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Text
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URL Address
<a href="http://doi.org/10.7748/ncyp.26.6.27.e445" target="_blank" rel="noreferrer">http://doi.org/10.7748/ncyp.26.6.27.e445</a>
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Title
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Innovative approach to providing 24/7 palliative care for children
Publisher
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Nursing Children And Young People
Date
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2014
Subject
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end-of-life care; 24/7; Children’s hospice; paediatric symptom management
Creator
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Maynard L; Lynn D
Description
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This study outlines an innovative, English hospice-based service that provides 24/7 care for children with life-limiting conditions and their families. Operational objectives were: symptom management; open access to families and professionals; choice in place of care and of death; and collaboration to develop shared pathways and management plans. Service standards were audited through questionnaires completed by professionals and families. Findings demonstrated that the nursing team filled a critical gap and met its pre-set standards. Keys to success were: having the right level and mix of specialist and advanced skills; funded on-call arrangements; anticipatory planning; symptom management plans; and clinical supervision. Further recommendations were to develop a multi-agency workforce strategy, and to increase capacity in the children's sector to undertake academic research measuring the impacts of interventions.
2014-07
Identifier
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<a href="http://doi.org/10.7748/ncyp.26.6.27.e445" target="_blank" rel="noreferrer">10.7748/ncyp.26.6.27.e445</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2014
24/7
Backlog
Children’s hospice
End-of-life Care
Journal Article
Lynn D
Maynard L
Nursing Children and Young People
paediatric symptom management