Peer-designed parents' bereavement panel: Exposing first-year medical students to pediatric end-of-life care
Bereavement; care behavior; child; clinical article; comfort; conference abstract; controlled study; curriculum; female; human; human experiment; learning; Likert scale; male; medical school; medical student; pediatric oncologist; pediatrics; preclinical study; terminal care
Program Goals: Despite the Liaison Committee for Medical Education (LCME) mandatory requirement for the incorporation of end-of-life care education into medical school curriculum, very few studies have reported successful approaches, and standardization across medical schools is lacking. Furthermore, very little effort has focused on the incorporation of pediatric-specific end-of-life care education into the preclinical years. The purpose of this study is to determine whether a bereavement panel consisting of parents who had a child pass away from a life threatening condition: (1) improved first-year medical students' self-reported ability to interact with children suffering from life-threatening conditions and their families, and (2) changed students' opinions about pediatric end-of-life care curriculum. Evaluation: A total of 23 first-year medical students attended a two-hour panel consisting of four parents who had a child pass away from a life threatening condition. The panel was part of a weeklong, peer-designed elective focused on exposing students to various aspects of pediatrics. It consisted of a question-and-answer discussion facilitated by a pediatric oncologist, with a focus on the parents' positive and negative experiences with different aspects of health care throughout their child's illness. Pre-panel and post-panel surveys were administered, asking students to report agreement with various statements using a 10- point Likert scale.
Rolfes M; Sunde K; Jones A; Starr S
Pediatrics
2018
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Defining the Boundaries of Palliative Care in Pediatric Oncology
child; human; palliative therapy; controlled study; female; major clinical study; male; article; childhood cancer; terminal care; quality of life; interview; comfort; cancer patient; content analysis; skill; mental health; nurse practitioner; genetic transcription; pediatric oncologist; standardization
Context: Although palliative care (PC) continues to be integrated into pediatric oncological care, only a minority of patients with cancer receive a formal PC consult.
Cuviello A; Raisanen J C; Donohue P K; Wiener L; Boss R D
Journal of Pain and Symptom Management
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1016/j.jpainsymman.2019.11.022" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2019.11.022</a>
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
newborn; social support; child; human; adult; female; major clinical study; male; retrospective study; article; priority journal; aged; Bereavement; adolescent; terminal care; quality of life; emotion; Parent; psychologist; social worker; content analysis; interpersonal communication; quantitative analysis; time of death; infant; caregiver; pediatric patient; nurse; support group; thematic analysis; psycho-oncology; open ended questionnaire; childhood cancer/dm [Disease Management]; pediatric oncologist; health care need; social media; worker
Background: Most parents vividly recall the weeks, days, and moments preceding their child's death for years to come. Dissatisfaction with communication about their child's condition and lack of guidance can contribute to stress prior to a child's death. Based on findings from a study assessing the degree of preparation bereaved parents received and our collective clinical experience, the authors provide suggestions on end-of-life communication and guidance for parents.
Wiener L; Tager J; Mack J; Battles H; Bedoya S Z; Gerhardt C A
Pediatric Blood and Cancer
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1002/pbc.27993" target="_blank" rel="noreferrer noopener">10.1002/pbc.27993</a>
Effects of COVID-19 on Pediatric Cancer Care: A Multicenter Study of 11 Middle Eastern Countries
childhood cancer; article; cancer chemotherapy; human; Middle East; cancer palliative therapy; health care access; low income country; middle income country; health care availability; social status; cancer center; coronavirus disease 2019; pandemic; telemedicine; cancer radiotherapy; cancer therapy; cancer surgery; pediatric oncologist; high income country; drug shortage; emergency surgery; granulocyte colony stimulating factor/pv [Special Situation for Pharmacovigilance]; prophylaxis; social distancing; therapy delay
During the COVID-19 pandemic, major challenges are facing pediatric cancer centers regarding access to cancer centers, continuity of the anti-cancer therapy, hospital admission, and infection protection precautions. Pediatric oncologists actively treating children with cancer from 29 cancer centers at 11 countries were asked to answer a survey from May 2020 to August 2020 either directly or through the internet. COVID-19 pandemic affected the access to pediatric cancer care in the form of difficulty in reaching the center in 22 (75.9%) centers and affection of patients'flow in 21 (72.4%) centers. Health care professionals (HCP) were infected with COVID-19 in 20 (69%) surveyed centers. Eighteen centers (62%) modified the treatment guidelines. Care of follow-up patients was provided in-hospital in 8(27.6%) centers, through telemedicine in 10 (34.5%) centers, and just delayed in 11 (38%) centers. Pediatric oncologists had different expectations about the future effects of COVID-19 on pediatric cancer care. Seventy-six percent of pediatric oncologists think the COVID-19 pandemic will increase the use of telemedicine. Fifty-five percent of pediatric oncologists think if the COVID-19 pandemic persists, we will need to change chemotherapy protocols to less myelosuppressive ones. Collaborative studies are required to prioritize pediatric cancer management during COVID-19 era.Copyright © 2023 Lippincott Williams and Wilkins. All rights reserved.
Elzembely MM; Al Rawas A; Al-Hebshi A; Alhadi A; Ibrahim AK; Zein AA; Ragab I; Alshamsi ET; Dammag E; Gachi F; Zain GH; Mohammad HS; Haddad H; Boudiaf H; Alharbi I; Sultan I; Salami KH; Bayoumy MS; Al-Mulla NA; Al Mashaikhi N; Almajali RM; Farah R; Al Daama SA; Ahmad S; Ragab SM; Fadel SH; Ahmed S; Al-Sweedan S; Abdelmabood S; Kaleem WK; Madney Y
Journal of Pediatric Hematology/Oncology
2023
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1097/MPH.0000000000002564" target="_blank" rel="noreferrer noopener">10.1097/MPH.0000000000002564</a>