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Text
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URL Address
<a href="http://doi.org/10.1111/j.1365-2524.2005.00571.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2524.2005.00571.x</a>
Dublin Core
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Title
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Families' experiences of caring for technology-dependent children: a temporal perspective
Publisher
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Health & Social Care in the Community
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Children; PedPal Lit; Adolescent Caregivers/psychology ChildDisabled Children EnglandEquipment and SuppliesFamily Home Nursing Humans Male Research Support; and who provided technical care during the day and/or at night at home and in other settings. While the children's health and quality of life benefited from the technology; better coordinat(TRUNCATED); depending on the type and number of devices used; dialysis machines and ventilators. Using mainly qualitative methods; employment and social life in general. The need to use and oversee the use of some medical technologies at night also meant that many parents suffered regular disruption to their sleep. In conclusion; families' experiences of caring for a technology-dependent child were examined from a temporal perspective. This involved exploring the multiple 'technological'; limiting their participation in school; Non-U.S. Gov't%X In the present study; parents and siblings were interviewed to establish what the care routines involved and how these impacted on family members. The authors found that the rhythms and routines of care varied across the sample; suction machines; the individual child's needs; the t ime demands of the care routines and lack of compatibility with other social and institutional timeframes had some negative implications for the children and their families
Creator
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Heaton J; Noyes J; Sloper P; Shah R
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2524.2005.00571.x" target="_blank" rel="noreferrer">10.1111/j.1365-2524.2005.00571.x</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Adolescent Caregivers/psychology ChildDisabled Children EnglandEquipment and SuppliesFamily Home Nursing Humans Male Research Support
and who provided technical care during the day and/or at night at home and in other settings. While the children's health and quality of life benefited from the technology
Backlog
better coordinat(TRUNCATED)
Children
depending on the type and number of devices used
dialysis machines and ventilators. Using mainly qualitative methods
employment and social life in general. The need to use and oversee the use of some medical technologies at night also meant that many parents suffered regular disruption to their sleep. In conclusion
families' experiences of caring for a technology-dependent child were examined from a temporal perspective. This involved exploring the multiple 'technological'
Health & Social Care in the Community
Heaton J
Journal Article
limiting their participation in school
Non-U.S. Gov't%X In the present study
Noyes J
parents and siblings were interviewed to establish what the care routines involved and how these impacted on family members. The authors found that the rhythms and routines of care varied across the sample
PedPal Lit
Shah R
Sloper P
suction machines
the individual child's needs
the t ime demands of the care routines and lack of compatibility with other social and institutional timeframes had some negative implications for the children and their families