1
40
2
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Special Edition #2 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Special Edition #2
URL Address
<a href="http://doi.org/10.1177/0825859719885947" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0825859719885947</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Caregiver Decision-Making for Terminally Ill Children: A Qualitative Study
Publisher
An entity responsible for making the resource available
Journal of Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
decision-making; end of life; goals of care; parental coping; pediatrics; terminally ill children
Creator
An entity primarily responsible for making the resource
Pinto TE; Doolittle B
Description
An account of the resource
INTRODUCTION: Many children are born with life-limiting illnesses. Medical decision-making for these children by caregivers is complex and causes significant psychosocial distress, which can be partially alleviated by effective communication with medical providers. In order for providers to support caregivers, this study explores how caregivers make decisions regarding the medical care of their terminally ill children. METHODS: Semistructured interviews were conducted among caregivers of terminally ill children. Participation was voluntary and confidential. The institutional review board approved the protocol. Transcripts were read and coded by 2 authors using inductive, concurrent analysis to reach thematic saturation and generate common themes. RESULTS: Nine interviews were completed, discussing the care of 10 children. Caregivers described decision-making as impacted by their relationships with medical providers of 2 distinct types-trusting and nontrusting. Trusting relationships were notable for a longitudinal relationship with medical staff who empowered caregivers and treated the patient primarily as a child. Nontrusting relationships were noted when the medical team objectified their child as a "patient" and appeared to withhold information. Also, nontrusting relationships occurred when caregivers felt frustration with needing to educate health-care providers about their child's illness. CONCLUSION: Decision-making by caregivers of terminally ill children is complex, and supporting families in this process is a critical role of all medical providers. A trusting relationship with medical team members was identified as an effective tool for well-supported decision-making, which can potentially alleviate the suffering of the child and distress of the caregivers during this emotionally charged time.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0825859719885947" target="_blank" rel="noreferrer noopener">10.1177/0825859719885947</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
2022 Special Edition 2 - Parent Perspectives
Decision-making
Doolittle B
End Of Life
Goals Of Care
Journal Of Palliative Care
parental coping
Pediatrics
Pinto TE
Terminally Ill Children
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2020 Developing World List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Developing World 2020 List
URL Address
<a href="http://doi.org/10.1002/hsr2.185" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/hsr2.185</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Parental coping with childhood cancer and its relationship with self-construal: A survey in southeast Iran
Publisher
An entity responsible for making the resource available
Health Science Reports
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
pediatrics; cancer; Iran; parental coping
Creator
An entity primarily responsible for making the resource
Ghorbani F; Iranmanesh S; Razban F; Dehghan M
Description
An account of the resource
Background: Childhood cancer is a major challenge for parapets. Parents are one of the main sources of emotional support for their child, but their ability to provide proper care during their child's illness and treatment depends entirely on the way they manage to cope with diagnosis and its outcomes. Parents' coping pattern seems to be affected by their perception of themselves or their surroundings. Aim(s): To investigate parents' coping strategies with childhood cancer and its relation with self-construal. Method(s): A total of 127 eligible parents participated in this descriptive correlational study. Result(s): Medical, social support, and family strategies were respectively helpful for parents. The interdependent self-construal score was higher than the independent self-construal score. A significant relationship was found between interdependent self-construal and social support (P =.01). Discussion(s): It seems that individualists and collectivists' cultural context influence the usefulness of coping strategies. These differences should be considered in training of coping strategies. Copyright © 2020 The Authors. Health Science Reports published by Wiley Periodicals LLC.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/hsr2.185" target="_blank" rel="noreferrer noopener">10.1002/hsr2.185</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Cancer
Dehghan M
Developing World 2020 List
Ghorbani F
Health Science Reports
Iran
Iranmanesh S
parental coping
Pediatrics
Razban F