary hypertension, and lung transplantation from Texas Children's Hospital. We discuss the expected clinical course of each condition, then review the integration of primary and specialized palliative care into the management of each diagnosis. This paper then reviews the management of two children with end staged lung disease at Hospital Civil de Guadalajara, providing an additional perspective for approaching palliative care in low-income countries.
Identifier
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<a href="http://doi.org/10.3390/children8090802" target="_blank" rel="noreferrer noopener">10.3390/children8090802</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Baumann T
Benitez EA
Bronchopulmonary Dysplasia
Children
Communication
Cystic Fibrosis
Das S
Gazzaneo MC
Jarrell JA
lung transplant
Nakashima-Paniagua Y
Neuromuscular Disease
November 2021 List
Palliative Care
Pediatric Pulmonology
primary palliation
psychosocial support
pulmonary hypertension
Quality Of Life
Villafranco N