Psychometric properties of the Turkish version of the Stress Scale for Nurses Providing End-of-Life Care for Children
child; Terminal Care; terminal care; article; controlled study; human; Psychometrics; content validity; construct validity; reliability; nurse; wellbeing; intervention study; checklist; pediatric nurse; Turkey (republic); physiological stress; confirmatory factor analysis; Cronbach alpha coefficient; internal consistency
OBJECTIVES: This study was carried out to evaluate the validity and reliability of the Stress Scale for Pediatric Nurses Performing End-of-Life Care for Children in Turkey. METHOD(S): This was a methodological study conducted with 222 pediatric nurses. Data were collected using the information form for pediatric nurses and the "stress scale for nurses performing end-of-life care for children." Content and construct validity, item analysis, confirmatory factor analysis and internal consistency were used to evaluate the data. The Global Pharmaceutical Regulatory Affairs Summit checklist was followed in this study. RESULT(S): The content validity index of the scale was 0.93. Item-total score correlation values ranged from 0.594 to 0.885. The 5-factor structure of the scale was confirmed as a result of confirmatory factor analysis. Factor loads were greater than 0.30, and fit indices were greater than 0.80. The Cronbach's alpha coefficient of the Turkish version of the scale was 0.97. SIGNIFICANCE OF RESULTS: The stress scale for nurses performing end-of-life care for children is a valid and reliable measurement tool for the Turkish sample. This scale facilitates the assessment of the stress levels of pediatric nurses who provide end-of-life care to children. Also, this scale can be used in interventional studies to improve the well-being of pediatric nurses.
Ayran G; Cevik Ozdemir HN
Palliative and Supportive Care
2023
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1017/S147895152200181X" target="_blank" rel="noreferrer noopener">10.1017/S147895152200181X</a>
Investigation of the impact of paediatric hospices on the quality of care of paediatric nurses
child; adult; female; human; male; Hospices; young adult; hospice; nurse; questionnaire; hospice care; pediatric nursing; pediatric nurse
BACKGROUND: The establishment of paediatric hospices improves the quality of care of paediatric nurses. AIM: To examine the effect of establishing paediatric hospices on the quality of care of paediatric nurses. <br/>METHOD(S): Data was collected between 22 October 2022 and 25 February 2023. An online survey method was used to collect sociodemographic data and paediatric hospice data for paediatric nurses and a scale was used to determine the opinions of nurses working in the field of paediatrics. A total of 300 paediatric nurses who voluntarily participated in the collection of the research data were selected with the convenience sampling method, with written consent. SPSS 26.0 data analysis programme was used in the statistical analysis of the data obtained in the study, and Independent Sample t-test and ANOVA analysis were used in the analysis of the data. FINDINGS: Of the participating paediatric nurses, 60.9% were women, 39.1% were men, 41.1% were married, 65.9% were between the ages of 22-33, and 71.6% worked at a paediatric hospice. There was no significant difference in paediatric hospice scale scores according to sociodemographic variables such as gender, age, marital status, education level and the health institution worked by paediatric nurses (p>.05). There was a significant difference in paediatric hospice scale scores according to hospice information. It was determined that the establishment of paediatric hospices had an effect on the quality of care (p<.01). <br/>CONCLUSION(S): Paediatric nurses felt that the establishment of paediatric hospices would improve the quality of care of children at the end of life. It is recommended that applications and studies on the establishment and structuring of paediatric hospices should be carried out by expanding the samples, not only in the field of paediatric nursing, but also in all nursing fields.
Hayli CM; Kosem DD; Bor NA
International Journal of Palliative Nursing
2024
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.12968/ijpn.2024.30.1.20" target="_blank" rel="noreferrer noopener">10.12968/ijpn.2024.30.1.20</a>
The qualitative study on the experience and perception of healthcare professionals in pediatric palliative care
human; child; male; palliative therapy; diagnosis; death; hospice; home care; major clinical study; conference abstract; Ireland; quality of life; awareness; interview; perception; qualitative research; grounded theory; pediatric nursing; constant comparative method; pediatric nurse
Introduction: In Italy there are approximately 12000 children affected by life-limiting illnesses, which require palliative care services. The national reality, however, confirms the lack of a proper palliative care services network to ensure relief continuity. Therefore, there is an increase for need to find and develop effective methodologies and services that grant adequate assistance and continuous care to children affected by terminal and incurable diseases. Sensitizing society and empowering the health care environment about this theme could be the first step to improve the life of children and families who are subject to this situation. Research aim: The aim of the study is to analyze healthcare professionals' experiences involved in pediatric palliative care to identify their difficulties during the assistance. Study design and methods: The study started from the review of national and international literature. The chosen methodology is supported by the production of open questions interviews from the article "Professional Carers' Experiences of Providing a Pediatric Palliative Care Service in Ireland," submitted to palliative healthcare professionals of home- services. The results of the interviews are analyzed by the constant comparative method developed in Glaser and Strauss's Grounded Theory methodology. Results and interpretation: Interviews demonstrate that healthcare professionals faced several difficulties in relationships with children and their families. These include parental acceptance of the terminal diagnosis of the child's illness, the choice of the place of care or death, the involvement and the awareness of the young patient in the disease or the feeling of vulnerability of both families and operators. The communication and mediation between the team, the child and his family are essential to the care process and its problems. The awareness of the peculiarity of the service and the will of the operators to continuously improve the service are necessary elements for growth. Conclusion: The results of the study have shown that there is the need to improve in technical and emotional support and in the constant training of operators to make as "normal" as possible the remaining time available to the child and his family. Keywords: Home care, palliative care, pediatric nursing care, hospice, pediatric nurses, quality of life, relationship with assisted persons.
Salvaggio E
Palliative Medicine
2018
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1177/0269216318769196" target="_blank" rel="noreferrer noopener">10.1177/0269216318769196</a>
Dying child and nurses' mourning
Mourning; Nurse; Child; Death; Nurse; Nurse Care; Death; Child; Anger; Care; Child; Conference Abstract; Curriculum; Demography; Dying; Education; Guilt; Hospitalized Child; Human; Pediatric Hospital; Pediatric Nurse; Questionnaire; Sadness; Theoretical Study
Introduction: One of the most complex and emotional aspects of nursing is the interaction between the nurse and the dying child. The attitudes of nurses towards death, affect the quality of care. Objective(s): To investigate pediatric nurses' attitudes towards death. Method(s): Methodology: 170 nurses, working in pediatric hospital departments completed a questionnaire which included sociodemographic characteristics and information related to their previous training and clinical experience regarding death issues in general and dying children's care in particular. Result(s): 68.6% reported that the death of a child affects them very much, while 44.7% of the participants didn't feel well prepared to manage death issues. Pediatric nurses were greatly affected by children's death, expressing mainly feelings of sadness (44%), compassion (22%), guilt (22%) and anger (22%). 73% of the sample wished the hospitalized child, died when they were not present. 53.5% had been trained regarding the care of dying patients and the management of death and mourning as part of their curriculum and 21.2% had attended a relative seminar / lecture. The importance of proper and adequate education becomes particularly apparent considering that the majority of our sample either did not feel sufficiently prepared in order to deal with death and mourning, even though more than 70% of our participants had been relatively educated. Conclusion(s): The incorporation of the notions of death and care at end of life in the theoretical and practical fields of nursing will improve the quality of services offered at the end of life for patients and their families.
Zartaloudi A; Lekas C; Koutelekos I; Evangelou E; Kyritsi E
European Psychiatry
2021
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1192/j.eurpsy.2021.1075" target="_blank" rel="noreferrer noopener">10.1192/j.eurpsy.2021.1075</a>