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Dublin Core
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Title
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Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
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URL Address
<a href="http://doi.org/10.1007/s00383-007-2100-x" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s00383-007-2100-x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Non-endoscopic percutaneous gastrostomy placement in children with recessive dystrophic epidermolysis bullosa
Publisher
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Pediatric Surgery International
Date
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2008
Subject
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Pediatrics; Surgery; anesthesia; epidermolysis bullosa; management; dilation; esophageal strictures; "Push"; chile; gastrostomy; iind international-symposium; non-endoscopic percutaneous gastrostomy; nutrition; santiago; feeding difficulties; surgical intervention; non-endoscopic percutaneous gastrostomy; gastrostomy tube placement
Creator
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Stehr W; Farrell M K; Lucky A W; Johnson N D; Racadio J M; Azizkhan R G
Description
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Recessive dystrophic epidermolysis bullosa (RDEB) is associated with high nutritional demands, esophageal strictures and dysphagia. About one quarter of the patients require gastrostomy tube placement to maintain adequate nutritional status. To minimize trauma to the skin and pharyngoesophageal mucosa caused by commonly used gastrostomy tube insertion techniques, we used a non-endoscopic, percutaneous, image-guided approach. This approach combines the use of ultrasound for mapping of the liver and spleen, water-soluble contrast enema to visualize the colon, and gastric insufflation to define the stomach. The gastrostomy tube is replaced by a low-profile button gastrostomy tube 10-12 weeks postoperatively. The five female patients reported in this series ranged in age from 6 to 9 years. They all tolerated the procedure well and no perioperative complications were encountered. All were able to tolerate feedings on postoperative day 1 and all underwent successful replacement of gastrostomy tubes by low-profile button tubes. Our experience suggests that a non-endoscopic, image-guided approach to gastrostomy tube placement offers a safe, effective, and minimally traumatic alternative to more commonly used approaches. It minimizes the risk of procedure-related morbidity and leads to overall improvement in the quality of life. As such, we strongly recommend that it be included in the treatment armamentarium for patients with epidermolysis bullosa and nutritional failure.
Identifier
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<a href="http://doi.org/10.1007/s00383-007-2100-x" target="_blank" rel="noreferrer noopener">10.1007/s00383-007-2100-x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
"Push"
2008
Anesthesia
Azizkhan R G
Chile
dilation
epidermolysis bullosa
Esophageal strictures
Farrell M K
feeding difficulties
Gastrostomy
gastrostomy tube placement
iind international-symposium
Johnson N D
Lucky A W
Management
non-endoscopic percutaneous gastrostomy
Nutrition
Pediatric Surgery International
Pediatrics
Racadio J M
santiago
Stehr W
Surgery
surgical intervention