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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2020 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2020 List
URL Address
<a href="http://doi.org/10.1080/07347332.2020.1762822" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/07347332.2020.1762822</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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You are at rock bottom: A qualitative systematic review of the needs of bereaved parents as they journey through the death of their child to cancer
Publisher
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Journal of Psychosocial Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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social support; pediatric cancer; parental experience; meaning making; emotional support; parent support; practical support
Creator
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Kenny M; Darcy-Bewick S; Martin A; Eustace-Cook J; Hilliard C; Clinton F; Storey L; Coyne I; Murray K; Duffy K; Fortune G; Smith O; Higgins A; Hynes G
Description
An account of the resource
Problem Identification: This systematic review will examine the social support needs of bereaved parents in the specific context of pediatric cancer by synthesizing the qualitative evidence. Social support encompasses emotional, practical, informational, and meaning-making support needs.Literature Search: The Joanna Briggs Institute procedures for conducting qualitative systematic reviews guided every stage of this review. Four databases (PsychInfo, CINAHL, Pubmed, and ASSIA) were systematically searched, in addition to the gray literature and scoping review. Through a five-step critical appraisal process 11 out of 668 potential articles were identified as meeting the inclusion criteria.Data Evaluation/Synthesis: Relevant findings were synthesized with a thematic-synthesis approach. Findings, which follow the journey of bereaved parents integrated under the core-category "Needs." This encompasses of four higher-level categories: Last days: Parent needs when caring for their dying childRest in peace: Parent needs during the child's deathFeeling abandoned: Parent needs for contact after the child's deathSearching for Meaning: Parents needs when making sense of lossConclusion: Informational support needs is largely unexplored in academic literature. Staff in the treating-hospital are central in offering bereavement-support to parents, who may otherwise feel that they have lost their second home (hospital) and second family (staff).
Identifier
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<a href="http://doi.org/10.1080/07347332.2020.1762822" target="_blank" rel="noreferrer noopener">10.1080/07347332.2020.1762822</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Clinton F
Coyne I
Darcy-Bewick S
Duffy K
emotional support
Eustace-Cook J
Fortune G
Higgins A
Hilliard C
Hynes G
Journal Of Psychosocial Oncology
Kenny M
Martin A
meaning making
Murray K
Oncology 2020 List
parent support
parental experience
Pediatric Cancer
practical support
Smith O
Social Support
Storey L
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
December 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2019 List
URL Address
<a href="http://doi.org/10.1177/1049909119879413" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909119879413</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Experience of Pediatric Palliative Caregiving: A Qualitative Analysis From the Photographs of Meaning Program
Publisher
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The American journal of hospice & palliative care
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
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article; care behavior; caregiver; child; curriculum; female; human; human experiment; male; meaning making; narrative; palliative therapy; pediatrics; photography; qualitative analysis; qualitative research; social media
Creator
An entity primarily responsible for making the resource
Levy K; Grant PC; Tenzek KE; Depner RM; Pailler ME; Beaupin LK
Description
An account of the resource
The Photographs of Meaning Program for pediatric palliative caregivers (POM-PPCG) is an innovative, meaning-based intervention utilizing photovoice and social media components. In 2017, 9 pediatric palliative caregivers participated in this intervention. During the social media portion of the POM-PPCG, participants were presented with weekly themes based on a meaning-making curriculum. In response, they took photographs, applied either audio or typed narratives, and shared them via social media. Ninety-five photographs with narratives were produced during the intervention. Through thematic qualitative analysis with consensual qualitative research components, 5 themes were identified: Love, Challenges, Loss, Coping, and The New Normal. This study adds to existing literature by shedding light on the experiences of caregivers of children with palliative care needs. Findings from this research contribute not only to the innovative use of qualitative methods but also to the clinical knowledge and practice regarding the pediatric palliative caregiver experience.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1049909119879413" target="_blank" rel="noreferrer noopener">10.1177/1049909119879413</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Article
Beaupin LK
care behavior
Caregiver
Child
Curriculum
December 2019 List
Depner RM
Female
Grant PC
Human
Human Experiment
Levy K
Male
meaning making
Narrative
Pailler ME
Palliative Therapy
Pediatrics
Photography
Qualitative Analysis
Qualitative Research
social media
Tenzek KE
The American Journal of Hospice & Palliative Care