<?xml version="1.0" encoding="UTF-8"?>
<itemContainer xmlns="http://omeka.org/schemas/omeka-xml/v5" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://omeka.org/schemas/omeka-xml/v5 http://omeka.org/schemas/omeka-xml/v5/omeka-xml-5-0.xsd" uri="https://pedpalascnetlibrary.omeka.net/items/browse?tags=pediatrics%3A+neonatology&amp;output=omeka-xml" accessDate="2026-05-16T05:01:57-04:00">
  <miscellaneousContainer>
    <pagination>
      <pageNumber>1</pageNumber>
      <perPage>40</perPage>
      <totalResults>1</totalResults>
    </pagination>
  </miscellaneousContainer>
  <item itemId="17610" public="1" featured="1">
    <collection collectionId="74">
      <elementSetContainer>
        <elementSet elementSetId="1">
          <name>Dublin Core</name>
          <description>The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.</description>
          <elementContainer>
            <element elementId="50">
              <name>Title</name>
              <description>A name given to the resource</description>
              <elementTextContainer>
                <elementText elementTextId="132576">
                  <text>July 2021 List</text>
                </elementText>
              </elementTextContainer>
            </element>
          </elementContainer>
        </elementSet>
      </elementSetContainer>
    </collection>
    <itemType itemTypeId="1">
      <name>Text</name>
      <description>A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.</description>
      <elementContainer>
        <element elementId="53">
          <name>Citation List Month</name>
          <description/>
          <elementTextContainer>
            <elementText elementTextId="132837">
              <text>July 2021 List</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="56">
          <name>URL Address</name>
          <description/>
          <elementTextContainer>
            <elementText elementTextId="132845">
              <text>&lt;a href="http://doi.org/10.1080/15265161.2021.1925777" target="_blank" rel="noreferrer noopener"&gt;http://doi.org/​10.1080/15265161.2021.1925777&lt;/a&gt;</text>
            </elementText>
          </elementTextContainer>
        </element>
      </elementContainer>
    </itemType>
    <elementSetContainer>
      <elementSet elementSetId="1">
        <name>Dublin Core</name>
        <description>The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.</description>
        <elementContainer>
          <element elementId="50">
            <name>Title</name>
            <description>A name given to the resource</description>
            <elementTextContainer>
              <elementText elementTextId="132838">
                <text>Postponed Withholding: Balanced Decision-Making at the Margins of Viability</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="45">
            <name>Publisher</name>
            <description>An entity responsible for making the resource available</description>
            <elementTextContainer>
              <elementText elementTextId="132839">
                <text>American Journal of Bioethics</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="40">
            <name>Date</name>
            <description>A point or period of time associated with an event in the lifecycle of the resource</description>
            <elementTextContainer>
              <elementText elementTextId="132840">
                <text>2021</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="49">
            <name>Subject</name>
            <description>The topic of the resource</description>
            <elementTextContainer>
              <elementText elementTextId="132841">
                <text>decision-making; end-of-life issues; Children and families; professional-patient relationship; pediatrics: neonatology</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="39">
            <name>Creator</name>
            <description>An entity primarily responsible for making the resource</description>
            <elementTextContainer>
              <elementText elementTextId="132842">
                <text> Syltern J; Ursin L; Solberg B; Støen R</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="41">
            <name>Description</name>
            <description>An account of the resource</description>
            <elementTextContainer>
              <elementText elementTextId="132843">
                <text>Advances in neonatology have led to improved survival for periviable infants. Immaturity still carries a high risk of short- and long-term harms, and uncertainty turns provision of life support into an ethical dilemma. Shared decision-making with parents has gained ground. However, the need to start immediate life support and the ensuing difficulty of withdrawing treatment stands in tension with the possibility of a fair decision-making process. Both the parental "instinct of saving" and "withdrawal resistance" involved can preclude shared decision-making. To help health care personnel and empower parents, we propose a novel approach labeled "postponed withholding." In the absence of a prenatal advance directive, life support is started at birth, followed by planned redirection to palliative care after one week, unless parents, after a thorough counseling process, actively ask for continued life support. Despite the emotional challenges, this approach can facilitate ethically balanced decision-making processes in the gray zone.</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="43">
            <name>Identifier</name>
            <description>An unambiguous reference to the resource within a given context</description>
            <elementTextContainer>
              <elementText elementTextId="132844">
                <text>&lt;a href="http://doi.org/10.1080/15265161.2021.1925777" target="_blank" rel="noreferrer noopener"&gt;10.1080/15265161.2021.1925777&lt;/a&gt;</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="47">
            <name>Rights</name>
            <description>Information about rights held in and over the resource</description>
            <elementTextContainer>
              <elementText elementTextId="132846">
                <text>Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).</text>
              </elementText>
            </elementTextContainer>
          </element>
        </elementContainer>
      </elementSet>
    </elementSetContainer>
    <tagContainer>
      <tag tagId="35436">
        <name>2021</name>
      </tag>
      <tag tagId="1518">
        <name>American Journal of Bioethics</name>
      </tag>
      <tag tagId="4522">
        <name>Children And Families</name>
      </tag>
      <tag tagId="137">
        <name>Decision-making</name>
      </tag>
      <tag tagId="6289">
        <name>End-Of-Life Issues</name>
      </tag>
      <tag tagId="36759">
        <name>July 2021 List</name>
      </tag>
      <tag tagId="36883">
        <name>pediatrics: neonatology</name>
      </tag>
      <tag tagId="5974">
        <name>Professional-patient Relationship</name>
      </tag>
      <tag tagId="36884">
        <name>Solberg B</name>
      </tag>
      <tag tagId="36885">
        <name>Støen R</name>
      </tag>
      <tag tagId="27494">
        <name>Syltern J</name>
      </tag>
      <tag tagId="27493">
        <name>Ursin L</name>
      </tag>
    </tagContainer>
  </item>
</itemContainer>
