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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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March 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2022 List
URL Address
<a href="http://doi.org/10.1186/s12911-021-01735-z" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12911-021-01735-z</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Digital decision aid for prenatal counseling in imminent extreme premature labor: development and pilot testing
Publisher
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BMC medical informatics and decision making
Date
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2022
Subject
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Digital health; IPDAS; Neonatology; Obstetrics; Patient decision aid; Prematurity; Shared decision making
Creator
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van den Heuvel JFM; Hogeveen M; Lutke Holzik M; van Heijst AFJ; Bekker MN; Geurtzen R
Description
An account of the resource
BACKGROUND: In case of extreme premature delivery at 24 weeks of gestation, both early intensive care and palliative comfort care for the neonate are considered treatment options. Prenatal counseling, preferably using shared decision making, is needed to agree on the treatment option in case labor progresses. This article described the development of a digital decision aid (DA) to support pregnant women, partners and clinicians in prenatal counseling for imminent extreme premature labor. METHOD(S): This DA is developed following the International Patient Decision Aid Standards. The Dutch treatment guideline and the Dutch recommendations for prenatal counseling in extreme prematurity were used as basis. Development of the first prototype was done by expert clinicians and patients, further improvements were done after alpha testing with involved clinicians, patients and other experts (n=12), and beta testing with non-involved clinicians and patients (n=15). RESULT(S): The final version includes information, probabilities and figures depending on users' preferences. Furthermore, it elicits patient values and provides guidance to aid parents and professionals in making a decision for either early intensive care or palliative comfort care in threatening extreme premature delivery. CONCLUSION(S): A decision aid was developed to support prenatal counseling regarding the decision on early intensive care versus palliative comfort care in case of extreme premature delivery at 24 weeks gestation. It was well accepted by parents and healthcare professionals. Our multimedia, digital DA is openly available online to support prenatal counseling and personalized, shared decision-making in imminent extreme premature labor. Copyright © 2022. The Author(s).
Identifier
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<a href="http://doi.org/10.1186/s12911-021-01735-z" target="_blank" rel="noreferrer noopener">10.1186/s12911-021-01735-z</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Bekker MN
BMC medical informatics and decision making
digital health
Geurtzen R
Hogeveen M
IPDAS
Lutke Holzik M
March 2022 List
Neonatology
obstetrics
Patient decision aid
Prematurity
shared decision making
van den Heuvel JFM
van Heijst AFJ
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2021 List
URL Address
<a href="http://doi.org/10.1080/17453054.2019.1691439" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/17453054.2019.1691439</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Stillbirth memento photography
Publisher
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Journal of Visual Communication in Medicine
Date
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2020
Subject
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Humans; Parents/psychology; Bereavement; stillbirth; Stillbirth/psychology; photography; obstetrics; Death studies; graphic design; health communications; Photography/methods/standards
Creator
An entity primarily responsible for making the resource
Tovey R; Turner S
Description
An account of the resource
Research into stillbirth memento photography shows the practice to be welcomed by the bereaved. The visual attributes and content of stillbirth memento photographs are yet to be rigorously analysed however, representing a significant gap in current understanding. This study seeks to address this. 51 professionally produced stillbirth memento photographs have been sampled, anonymised and analysed. Using a content analysis methodology, imagery was characterised by aesthetic and semantic properties. The results were then cross-referenced against existing stillbirth scholarship, data from an interview study with people who had experienced pregnancy loss, and against image theories. The content analysis identified four distinctive image tropes in the sample: images of mother, father and baby, with the baby being held and the parents touching; macro photography of the baby; portrait photographs of babies lying alone with little or no physical trauma evident; and images of a parent, usually the mother, cradling the baby. The analysis also identified specific attributes, present across the sample, that appeared significant and distinctive of stillbirth memento photography. These were: (1) stylistic attributes, (2) acknowledgement and validation, (3) identity construction, (4) ambiguity and (5) embodiment.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/17453054.2019.1691439" target="_blank" rel="noreferrer noopener">10.1080/17453054.2019.1691439</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Bereavement
Death studies
graphic design
health communications
Humans
January 2021 List
Journal of Visual Communication in Medicine
obstetrics
Parents/psychology
Photography
Photography/methods/standards
Stillbirth
Stillbirth/psychology
Tovey R
Turner S