1 40 1 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource February 2025 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month February List 2025 URL Address <a href="http://doi.org/10.1016/j.jaac.2024.02.001" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.jaac.2024.02.001</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Psychiatric Care of Children and Young Adults With Neurodegenerative Diseases Publisher An entity responsible for making the resource available Journal of the American Academy of Child and Adolescent Psychiatry Date A point or period of time associated with an event in the lifecycle of the resource 2024 Subject The topic of the resource childhood mortality; human; spasticity; quality of life; palliative therapy; patient care; young adult; prognosis; comorbidity; interpersonal communication; patient comfort; symptom; disease exacerbation; side effect; seizure; expectation; gabapentin/dt [Drug Therapy]; prevalence; parkinsonism; dysphagia; risperidone/dt [Drug Therapy]; trazodone/dt [Drug Therapy]; sleep disorder; dementia; aggression; automutilation; motor dysfunction; onset age; neuropsychiatry; agitation; irritability; caregiver burden; adolescence; editorial; anxiety disorder; collaborative care team; pediatric patient; symptom burden; polypharmacy; psychosis; responsibility; feeding tube; child psychiatry; gabapentin/pv [Special Situation for Pharmacovigilance]; body weight gain; sensory dysfunction; cognitive defect/si [Side Effect]; medication therapy management; feeding disorder; mood disorder; degenerative disease/dm [Disease Management]; degenerative disease/dt [Drug Therapy]; mental health care; antiemetic agent/pv [Special Situation for Pharmacovigilance]; apathy; appetite stimulant/pv [Special Situation for Pharmacovigilance]; behavior therapy; choreoathetosis/dt [Drug Therapy]; extrapyramidal symptom; first-line treatment; high risk behavior; Huntington chorea/dm [Disease Management]; iatrogenic disease/si [Side Effect]; juvenile neuronal ceroid lipofuscinosis/dm [Disease Management]; Lafora disease; live birth; mirtazapine/pv [Special Situation for Pharmacovigilance]; neuroleptic agent/ae [Adverse Drug Reaction]; neurologic disease/dm [Disease Management]; obsession; parenting education; perseveration; psychiatric neuropalliative care; psychoeducation; quetiapine/dt [Drug Therapy]; quetiapine/pv [Special Situation for Pharmacovigilance]; risperidone/pv [Special Situation for Pharmacovigilance]; tardive dyskinesia/si [Side Effect]; Tay Sachs disease; trazodone/pv [Special Situation for Pharmacovigilance]; visual impairment Creator An entity primarily responsible for making the resource Hauptman AJ; Augustine EF; Brown HB Description An account of the resource Pediatric neurodegenerative disorders (PNDs), such as juvenile neuronal ceroid lipofuscinosis (CLN3 disease, also called Batten disease) and juvenile Huntington disease, are devastating conditions that result in progressive neurological dysfunction and profound medical comorbidities leading to early mortality in children and young adults.1 There are more than 70 PNDs, with a combined estimated prevalence of ∼0.1 in 1,000 live births.2,3 Individuals with PNDs commonly experience complex neuropsychiatric manifestations such as neurocognitive symptoms (dementia), irritability, aggression and self-injury, mood disorders, sensory alterations, and psychosis. Symptoms are dynamic, changing with illness progression, and evolve over time. Effects on patients and families can be devastating, and caregiver burden is enormous.4 We are a group of colleagues with backgrounds in pediatric neuropsychiatry, pediatric neuropalliative care, and pediatric neurology who care for patients together in specialized clinics. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1016/j.jaac.2024.02.001" target="_blank" rel="noreferrer noopener">10.1016/j.jaac.2024.02.001</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2024 Adolescence Aggression Agitation antiemetic agent/pv [Special Situation for Pharmacovigilance] anxiety disorder apathy appetite stimulant/pv [Special Situation for Pharmacovigilance] Augustine EF automutilation Behavior Therapy body weight gain Brown HB Caregiver Burden Child Psychiatry Childhood Mortality choreoathetosis/dt [Drug Therapy] cognitive defect/si [Side Effect] collaborative care team Comorbidity degenerative disease/dm [Disease Management] degenerative disease/dt [Drug Therapy] Dementia disease exacerbation Dysphagia Editorial Expectation extrapyramidal symptom February List 2025 feeding disorder feeding tube first-line treatment gabapentin/dt [Drug Therapy] gabapentin/pv [Special Situation for Pharmacovigilance] Hauptman AJ high risk behavior Human Huntington chorea/dm [Disease Management] iatrogenic disease/si [Side Effect] Interpersonal Communication Irritability Journal Of The American Academy Of Child And Adolescent Psychiatry juvenile neuronal ceroid lipofuscinosis/dm [Disease Management] Lafora disease Live Birth Medication therapy management mental health care mirtazapine/pv [Special Situation for Pharmacovigilance] mood disorder motor dysfunction neuroleptic agent/ae [Adverse Drug Reaction] neurologic disease/dm [Disease Management] neuropsychiatry obsession onset age Palliative Therapy parenting education parkinsonism Patient Care Patient Comfort pediatric patient perseveration Polypharmacy Prevalence Prognosis psychiatric neuropalliative care psychoeducation psychosis Quality Of Life quetiapine/dt [Drug Therapy] quetiapine/pv [Special Situation for Pharmacovigilance] responsibility risperidone/dt [Drug Therapy] risperidone/pv [Special Situation for Pharmacovigilance] Seizure sensory dysfunction Side Effect sleep disorder Spasticity Symptom symptom burden tardive dyskinesia/si [Side Effect] Tay Sachs disease trazodone/dt [Drug Therapy] trazodone/pv [Special Situation for Pharmacovigilance] visual impairment Young Adult