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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2019 Developing World List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Developing World 2019 List
URL Address
<a href="http://doi.org/10.6004/jnccn.2018.7174" target="_blank" rel="noreferrer noopener">http://doi.org/10.6004/jnccn.2018.7174</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Situational analysis and needs assessment regarding the availability and extent of pediatric palliative care services in the philippines
Publisher
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JNCCN Journal of the National Comprehensive Cancer Network
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
awareness; behavior change; care behavior; caregiver; child; childhood cancer; conference abstract; controlled study; counseling; financial management; health care delivery; health care personnel; health care planning; human; interview; long term survival; needs assessment; nutrition; palliative therapy; Philippines; psychosocial care; travel
Creator
An entity primarily responsible for making the resource
Cajucom L A N; Ramos R C; Manago R K B; Fuentes R K T; Garcia P G; Ridulme Q R; Oruga M D P; Vinas M J G
Description
An account of the resource
Background: Around 200,000 pediatric clients are diagnosed with cancer each year globally. Majority (84%) of cancer cases are found in developing countries with 20% average survival rate (Ferlay et al, 2012). Two-thirds of pediatric oncology clients in the Philippines are diagnosed at advanced stages (Lecciones, 2015). Abandonment of treatment is high at 80%. Only about 10%- 20% of clients attain long-term survival despite availability of multidisciplinary management. These outcomes reflect the gap in service delivery for pediatric oncology clients (Ferlay et al, 2012). Therefore, to improve accessibility to healthcare, it is necessary to determine the perceived palliative care needs of clients, their caregivers, and healthcare providers.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.6004/jnccn.2018.7174" target="_blank" rel="noreferrer noopener">10.6004/jnccn.2018.7174</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Awareness
behavior change
Cajucom L A N
care behavior
Caregiver
Child
Childhood Cancer
conference abstract
Controlled Study
Counseling
Developing World 2019 List
financial management
Fuentes R K T
Garcia P G
Health Care Delivery
Health Care Personnel
health care planning
Human
Interview
JNCCN Journal of the National Comprehensive Cancer Network
long term survival
Manago R K B
Needs Assessment
Nutrition
Oruga M D P
Palliative Therapy
Philippines
psychosocial care
Ramos R C
Ridulme Q R
travel
Vinas M J G
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
May 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May List 2023
URL Address
<a href="http://doi.org/10.1136/archdischild-2022-325157" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1136/archdischild-2022-325157</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Data-driven approach to understanding neonatal palliative care needs in England and Wales: a population-based study 2015-2020
Publisher
An entity responsible for making the resource available
Archives of Disease in Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
England; neonatology; palliative therapy; Wales; article; England; female; human; infant; Infant Newborn; long term survival; major clinical study; male; morbidity; newborn; newborn care; Palliative Care; perinatal care; Wales
Creator
An entity primarily responsible for making the resource
Harnden F; Lanoue J; Modi N; Uthaya SN; Battersby C
Description
An account of the resource
Abstract Objective To quantify admissions to neonatal units in England and Wales with potential need for palliative care. Design, setting and patients Diagnoses and clinical attributes indicating a high likelihood of requiring palliative care were mapped to categories within the British Association of Perinatal Medicine’s (BAPM) framework on palliative care. We extracted data from the National Neonatal Research Database on all babies born and admitted to neonatal units in England and Wales 2015–2020. Outcomes The number and proportion of babies meeting BAPM categories, their discharge outcomes and the characteristics of babies who died during neonatal care but did not fulfil any BAPM category. Results 12 123/574 954 (2.1%) babies met one or more BAPM category: 6239/12 123 (51%) conformed to BAPM category 4 (postnatal conditions with high risk of severe impairment), 3796 (31%) to category 2 (antenatal/postnatal diagnosis with high risk of significant morbidity or death), 1399 (12%) to category 3 (born at margin of viability) and 288 (2%) to category 1 (antenatal/postnatal diagnosis not compatible with long-term survival); 401 babies (3%) met criteria for multiple categories. 6814/12 123 (56%) were discharged home, 2385 (20%) were discharged to other settings and 2914 (24%) died before neonatal discharge. 3000/5914 (51%) babies who died during neonatal care did not conform to any BAPM category. Of these, 2630/3000 (88%) were born preterm. Conclusions At least 2% of babies admitted to neonatal units had palliative care needs according to existing BAPM categories; most survived to discharge. Of deaths, 51% were not captured by the BAPM categories; most were extremely preterm.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/archdischild-2022-325157" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2022-325157</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Archives of Disease in Childhood
Article
Battersby C
England
Female
Harnden F
Human
Infant
Infant Newborn
Lanoue J
long term survival
Major Clinical Study
Male
May List 2023
Modi N
Morbidity
Neonatology
Newborn
Newborn Care
Palliative Care
Palliative Therapy
Perinatal Care
Uthaya SN
Wales
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2023 Special Edition 5 - Low Resource Setting List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2023 SE5 - Low Resource Setting
URL Address
<a href="http://doi.org/10.3390/children8040275" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3390/children8040275</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Use of paclitaxel to successfully treat children, adolescents, and young adults with Kaposi sarcoma in southwestern Tanzania
Publisher
An entity responsible for making the resource available
Children
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
child; Adolescent; adult; article; cohort analysis; female; human; major clinical study; male; retrospective study; quality of life; treatment duration; young adult; follow up; cancer palliative therapy; cancer recurrence; cancer survival; adolescent; treatment outcome; trend study; virus load; multiple cycle treatment; cancer combination chemotherapy; doxorubicin/cb [Drug Combination]; doxorubicin/dt [Drug Therapy]; vincristine/cb [Drug Combination]; vincristine/dt [Drug Therapy]; treatment planning; long term survival; Tanzania; Kaposi sarcoma/dt [Drug Therapy]; paclitaxel/dt [Drug Therapy]; antiretroviral therapy; antiretrovirus agent/dt [Drug Therapy]; bleomycin/cb [Drug Combination]; bleomycin/dt [Drug Therapy]; bleomycin/iv [Intravenous Drug Administration]; dexamethasone/dt [Drug Therapy]; drug contraindication; Human immunodeficiency virus infection/dt [Drug Therapy]; lack of drug effect; vincristine/iv [Intravenous Drug Administration]; Paclitaxel
Creator
An entity primarily responsible for making the resource
Adinani H; Campbell L; El-Mallawany NK; Slone J; Mehta P; Bacha J
Description
An account of the resource
Treating Kaposi sarcoma (KS) in children, adolescents, and young adults (AYA) remains a challenge in low-and middle-income countries (LMIC) where chemotherapy options and availability are limited. We describe a retrospective cohort review of pediatric patients with KS treated with paclitaxel in Mbeya, Tanzania, between 1 March 2011 and 31 December 2019. Paclitaxel was given to patients who had KS relapse, a contraindication to bleomycin, vincristine, and doxorubicin (ABV), special circumstances in which a clinician determined that paclitaxel was preferable to ABV, or experienced treatment failure, defined as persistent KS symptoms at the completion of treatment. All patients also received multidisciplinary palliative care. Seventeen patients aged 5.1-21.3 years received paclitaxel, of whom 47.1% (8/17) had treatment failure, 29.4% (5/17) received paclitaxel as initial treatment, and 23.5% (4/17) had relapsed. All HIV positive patients (16/17) were given anti-retroviral therapy (ART) and 87.5% (14/16) achieved viral load <1000 cp/mL. At censure, 82.3% (14/17) of patients were alive-71.4% (10/14) achieved complete clinical remission and 28.6% (4/14) achieved a partial response. The median follow up was 37.3 months (range 8.0-83.5, IQR 19.7-41.6), and no patients were lost to follow up. In this cohort, high rates of long-term survival and favorable outcomes were possible with paclitaxel treatment.Copyright © 2021 by the authors. Licensee MDPI, Basel, Switzerland.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3390/children8040275" target="_blank" rel="noreferrer noopener">10.3390/children8040275</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
2023 SE5 - Low Resource Setting
Adinani H
Adolescent
Adult
antiretroviral therapy
antiretrovirus agent/dt [Drug Therapy]
Article
Bacha J
bleomycin/cb [Drug Combination]
bleomycin/dt [Drug Therapy]
bleomycin/iv [Intravenous Drug Administration]
Campbell L
cancer combination chemotherapy
Cancer Palliative Therapy
Cancer Recurrence
Cancer Survival
Child
Children
Cohort Analysis
dexamethasone/dt [Drug Therapy]
doxorubicin/cb [Drug Combination]
doxorubicin/dt [Drug Therapy]
drug contraindication
El-Mallawany NK
Female
Follow Up
Human
Human immunodeficiency virus infection/dt [Drug Therapy]
Kaposi sarcoma/dt [Drug Therapy]
lack of drug effect
long term survival
Major Clinical Study
Male
Mehta P
multiple cycle treatment
Paclitaxel
paclitaxel/dt [Drug Therapy]
Quality Of Life
Retrospective Study
Slone J
Tanzania
treatment duration
Treatment Outcome
Treatment Planning
trend study
vincristine/cb [Drug Combination]
vincristine/dt [Drug Therapy]
vincristine/iv [Intravenous Drug Administration]
virus load
Young Adult