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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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November 2021 List
Text
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Citation List Month
November 2021 List
URL Address
<a href="http://doi.org/10.3390/children8090741" target="_blank" rel="noreferrer noopener">http://doi.org/10.3390/children8090741</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Development of the Dutch Structure for Integrated Children's Palliative Care
Publisher
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Children
Date
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2021
Subject
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family; life-limiting; integrated care; life-threatening; care network; children’s palliative care; homecare; paediatric palliative care team
Creator
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Vallianatos S; Huizinga CSM; Schuiling-Otten MA; Schouten-van Meeteren AYN; Kremer LCM; Verhagen AAE
Description
An account of the resource
Children's palliative care (CPC) is gaining attention worldwide, facilitated by the exchange of knowledge during regular specialised congresses. This article describes the developments in the Netherlands over the past 15 years. The Foundation for Children's Palliative Expertise (PAL) was established as a nationwide initiative committed to improving palliative care for children countrywide. This led to the development of the first hospital-based CPC team in 2012, which expanded to a total of seven teams adjacent to children's university hospitals. Regional networks for CPC were developed in parallel to these teams from 2014 onwards. The networks are a collaboration of professionals from different disciplines and organisations, from hospital to homecare, and have covered the aspects of CPC nationally from 2019 onwards. They are connected through the Dutch Knowledge Centre for CPC. This centre was established in 2018 by the PAL Foundation in collaboration with the Dutch Association for Pediatrics. In 2013, the first evidence-based guideline, 'palliative care for children', provided access to knowledge for parents and healthcare providers, and in 2017, a format for an individual palliative care plan was established. Within the Knowledge Centre for CPC, a physician's support centre for dilemma's regarding the end of life of children was set up. The efforts to have children's palliative care embedded in the regular Dutch health care insurance are ongoing.
Identifier
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<a href="http://doi.org/10.3390/children8090741" target="_blank" rel="noreferrer noopener">10.3390/children8090741</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
care network
Children
Children’s palliative care
Family
homecare
Huizinga CSM
integrated care
Kremer LCM
Life-limiting
Life-threatening
November 2021 List
paediatric palliative care team
Schouten-Van Meeteren AYN
Schuiling-Otten MA
Vallianatos S
Verhagen AAE
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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January 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2021 List
URL Address
<a href="http://doi.org/10.5334/ijic.5545" target="_blank" rel="noreferrer noopener">http://doi.org/10.5334/ijic.5545</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Understanding Young People and Their Care Providers' Perceptions and Experiences of Integrated Care Within a Tertiary Paediatric Hospital Setting, Using Interpretive Phenomenological Analysis
Publisher
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International Journal of Integrated Care
Date
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2020
Subject
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paediatrics; healthcare providers; family-centred care; integrated care; patient experience; person-centred care; Person-Driven Care Special Collection.
Creator
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Johnson H; Simons M; Newcomb D; Borkoles E
Description
An account of the resource
INTRODUCTION: Benefits of integrated care include improved health outcomes and more satisfaction with experiences of care for consumers. For children and young people with chronic and complex health conditions, their care may be fragmented due to the multitude of healthcare providers involved. This paper describes the experiences of integrated care in a paediatric tertiary hospital. THEORY AND METHODS: Using an Interpretive Phenomenological Analysis approach, semi-structured interviews were conducted with children and young people, their parents and healthcare providers to explore stakeholders' integrated care experiences. RESULTS: Nineteen interviews were completed (6 children and young people, 7 parents and 6 healthcare providers) and transcribed verbatim. Two recurrent themes were applicable across the three cohorts: 'agency and empowerment' and 'impact of organisational systems, supports and structures'. DISCUSSION AND CONCLUSION: Stakeholders' experiences of integrated care highlighted the need to examine the discrepancies between healthcare strategies, policies and service delivery within a complex, and often inflexible organisational structure. Power imbalance and family agency (including directly with children and young people) needs to be addressed to support the implementation of integrated care.
Identifier
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<a href="http://doi.org/10.5334/ijic.5545" target="_blank" rel="noreferrer noopener">10.5334/ijic.5545</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Borkoles E
Family-centred Care
Healthcare Providers
integrated care
International Journal Of Integrated Care
January 2021 List
Johnson H
Newcomb D
Paediatrics
Patient experience
person-centred care
Person-Driven Care Special Collection.
Simons M