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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Special Edition #1 2022 List
Text
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Special Edition #1 2022 List
URL Address
<a href="http://doi.org/10.1007/s10826-021-02027-w" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s10826-021-02027-w</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parenting Surviving Children After the Death of a Child from Cancer: An Interpretative Phenomenological Analysis
Publisher
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Journal of Child and Family Studies
Date
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2021
Subject
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parenting; pediatric cancer; bereavement; interpretive phenomenological analysis; surviving
Creator
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Haylett WJ; Scott-Tilley D; Spencer B; Hwang SH; Foster Akard T
Description
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The death of a child is a tragic, devastating event with enormous emotional and relational impact on the family unit. Parental changes are significant, encompassing the psychological, physical, spiritual, and interpersonal realms. Little bereavement research has focused on the crucial familial role of parenting or the relationship between bereaved parents and their surviving children after another child’s death. A noteworthy gap likewise exists in current literature regarding the experience of parenting within families who suffered the death of a child due to an extended, life-limiting illness such as cancer. This interpretative phenomenological analysis addresses the gap by exploring the lived experience of those who parent surviving children after their child’s cancer death. Seven mothers and four fathers (n = 11) across the United States participated in video or face-to-face semi-structured individual interviews. Parents had a range of 1–2 surviving children whose ages spanned 23 months-18 years (M = 8.27; SD = 5.07) at the time of their sibling’s death (M = 5.43 years earlier; SD = 3.17). Data analysis revealed two primary themes. “A New Mind” denotes bereaved parents’ new, contrasting mindsets regarding self-view, daily motivators, perceived locus of control, perspective, boundaries for children, direction of focus, and outside relationships. “Be Beside Me” highlights parents’ deep desire that others come alongside them by validating their emotions and experience and providing opportunities for family renewal. Clinicians working with bereaved families should have awareness of and consider parents’ changed perspectives, challenges, and supportive needs in order to deliver family-centered care and enrich existing services and support programs.
Identifier
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<a href="http://doi.org/10.1007/s10826-021-02027-w" target="_blank" rel="noreferrer noopener">10.1007/s10826-021-02027-w</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
2022 Special Edition 1 - Parent Perspectives
Bereavement
Foster Akard T
Haylett WJ
Hwang SH
interpretive phenomenological analysis
Journal of child and family studies
Parenting
Pediatric Cancer
Scott-Tilley D
Spencer B
surviving
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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May 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2019 List
URL Address
<a href="http://doi.org/10.1177/1049732319837228" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049732319837228</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Sibling Relationships Over the Life Course: Growing Up With a Disability
Publisher
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Qualitative Health Research
Date
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2019
Subject
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lived experience; Israel; qualitative; developmental disability; health; families; interpretive phenomenological analysis
Creator
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Avieli H; Band-Winterstein T; Araten BT
Identifier
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<a href="http://doi.org/10.1177/1049732319837228" target="_blank" rel="noreferrer noopener">10.1177/1049732319837228</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Description
An account of the resource
The research explores sibling relationships, and the ways in which they are shaped over the life course by family members, in families with a lifelong disability. In-depth, semistructured interviews were conducted with 15 family units including a parent, a sibling, and an adult sibling with a disability. The content analysis revealed five sibling relationship patterns: (a) "Not a child, but a parent caretaker"-the parent-surrogate sibling; (b) "We somehow grew apart"-the estranged sibling; (c) "It is important for me to maintain some kind of distance"-the bystander sibling; (d) "When there's something they want to tell him, they always send me"-the mediator sibling; and (e) "I love him to death"-the friend sibling. These patterns of adult sibling relationships are discussed in relation to family dynamics, values, and legacies; recommendations for practice and research are made.
2019
Araten BT
Avieli H
Band-Winterstein T
Developmental Disability
Families
Health
interpretive phenomenological analysis
Israel
lived experience
May 2019 List
Qualitative
Qualitative Health Research