1
40
6
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Dublin Core
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Title
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October 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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October 2020 List
URL Address
<a href="http://doi.org/10.1177/0890334420926946" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0890334420926946</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The "lactation after infant death (AID) framework": a guide for online health information provision about lactation after stillbirth and infant death
Publisher
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Journal of Human Lactation
Date
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2020
Subject
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animals; Chordata; eukaryotes; health; Hominidae; Homo; infant mortality; infants; lactation; mammals; man; primates; stillbirths; vertebrates
Creator
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Carroll K; Noble-Carr D; Sweeney L; Waldby C
Description
An account of the resource
This article collated and critically reviewed international evidence-based lactation and bereavement information to devise a comprehensive framework on the diverse options for lactation management after stillbirth and infant death by outlining the development of the 25-point evidence-based Lactation AID Framework intended for use by health organizations that provide written online lactation health information to bereaved parents.
Identifier
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<a href="http://doi.org/10.1177/0890334420926946" target="_blank" rel="noreferrer noopener">10.1177/0890334420926946</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Animals
Carroll K
Chordata
Eukaryotes
Health
Hominidae
Homo
Infant Mortality
Infants
Journal Of Human Lactation
lactation
Mammals
Man
Noble-Carr D
October 2020 List
Primates
Stillbirths
Sweeney L
Vertebrates
Waldby C
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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January 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2022 List
URL Address
<a href="http://doi.org/10.1089/bfm.2021.0089" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/bfm.2021.0089</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Mapping Hospital-Based Lactation Care Provided to Bereaved Mothers: A Basis for Quality Improvement
Publisher
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Breastfeeding Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
infant death; stillbirth; bereavement; lactation; biopsychosocial approach; care pathways
Creator
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Noble-Carr D; Carroll K; Waldby C
Description
An account of the resource
Objective: The study aimed to identify and map the factors that shape the delivery of hospital-based lactation care for bereaved mothers to inform quality improvement initiatives targeting hospital-based lactation care. Methods: Focus groups and interviews were conducted at three large hospitals in Australia with 113 health professionals including obstetricians, neonatologists, midwives, neonatal nurses, lactation consultants, social workers or pastoral care workers, Human Milk Bank (HMB) staff, and perinatal bereavement nurses. Thematic and interactional data analysis identified the nature, scope, and pattern of bereavement lactation care. Results: A bereaved lactation care pathway was generated from health professionals' reports. Bereaved lactation care, if provided, was limited to brief encounters aimed at facilitating lactation suppression. The type of lactation care offered, and any exploration of the variable biopsychosocial significance of lactation after infant death, was conditional on (i) availability of health professionals with suitable awareness, knowledge, capacity, confidence, and comfort to discuss lactation; (ii) hospital culture and mode of suppression primarily practiced; (iii) mother's breast milk being visible to hospital staff; (iv) mother expressing interest in expanded lactation management options; (v) availability of, and eligibility to, donate to a HMB; and (vi) support beyond the hospital setting being facilitated. Conclusion: Mothers should be presented with the full array of lactation management options available after stillbirth or infant death. Inclusion of evidence-based, biopsychosocial and patient-centered approaches to lactation care is urgently required in health professionals' bereavement training and in the policies of hospitals and HMBs.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/bfm.2021.0089" target="_blank" rel="noreferrer noopener">10.1089/bfm.2021.0089</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Bereavement
biopsychosocial approach
Breastfeeding Medicine
care pathways
Carroll K
Infant Death
January 2022 List
lactation
Noble-Carr D
Stillbirth
Waldby C
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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April 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April List 2023
URL Address
<a href="https://www.proquest.com/openview/38170f14f1589d8cbe54d1a6a9df9395/1?pq-origsite=gscholar&cbl=33099" target="_blank" rel="noreferrer noopener">https://www.proquest.com/openview/38170f14f1589d8cbe54d1a6a9df9395/1?pq-origsite=gscholar&cbl=33099 http://doi.org/</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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It Was a Shared Duty': Bereaved Fathers' Perspectives, Experiences and Practices in Relation to their Partner's Lactation after Infant Death
Publisher
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Breastfeeding Review
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Male; Bereavement; Infant; Palliative Care; Intensive Care Units Neonatal; Interpersonal Relations; Australia; Purposive Sample; Qualitative Studies; Health Policy; Data Analysis Software; Exploratory Research; Human; Descriptive Statistics; Phenomenological Research; Life Experiences; Thematic Analysis; Perinatal Death; Psychosocial Factors; Semi-Structured Interview; Milk Human; Donor Milk; Infant Death; Lactates; Lactation; Lactic Acid; Open-Ended Questionnaires; Paternal Attitudes; Paternal Role
Creator
An entity primarily responsible for making the resource
Noble-Carr D; Carroll K; Copland S; Waldby C
Description
An account of the resource
This exploratory study targets a significant gap in the lactation and bereavement literature by exploring bereaved fathers' experiences, perspectives and practices in relation to their partner's lactation after stillbirth, neonatal or infant death. Semi-structured interviews were conducted with seven bereaved fathers in two Australian state/ territory jurisdictions. Purposive sampling ensured the partners of five of the fathers had been involved in bereaved breastmilk donation to a human milk bank. Thematic data analysis identified key themes that drew attention to the significant grief experienced by fathers and highlighted: (i) breastmilk and infant feeding holding significant meaning for some fathers especially within the neonatal intensive care or palliative care settings, (ii) the impact of diverse lactation management options on the awareness and involvement of fathers in their partner's lactation after infant death, (iii) fathers' provision of significant care and support for partners participating in bereaved breastmilk donation, (iv) bereaved breastmilk donation positively impacting some fathers' grief and meaning- making, and (v) bereaved families' requirement for enhanced lactation care, information and support. Results indicate the need for an enhanced focus on family-centred bereaved lactation care and acknowledgement of the positive role that bereaved breastmilk donation may have for both mothers and fathers following infant loss.
Identifier
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<a href="http://doi.org/" target="_blank" rel="noreferrer noopener"></a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
April List 2023
Australia
Bereavement
Breastfeeding Review
Carroll K
Copland S
Data Analysis Software
Descriptive Statistics
Donor Milk
Exploratory Research
Health Policy
Human
Infant
Infant Death
Intensive Care Units Neonatal
Interpersonal Relations
Lactates
lactation
Lactic Acid
Life Experiences
Male
Milk Human
Noble-Carr D
Open-Ended Questionnaires
Palliative Care
Paternal Attitudes
Paternal Role
Perinatal Death
Phenomenological Research
Psychosocial Factors
Purposive Sample
Qualitative Studies
Semi-Structured Interview
Thematic Analysis
Waldby C
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August List 2023
URL Address
<a href="http://doi.org/10.1093/bjsw/bcad025" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1093/bjsw/bcad025</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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‘Whose Milk Was It, Really? … It Was a Gift, a Savior, a Healer, and a Connector’: Reflections on a Collaborative Autoethnography of Breastmilk Donation after Stillbirth
Publisher
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British Journal of Social Work
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Collaboration; Bereavement; Grief; Interpersonal Relations; Life Experiences; Infant Death; Perinatal Death; Lactation; Milk Banks; Milk, Human; Donor Milk; Paternal Attitudes; Ethnographic Research; Living Donors; Milk; Milk Ejection
Creator
An entity primarily responsible for making the resource
Timor-Shelvin S; Oreg A; Perez AS
Description
An account of the resource
This is the intertwined story of three unique individuals—each of us parents, researchers, givers and takers—who met and changed each other’s lives, whilst simultaneously struggling to comprehend and make meaning out of our own personal losses. After coming to terms with their inability to have another biological child, Shachar and his wife adopted a baby. Ayelet and Alison both gave birth to stillborn babies. Subsequently, Ayelet followed conventional Israeli medical guidelines dictating the drying up of her milk, whilst Alison rejected those regulations and chose to continue lactating, which eventually led to her donating her milk to Shachar’s adopted baby. Our stories are grounded in the patriarchal Israeli context that pressures bereaved individuals to ‘move on’ quickly, silencing loss and grief (Leichtentritt et al., 2016). In this reflective piece, we propose a perspective on our interconnected story of human milk donation as a counter-practice to silencing loss, by allowing shared relational grief. [...]
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/bjsw/bcad025" target="_blank" rel="noreferrer noopener">10.1093/bjsw/bcad025</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
August List 2049
Bereavement
British Journal Of Social Work
Collaboration
Donor Milk
Ethnographic Research
Grief
Infant Death
Interpersonal Relations
lactation
Life Experiences
Living Donors
Milk
Milk Banks
Milk Ejection
Milk, Human
Oreg A
Paternal Attitudes
Perez AS
Perinatal Death
Timor-Shelvin S
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
February 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February List 2024
URL Address
<a href="http://doi.org/10.3390/children10101635" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3390/children10101635</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Lactation Support as a Proxy Measure of Family-Centered Care Quality in Neonates with Life-Limiting Conditions-A Comparative Study
Publisher
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Children
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
article; cohort analysis; controlled study; female; hospital admission; human; major clinical study; male; retrospective study; cerebral palsy; gestational age; comparative study; hospital discharge; congenital heart disease; genetic disorder; seizure; neurologic disease; lung disease; neonatal intensive care unit; clinical assessment; mortality; infant; kidney disease; extracorporeal oxygenation; health disparity; cognitive defect; length of stay; gastrointestinal disease; do not resuscitate order; breast feeding; hypoxic ischemic encephalopathy; family centered care; sensory dysfunction; incurable disease; lactation; life limiting condition; breast pump; donor milk; learning disorder; nutritional deficiency
Creator
An entity primarily responsible for making the resource
Brito S; Williams A; Fox J; Mohammed T; Chahin N; McCarthy K; Nubayaat L; Nunlist S; Brannon M; Xu J; Hendricks-Munoz KD
Description
An account of the resource
Lactation support is an important measure of Family-Centered Care (FCC) in the Neonatal Intensive Care Unit (NICU). Life-limiting conditions (LLCs) raise complex ethical care issues for providers and parents in the NICU and represent a key and often overlooked population for whom FCC is particularly important. We investigated healthcare disparities in FCC lactation support quality in infants with LLCs. Methods: A retrospective cohort of inborn infants with or without LLCs admitted to the NICU between 2015-2023 included 395 infants with 219 LLC infants and 176 matched non-LLC infants and were compared on LLC supports. Results: The LLC cohort experienced greater skin-to-skin support, but less lactation specialist visits, breast pumps provided, and human milk oral care use. LLC infants also experienced less maternal visitation, use of donor milk (LLC: 15.5%, non-LLC: 33.5%), and breastfeeds (LLC: 24.2%, non-LLC: 43.2%), with lower mean human milk provision (LLC: 36.6%, non-LLC: 67.1%). LLC infants who survived to discharge had similar human milk use as non-LLC infants (LLC: 49.8%, non-LLC: 50.6%). Conclusion: Lactation support was significantly absent for families and infants who presented with LLCs in the NICU, suggesting that policies can be altered to increase lactation support FCC quality for this population.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3390/children10101635" target="_blank" rel="noreferrer noopener">10.3390/children10101635</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Article
Brannon M
breast feeding
breast pump
Brito S
Cerebral Palsy
Chahin N
Children
clinical assessment
Cognitive Defect
Cohort Analysis
Comparative Study
Congenital Heart Disease
Controlled Study
do not resuscitate order
Donor Milk
extracorporeal oxygenation
Family Centered Care
February List 2024
Female
Fox J
gastrointestinal disease
Genetic Disorder
Gestational Age
health disparity
Hendricks-Munoz KD
Hospital Admission
hospital discharge
Human
hypoxic ischemic encephalopathy
incurable disease
Infant
kidney disease
lactation
learning disorder
Length Of Stay
Life limiting condition
Lung Disease
Major Clinical Study
Male
McCarthy K
Mohammed T
Mortality
Neonatal Intensive Care Unit
Neurologic Disease
Nubayaat L
Nunlist S
nutritional deficiency
Retrospective Study
Seizure
sensory dysfunction
Williams A
Xu J
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
April 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April List 2024
URL Address
<a href="http://doi.org/10.1016/j.semperi.2023.151870" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.semperi.2023.151870</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The most painful estrangement: Death at birth
Publisher
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Seminars in Perinatology
Date
A point or period of time associated with an event in the lifecycle of the resource
2024
Subject
The topic of the resource
article; human; social support; palliative therapy; coping; mourning; stillbirth; guilt; depression; emotion; identity; suicide; posttraumatic stress disorder; personal experience; bereavement; avoidance behavior; emotional stress; child death; prevalence; decision making; family history; regret; emotional support; lactation; sadness; fear; continuing education; sorrow; community care; stigma; spontaneous abortion; self concept; shame; loneliness; alienation; complicated grief/dt [Drug Therapy]; family stress; naltrexone/dt [Drug Therapy]; rage; social bonding; traffic accident
Creator
An entity primarily responsible for making the resource
Cacciatore J
Description
An account of the resource
More than two million babies a year die during or before birth around the world, evoking grief that is traumatic. Because the psychological, physical, social, and emotional ramifications of grief following a baby's death are so enduring and intense, social support is essential to helping families cope. In particular, emotional acts of caring and judicious use of language are crucial, avoiding the use of the terms that belittle the value of the baby's life and the importance of the baby as part of a family history. Traumatic grief informed continuing education can aid providers in increasing sensitivity to the needs of grieving families and minimize additional trauma and suffering in the aftermath of such loss.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.semperi.2023.151870" target="_blank" rel="noreferrer noopener">10.1016/j.semperi.2023.151870</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2024
alienation
April List 2024
Article
avoidance behavior
Bereavement
Cacciatore J
Child Death
community care
complicated grief/dt [Drug Therapy]
continuing education
Coping
Decision Making
Depression
Emotion
Emotional Stress
emotional support
family history
Family Stress
Fear
Guilt
Human
Identity
lactation
Loneliness
mourning
naltrexone/dt [Drug Therapy]
Palliative Therapy
Personal Experience
PostTraumatic Stress Disorder
Prevalence
rage
regret
Sadness
Self Concept
Seminars in Perinatology
shame
social bonding
Social Support
sorrow
spontaneous abortion
Stigma
Stillbirth
Suicide
traffic accident