1 40 1 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource August 2018 List Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month August 2018 List URL Address <a href="http://doi.org/10.1177/0269216318769196" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0269216318769196</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Qualitative evaluation of the impact of a paediatric palliative care family support volunteering project Publisher An entity responsible for making the resource available Palliative Medicine Date A point or period of time associated with an event in the lifecycle of the resource 2018 Subject The topic of the resource human; child; female; male; palliative therapy; controlled study; major clinical study; conference abstract; sibling; quality of life; human experiment; semi structured interview; skill; volunteer; staff; questionnaire; qualitative analysis; gardening; housekeeping; leadership; shopping Creator An entity primarily responsible for making the resource Scott R; Chambers L; McNamara K Description An account of the resource Background: Families caring for a child with a life limiting condition not only provide 24 hour complex care but also must care for siblings and cope with everyday tasks. Research suggests families could benefit from 'domestic support' (Fraser et al, 2015). This abstract reports on a qualitative evaluation of the second phase of a pilot project offering volunteer home support to such families. Three pilot sites were involved including voluntary and NHS community children's palliative care (CPC) teams. Method: Qualitative questionnaires were completed by families, staff, volunteers and strategic leaders before and after the pilot, followed by small number of semi-structured interviews to explore experiences in more depth. Results: Volunteers provided a range of support including, housework, gardening, shopping homework with siblings and taking siblings to and from school. Sixty volunteers were recruited and 62 families matched with volunteers. As a result of volunteer support, 100% of families reported improvement in quality of life, 95% feeling less stressed and more able to cope with 65% feeling less isolated. All volunteers (100%) felt valued, 84% increased skills and confidence and 92% wished to continue volunteering. The project enabled pilot sites to extend the range of support offered and increased organisational capacity. Volunteers enriched the organisation and brought new ideas and impetus. Volunteers were able to respond quickly and appropriately in crisis situations. Challenges identified included some families feeling that the offer of volunteer help implied that they were not coping, volunteers ' availability not always matching families preferred times and allowing enough time for planning and set up. A set of online resources were developed as part of the project. These include guidance on planning and implementation in different settings are now freely available. Conclusion: This evaluation suggests that families benefit greatly from volunteer support in the home and may be of value to other CPC services considering how too extend their support to families. A subsequent evaluation, with reflections on sustainability replicability is underway. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1177/0269216318769196" target="_blank" rel="noreferrer noopener">10.1177/0269216318769196</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2018 August 2018 List Chambers L Child conference abstract Controlled Study Female gardening housekeeping Human Human Experiment Leadership Major Clinical Study Male McNamara K Palliative Medicine Palliative Therapy Qualitative Analysis Quality Of Life Questionnaire Scott R Semi Structured Interview shopping Sibling Skill Staff Volunteer