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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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January 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January List 2023
URL Address
<a href="http://doi.org/10.1055/s-0042-1757146" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1055/s-0042-1757146</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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A Spiritual Prescription to Bereaved Parents of Children Died Due to Coronavirus Disease 2019
Publisher
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Journal of Child Science
Date
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2022
Subject
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Bereavement; Coronavirus Disease 2019; Spiritual Care; Bereavement; Coronavirus 19; Parent; Child; Child Death; Dying; Editorial; Financial Management; Grief; Healing; Health Care Personnel; Hopelessness; Human; Life History; Medical Care; Palliative Therapy; Psychosocial Care; Religion; Sudden Cardiac Death
Creator
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Çaksen H
Identifier
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<a href="http://doi.org/10.1055/s-0042-1757146" target="_blank" rel="noreferrer noopener">10.1055/s-0042-1757146</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Bereavement
Child
Grief
Human
2022
Çaksen H
Child Death
Coronavirus 19
coronavirus disease 2019
Dying
Editorial
financial management
Healing
Health Care Personnel
hopelessness
January List 2023
Journal of Child Science
Life History
Medical Care
Palliative Therapy
Parent
psychosocial care
Religion
Spiritual Care
Sudden Cardiac Death
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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November 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2020 List
URL Address
<a href="http://doi.org/10.1016/j.wombi.2020.08.011" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.wombi.2020.08.011</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Experience of hope: An exploratory research with bereaved mothers following perinatal death
Publisher
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Women and Birth
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
Bereavement; Hope; Hopelessness; Perinatal death; Qualitative research; Women
Creator
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de Andrade Alvarenga W; deMontigny F; Zeghiche S; Verdon C; Castanheira Nascimento L
Description
An account of the resource
Problem The negative implications of perinatal death on mothers’ mental health are documented, however little is known about their experience of hope. Background Within the broader literature, hope has contributed to better mental health and bereavement adjustment and often bereaved mothers report the importance of hope for the grieving process. Aim This study aims to explore bereaved mothers’ experience of hope following perinatal death. Methods Individual interviews were conducted with 33 mothers having experienced the death of an infant in the perinatal period. Data from the interviews were analysed using thematic analysis. Findings The mothers’ experience of hope following perinatal loss is organized into three themes: Hope disrupted by perinatal loss; Transformed hope: a new pregnancy challenged by the sense of foreboding of another loss; and Ways to restore and foster hope in life. Discussion Although hope has been a motivating force for mothers to reconnect with their life plan and move on after a loss, it is also negatively affected by the experience of perinatal bereavement, social support, and health professionals’ clinical practice. Conclusion Bereaved mothers have reported a disruption in their experience of hope. While some experience a loss of hope or a sense of hopelessness, others experience a transformation and restoration of hope, which is reinvested in the grieving process. Mothers’ experience of hope highlights the need for the support of a healthcare professional and may contribute to enhanced clinical practice through the promotion of bereavement care, considering the aspects that instil, maintain, and interfere with hope.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.wombi.2020.08.011" target="_blank" rel="noreferrer noopener">10.1016/j.wombi.2020.08.011</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Bereavement
Castanheira Nascimento L
de Andrade Alvarenga W
deMontigny F
Hope
hopelessness
November 2020 List
Perinatal Death
Qualitative Research
Verdon C
Women
Women and Birth
Zeghiche S
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
December 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2018 List
URL Address
<a href="http://doi.org/10.1097/PCC.0000000000001213" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/10.1097/PCC.0000000000001213</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Speaking a different language: Communication patterns of palliative care and pediatric intensive care unit providers during family conferences
Publisher
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Pediatric Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
quality of life; palliative therapy; retrospective study; thematic analysis; language; human experiment; health care personnel; genetic transcription; pediatric intensive care unit; speech; conference abstract; human; controlled study; medical information; uncertainty; audio recording; hopelessness
Creator
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Ciriello A G; October TW
Description
An account of the resource
Introduction: Family conferences between parents of critically ill children and health care providers in the pediatric intensive care unit (PICU) serve an important role in family centered care. Many family conferences include palliative care providers to help navigate the conversation. We do not know how communication differs between conferences with and without the palliative care team. The objective of this study was to compare the language used by the palliative care (PC) team and the critical care team during decisionmaking family conferences. Methods: We conducted a qualitative retrospective review of 18 family conferences that were audio-recorded and transcribed. Nine conferences included both the PC team and PICU physicians, while 9 included only PICU physicians. Statements made by the PC team were collected and compared to statements made by the PICU team. Thematic analysis was performed to categorize the statements. Results: In 9 audio-recordings of PICU only conferences, we identified 526 PICU statements generating 15 thematic categories. The most common theme was medical information giving with 215/526 (41%) statements followed by discussing medical options (65/526, 12%). Other PICU themes included, "healthcare provider challenges (14/526, 3%)," hopelessness (30/526, 6%), and insensitivity (18/526, 3%). Among the 9 audio-recordings with the PC team present, there were 282 PC statements, which generated 11 thematic categories. The most common theme was support, compromising 78/282 (28%) statements. Other common PC themes included quality of life (35/282, 12%) and medical information giving (47/282, 17%). Overlapping themes used by both PICU and PC teams were encouraging consulting services, giving medical information, presenting medical options, normalizing emotions, praising the family, providing support, and discussing uncertainty. Both PICU and PC teams promoted family engagement by soliciting parent questions; however the PC team was more likely to use open-ended questions. Conclusions: Palliative care team language appears different from that of PICU physicians in that PICU physicians spend more time giving medical information while the palliative care team more commonly offers supportive statements and encourages parental involvement. Each provider serves a different role during family conferences. The addition of the palliative care team to PICU family conferences may offer a balanced approach to communication where the medical team provides important medical information while simultaneously offering support for the family.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/PCC.0000000000001213" target="_blank" rel="noreferrer noopener">10.1097/PCC.0000000000001213</a>
2017
audio recording
Ciriello A G
conference abstract
Controlled Study
December 2018 List
genetic transcription
Health Care Personnel
hopelessness
Human
Human Experiment
Language
Medical Information
October TW
Palliative Therapy
Pediatric Critical Care Medicine
Pediatric Intensive Care Unit
Quality Of Life
Retrospective Study
Speech
Thematic Analysis
Uncertainty