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Dublin Core
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Title
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January 2021 List
Text
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Citation List Month
January 2021 List
URL Address
<a href="http://doi.org/10.3389/fped.2020.574556" target="_blank" rel="noreferrer noopener">http://doi.org/10.3389/fped.2020.574556</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Decisions Parents Make When Faced With Potentially Life-Limiting Fetal Diagnoses and the Importance of Perinatal Palliative Care
Publisher
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Frontiers in Pediatrics
Date
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2020
Subject
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decision-making; decisions; pregnancy; life-limiting fetal diagnoses; perinatal palliative care (PPC)
Creator
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Marc-Aurele KL
Description
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When parents face a potentially life-limiting fetal diagnosis in pregnancy, they then have a series of decisions to make. These include confirmatory testing, termination, and additional choices if they choose to continue the pregnancy. A perinatal palliative team provides a safe, compassionate, and caring space for parents to process their emotions and discuss their values. In a shared decision-making model, the team explores how a family's faith, experiences, values, and perspectives shape the goals for care. For some families, terminating a pregnancy for any reason conflicts with their faith or values and pursuing life prolonging treatments in order to give their baby the best chances for survival is the most important. For others, having a postnatal confirmatory diagnosis of a life limiting or serious medical condition gives them the assurance they need to allow their child a natural death. Others want care to be comfort-focused in order to maximize the time they have to be together as a family. Through this journey, a perinatal palliative team can provide the support and encouragement for families to express their goals and wishes, as well as find meaning and hope.
Identifier
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<a href="http://doi.org/10.3389/fped.2020.574556" target="_blank" rel="noreferrer noopener">10.3389/fped.2020.574556</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Decision-making
Decisions
Frontiers in Pediatrics
January 2021 List
life-limiting fetal diagnoses
Marc-Aurele KL
perinatal palliative care (PPC)
Pregnancy