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Dublin Core
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Title
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2019 Oncology List
Text
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Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1002/pbc.27771" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/pbc.27771</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Utilization of palliative care consultations in pediatric oncology phase I clinical trials
Publisher
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Pediatric Blood and Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
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palliative care; pediatric oncology; phase I trial; quality of life; symptom management
Creator
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Cuviello A; Boss R; Shah N; Battles H; Beri A; Wiener L
Description
An account of the resource
Pediatric phase I clinical oncology trials represent a unique cohort of patients who have not responded to standard therapies and remain highly vulnerable to treatment toxicity and/or disease burden. Incorporating a palliative care consultation into the care plan for those with relapsed/refractory cancer where chance of cure is limited is generally recommended. A retrospective chart review of pediatric phase I trials revealed that palliative care was consulted in <20% of patients, most often for symptom management. Efforts to increase the use of palliative services in this population may enhance quality of life for children and families enrolled in phase I studies.
Identifier
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<a href="http://doi.org/10.1002/pbc.27771" target="_blank" rel="noreferrer noopener">10.1002/pbc.27771</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Battles H
Beri A
Boss R
Cuviello A
Oncology 2019 List
Palliative Care
Pediatric Blood and Cancer
Pediatric Oncology
phase I trial
Quality Of Life
Shah N
Symptom Management
Wiener L
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2020 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2020 List
URL Address
<a href="http://doi.org/10.1080/08880018.2020.1759738" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/08880018.2020.1759738</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Characteristics of parental decision-making for children with advanced cancer who are offered enrollment in early-phase clinical trials: A systematic review
Publisher
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Pediatric Hematology and Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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informed consent; decision-making; communication; pediatric oncology; phase I trial
Creator
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Le Rouzic M A; Claudot F
Description
An account of the resource
Limited research is available on parental decision-making regarding their children's participation in pediatric phase I oncology trials compared with the adult population. The objectives of this review were to describe: (1) the process of parental decision-making in this situation; (2) the optimal communication features physicians need when proposing inclusion in such trials; and (3) the place of the child/adolescent in the assent process. Thirty relevant studies meeting inclusion criteria were identified by searching five computerized databases (PubMed, Web of Science, Cairn, Psychinfo, EM Premium). Parental decision-making is a complex process based on hopeful expectations, multiple family considerations and the child's previous cancer experience. It is highly impacted by the quality of physicians' communication. A therapeutic alliance along with an empathetic attitude and a timely delivery of accurate information is essential. Due weight should be given to the voice of children or adolescents and their optimal level of involvement may be discussed depending on their age and maturity. They should be given age-adapted information in order to empower them to be rightfully and meaningfully involved in early-phase research. This review highlights the main gaps and necessary remedial actions to support an optimal patient care management in this situation. Physicians' training in communication, structured interdisciplinary teamwork and early integration of palliative care are three key challenges which need to be implemented to actively engage in optimization strategies which would improve patient care and family support when offering enrollment in a phase I trial. Copyright © 2020, © 2020 Taylor & Francis Group, LLC.
Identifier
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<a href="http://doi.org/10.1080/08880018.2020.1759738" target="_blank" rel="noreferrer noopener">10.1080/08880018.2020.1759738</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Claudot F
Communication
Decision-making
Informed Consent
Le Rouzic M A
Oncology 2020 List
Pediatric Hematology And Oncology
Pediatric Oncology
phase I trial