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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2018 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/10.1111/ecc.12680" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1111/ecc.12680</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Towards culturally competent paediatric oncology care. A qualitative study from the perspective of care providers
Publisher
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European journal of cancer care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Oncology Nursing; Netherlands; Neoplasms/th [Therapy]; Communication Barriers; Humans; Qualitative Research; Pediatrics; Palliative Care; Attitude of Health Personnel; Disclosure; Cultural Competency; Oncologists; Culturally Competent Care; Emigrants and Immigrants; Nurses Pediatric; Morocco/eh [Ethnology]; Turkey/eh [Ethnology]
Creator
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Suurmond J; Lieveld A; van de Wetering M; Schouten-van Meeteren AYN
Description
An account of the resource
In order to gain more insight on the influence of ethnic diversity in paediatric cancer care, the perspectives of care providers were explored. Semi-structured interviews were conducted among 12 paediatric oncologists and 13 nurses of two different paediatric oncology wards and were analysed using a framework method. We found that care providers described the contact with Turkish and Moroccan parents as more difficult. They offered two reasons for this: (1) language barriers between care provider and parents hindered the exchange of information; (2) cultural barriers between care provider and parents about sharing the diagnosis and palliative perspective hindered communication. Care providers reported different solutions to deal with these barriers, such as using an interpreter and improving their cultural knowledge about their patients. They, however, were not using interpreters sufficiently and were unaware of the importance of eliciting parents' perspectives. Communication techniques to overcome dilemmas between parents and care providers were not used and care providers were unaware of stereotypes and prejudice. Care providers should be offered insight in cultural barriers they are unaware of. Training in cultural competence might be a possibility to overcome manifest barriers.Copyright � 2017 John Wiley & Sons Ltd.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/%2010.1111/ecc.12680" target="_blank" rel="noreferrer noopener">10.1111/ecc.12680</a>
2017
Attitude Of Health Personnel
Communication Barriers
Cultural Competency
Culturally Competent Care
Disclosure
Emigrants and Immigrants
European Journal Of Cancer Care
Humans
Lieveld A
Morocco/eh [Ethnology]
Neoplasms/th [therapy]
Netherlands
Nurses Pediatric
oncologists
Oncology 2018 List
Oncology Nursing
Palliative Care
Pediatrics
Qualitative Research
Schouten-van Meeteren AYN
Suurmond J
Turkey/eh [Ethnology]
van de Wetering M
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2018 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/10.1111/ecc.12651" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1111/ecc.12651</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Missing life stories. The narratives of palliative patients, parents and physicians in paediatric oncology
Publisher
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European Journal of Cancer Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Neoplasms/psychology; Medical Oncology; Middle Aged; Male; Disease Progression; dying; Child; Humans; Adult; Qualitative Research; Pediatrics; Adolescent; Parents; palliative care; Female; Attitude to Death; Attitude to Health; Narration; Switzerland; narrative; Leukemia/psychology; paediatric oncology; stories; lived experience; Oncologists; Bone Neoplasms/psychology; Sarcoma/psychology; Soft Tissue Neoplasms/psychology
Creator
An entity primarily responsible for making the resource
De CE; Elger BS; Wangmo T
Description
An account of the resource
Illness narratives have become very popular. The stories of children, however, are rarely ever studied. This paper aims to provide insight into how children, parents and physicians make sense of progressive childhood cancer. It also explores how this meaning-giving process interacts with cultural dominant stories on cancer and dying. The presented data come from 16 open-ended face-to-face interviews with palliative paediatric patients, their parents and physicians. The interviews were carried out in eight paediatric oncology centres in Switzerland. Data analysis followed Arthur Frank's dialogical narrative analysis. Quest narratives were relatively rare compared to both chaos and restitution stories. All participants welcomed chaos stories as a liminal haven between quest and restitution. The possibility that the child could die was either ignored or briefly contemplated, but then immediately pushed away. Except for one patient, children never directly addressed the topic of death. The way in which death was presented raises important questions about how the social discourse on dying is framed in terms of choice, autonomy and individuality. This discourse not only determines the way in which children and adults relate to the minor's death, it also constitutes an obstacle to children's participation in decision-making.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/%2010.1111/ecc.12651" target="_blank" rel="noreferrer noopener">10.1111/ecc.12651</a>
2017
Adolescent
Adult
Attitude To Death
Attitude To Health
Bone Neoplasms/psychology
Child
De CE
Disease Progression
Dying
Elger BS
European Journal Of Cancer Care
Female
Humans
Leukemia/psychology
lived experience
Male
Medical Oncology
Middle Aged
Narration
Narrative
Neoplasms/psychology
oncologists
Oncology 2018 List
Paediatric oncology
Palliative Care
Parents
Pediatrics
Qualitative Research
Sarcoma/psychology
Soft Tissue Neoplasms/psychology
Stories
Switzerland
Wangmo T
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pbc.25228" target="_blank" rel="noreferrer">http://doi.org/10.1002/pbc.25228</a>
<a href="http://onlinelibrary.wiley.com/doi/10.1002/pbc.25228/abstract" target="_blank" rel="noreferrer">http://onlinelibrary.wiley.com/doi/10.1002/pbc.25228/abstract</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Grief reactions and impact of patient death on pediatric oncologists
Publisher
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Pediatric Blood & Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Pediatric; Grief; emotional well-being; oncologists; patient death
Creator
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Granek L; Bartels U; Scheinemann K; Labrecque M; Barrera M
Description
An account of the resource
Background To examine pediatric oncologists' grief reactions to patient death, and the impact patient death has on their personal and professional lives. Procedure The grounded theory method was used. Data was collected between March 2012 and July 2012 at two academic centres in Canada. Twenty-one out of 34 eligible pediatric oncologists at different stages of their career were recruited and interviewed about their experiences with patient death. Inclusion criteria were: being able to speak English and having had a patient die in their care. The participants formed three groups of oncologists at different stages of career including: fellows, junior oncologists, and senior oncologists who varied in sub-specialties, gender, and ethnicities. Results Pediatric oncologists reported a range of reactions to patient death including sadness, crying, sleep loss, exhaustion, feeling physically ill, and a sense of personal loss. They also reported self-questioning, guilt, feelings of failure and helplessness. The impact of these deaths had personal consequences that ranged from irritability at home, feeling disconnected from family members and friends, and becoming more desensitized towards death, to gaining a greater and more appreciative perspective on life. Professional impacts included concern about turnover or burnout at work and improving holistic care as a result of patient deaths. Conclusions Grief over patient death and the emotional labour involved in these losses are a robust part of the pediatric oncology workplace and have major impacts on pediatric oncologist's personal and professional lives. Interventions that focus on how to help pediatric oncologists deal with these reactions are needed. Pediatr Blood Cancer © 2014 Wiley Periodicals, Inc.
2014-09
Identifier
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<a href="http://doi.org/10.1002/pbc.25228" target="_blank" rel="noreferrer">10.1002/pbc.25228</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Backlog
Barrera M
Bartels U
emotional well-being
Granek L
Grief
Journal Article
Labrecque M
oncologists
patient death
Pediatric
Pediatric Blood & Cancer
Scheinemann K