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Dublin Core
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Title
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April 2024 List
Text
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Citation List Month
April List 2024
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2024.02.006" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.jpainsymman.2024.02.006</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Psychologists as Pivotal Members of the Pediatric Palliative Care Team
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2024
Subject
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child; Palliative Care; diagnosis; article; human; quality of life; palliative therapy; Psychology; adolescent; therapy; evidence based practice; drug therapy; consensus; interdisciplinary research; psychologist
Creator
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Thompson AL; Kentor RA; Schaefer MR; McCarthy SR
Description
An account of the resource
Context: Pediatric psychologists possess unique expertise to positively impact the care provided to children with serious illness and their families. Despite increasing recognition regarding the value of psychology in palliative care, psychologists are not yet routinely integrated into pediatric palliative care (PPC) teams. Objectives: This special paper seeks to demonstrate distinctive contributions psychologists can offer to PPC teams, patients, and families, as well as highlight how psychologists enhance the work of their interdisciplinary PPC colleagues. Methods: Existing literature, consensus and policy statements, and recently developed competencies inform and provide evidence for the value of incorporating psychologists into PPC. Results: As children with serious illness are at risk for mental and physical health symptoms, psychologists' specialized training in evidence-based assessment and intervention allows them to assess areas of concern, create treatment plans, and implement nonpharmacological therapies targeting symptom management and promotion of quality of life. By improving patient and family outcomes, psychology involvement saves money. In addition to clinical care, psychologists are skilled researchers, which can help to advance PPC interdisciplinary research. Lastly, psychologists can play a valuable role in contributing to PPC team education, dynamics, and well-being. Conclusions: With strong skills in research, clinical care, education, and advocacy, pediatric psychologists are exceptionally equipped to provide care to children with serious illness and their families. Given their unique contributions, it is critical future efforts are directed towards advocating for the inclusion of psychologists into PPC, with the ultimate goal of improving care for children with serious illness and their families.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2024.02.006" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2024.02.006</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2024
Adolescent
April List 2024
Article
Child
Consensus
Diagnosis
Drug Therapy
evidence based practice
Human
interdisciplinary research
Journal of Pain and Symptom Management
Kentor RA
McCarthy SR
Palliative Care
Palliative Therapy
Psychologist
Psychology
Quality Of Life
Schaefer MR
Therapy
Thompson AL
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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September 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2021 List
URL Address
<a href="http://doi.org/10.1089/pmr.2020.0043" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/pmr.2020.0043</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Research Cooperative Groups in Pediatric Palliative Care Research
Publisher
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Palliative Medicine Reports
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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hospice and palliative care nursing; interdisciplinary research; palliative care; palliative medicine; pediatric; research
Creator
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Akard TF; Gilmer MJ
Description
An account of the resource
Research cooperative groups aim to facilitate collaborative and rigorous palliative care research. The purpose of this article is to (1) demonstrate how cooperative groups are taking formal and sustainable steps with commitment to pediatric palliative care research programs and (2) provide an example of how one cooperative group is implementing these innovative efforts to partner with programs to integrate pediatrics on an expanding scale. Details are described for how pediatric studies can benefit from cooperative group infrastructure and expertise. In turn, we describe how cooperative groups can benefit from collaborating on pediatric studies through broadening of data dictionaries, data repositories, and reach in palliative care research communities.
Identifier
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<a href="http://doi.org/10.1089/pmr.2020.0043" target="_blank" rel="noreferrer noopener">10.1089/pmr.2020.0043</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Akard TF
Gilmer MJ
Hospice And Palliative Care Nursing
interdisciplinary research
Palliative Care
Palliative Medicine
Palliative Medicine Reports
Pediatric
Research
September 2021 List
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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September 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2019 List
URL Address
<a href="http://doi.org/10.1177/1049909119844519" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909119844519</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Early Identification of Pediatric Neurology Patients With Palliative Care Needs: A Pilot Study
Publisher
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American Journal of Hospice and Palliative Medicine®
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
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patient care; pediatrics; palliative care; pilot projects; neurology; interdisciplinary research
Creator
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Lyons-Warren AM; Stowe RC; Emrick L; Jarrell JA
Description
An account of the resource
Palliative care services are beneficial for pediatric neurology patients with chronic, life-limiting illnesses. However, timely referral to palliative care may be impeded due to an inability to identify appropriate patients. The aim of this pilot case–control study was to test a quantitative measure for identifying patients with unmet palliative care needs to facilitate appropriate referrals. First, a random subset of pediatric neurology patients were screened for number of hospital admissions, emergency center visits, and problems on the problem list. Screening results led to the hypothesis that having six or more hospital admissions in one year indicated unmet palliative care needs. Next, hospital admissions in the past year were counted for all patients admitted to the neurology service during a six-month period. Patients with six or more admissions as well as age- and gender-matched controls were assessed for unmet palliative care needs. In hospitalized pediatric neurology patients, having six or more admissions in the preceding year did not predict unmet palliative care needs. While this pilot study did not find a quantitative measure that identifies patients needing a palliative care consultation, the negative finding highlights an important distinction between unmet social needs that interfere with care and unmet palliative care needs. Further, the method of screening patients used in this study was simple to implement and provides a framework for future studies.
Identifier
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<a href="http://doi.org/10.1177/1049909119844519" target="_blank" rel="noreferrer noopener">10.1177/1049909119844519</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
American Journal of Hospice and Palliative Medicine®
Emrick L
interdisciplinary research
Jarrell JA
Lyons-Warren AM
Neurology
Palliative Care
Patient Care
Pediatrics
Pilot Projects
September 2019 List
Stowe RC