1
40
3
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
February 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2022 List
URL Address
<a href="http://doi.org/10.1055/s-0041-1740251" target="_blank" rel="noreferrer noopener">http://doi.org/10.1055/s-0041-1740251</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A Scoping Review of Perinatal Palliative Care: Allowing Parents to Be Parents
Publisher
An entity responsible for making the resource available
American Journal of Perinatology
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
congenital; fetal anomaly; life-limiting condition; perinatal hospice; perinatal palliative care; prenatal diagnosis
Creator
An entity primarily responsible for making the resource
Buskmiller C; Calhoun BC
Description
An account of the resource
OBJECTIVE: -Perinatal palliative care (PPC) is an option for patients who discover that their infant has a life-limiting fetal condition, which decreases the burden of the condition using a multidisciplinary approach. STUDY DESIGN: -This review discusses the landmark literature in the past two decades, which have seen significant growth and development in the concept of PPC. RESULTS: -The literature describes the background, quality, and benefits of offering PPC, as well as the ethical principles that support its being offered in every discussion of fetal life-limiting diagnoses. CONCLUSIONS: -PPC shares a similar risk profile to other options after life-limiting diagnosis, including satisfaction with choice of continuation of pregnancy. The present clinical opinion closes by noting common barriers to establishing PPC programs and offers a response to overcome each one. KEY POINTS: · Perinatal palliative care serves patients who continue pregnancies with life-limiting fetal anomaly.. · Perinatal palliative care has a risk profile similar to other options such as termination.. · Health care providers can serve as champions to extend PPC to patients in their region..
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1055/s-0041-1740251" target="_blank" rel="noreferrer noopener">10.1055/s-0041-1740251</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
American Journal of Perinatology
Buskmiller C
Calhoun BC
Congenital
February 2022 List
fetal anomaly
Life-limiting Condition
Perinatal Hospice
Perinatal Palliative Care
Prenatal Diagnosis
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
October 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2018 List
URL Address
<a href="http://doi.org/10.1177/0825859718790627" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1177/0825859718790627</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Development and Implementation of a Survey to Assess Health-Care Provider's Competency, Attitudes, and Knowledge About Perinatal Palliative Care.
Publisher
An entity responsible for making the resource available
Journal of palliative care
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
fetal anomaly; instrument development; neonatal palliative care; pediatric palliative care; perinatal hospice; perinatal palliative care
Creator
An entity primarily responsible for making the resource
Stenekes S; Penner JL; Harlos M; Proulx M; Shepherd E; Liben S; Thompson G; MacConnell G; Gregoire M; Siden Harold Hal
Description
An account of the resource
Perinatal palliative care is an emerging area of health care. To date, no published tools assess health-care provider's knowledge and level of comfort in providing such care. A 2-phase study was undertaken to develop and implement a survey to evaluate the self-assessed competency, attitudes, and knowledge of health-care providers working in perinatal palliative care. Phase 1 included a review of the literature and appraisal of palliative and death-related instruments to inform the initial draft of the Perinatal Palliative Care Survey (PPCS). Twenty-four Canadian pediatric palliative care specialists critiqued the PPCS, establishing its face and content validity. Phase 2 involved administering the PPCS at 4 sites across Canada, resulting in 167 responses from nurses, physicians, and midwives. The majority of participants responded that they possessed a degree of comfort in providing perinatal palliative care, particularly with assessing pain (76%), managing pain (69%), assessing other symptoms (85%), and managing other symptoms (78%). Two areas where participants level of confidence or extreme confidence was diminished included having conversations with families about the possibility of their infant dying (55%) and knowing and accessing community palliative care resources (32%). Responses in the knowledge section identified gaps related to opioid use, pharmacological interventions for breathlessness, pain behaviors, and tolerance developed to opioids and sedatives. Eighty-six percent of respondents stated that if education about palliative care was made available, they would participate with priority topics identified as communication with families (75%), managing symptoms (69%), pain management (69%), and ethical issues (66%). The PPCS provides a useful assessment to determine the educational needs of health-care providers delivering perinatal palliative care.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0825859718790627" target="_blank" rel="noreferrer noopener">10.1177/0825859718790627</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
fetal anomaly
Gregoire M
Harlos M
instrument development
Journal Of Palliative Care
Liben S
MacConnell G
Neonatal Palliative Care
Pediatric Palliative Care
Penner JL
Perinatal Hospice
Perinatal Palliative Care
Proulx M
September 2018 List
Shepherd E
Siden Harold Hal
Stenekes S
Thompson G
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
December 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2021 List
URL Address
<a href="http://doi.org/10.1111/1471-0528.16976" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/1471-0528.16976</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The role of perinatal palliative care following prenatal diagnosis of major, incurable fetal anomalies: a multicentre prospective cohort study
Publisher
An entity responsible for making the resource available
Bjog
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
advance care planning; fetal anomaly; incurable anomaly; life-limiting fetal diagnosis; perinatal palliative care
Creator
An entity primarily responsible for making the resource
de Barbeyrac C; Roth P; Noël C; Anselem O; Gaudin A; Roumegoux C; Azcona B; Castel C; Noret M; Letamendia E; Stirnemann J; Ville Y; Lapillonne A; Viallard ML; Kermorvant-Duchemin E
Description
An account of the resource
OBJECTIVE: To describe prenatal decision-making processes and birth plans in pregnancies amenable to planning perinatal palliative care. DESIGN: Multicentre prospective observational study. SETTING: Nine Multidisciplinary Centres for Prenatal Diagnosis of the Paris-Ile-de-France region. POPULATION: All cases of major and incurable fetal anomaly where limitation of life-sustaining treatments for the neonate was discussed in the prenatal period between 2015 and 2016. METHODS: Cases of congenital defects amenable to perinatal palliative care were prospectively included in each centre. Prenatal diagnosis, decision-making process, type of birth plan, birth characteristics, pregnancy and neonatal outcome were collected prospectively and anonymously. MAIN OUTCOME MEASURE: Final decision reached following discussions in the antenatal period. RESULTS: We identified 736 continuing pregnancies with a diagnosis of a severe fetal condition eligible for TOP. Perinatal palliative care was considered in 102/736 (13.9%) pregnancies (106 infants); discussions were multidisciplinary in 99/106 (93.4%) cases. Prenatal birth plans involved life-sustaining treatment limitation and comfort care in 73/736 (9.9%) of the pregnancies. The main reason for planning palliative care at birth was short-term inevitable death in 39 cases (53.4%). 76/106 (71.7%) infants were born alive. 18/106 (17%) infants were alive at last follow-up, including 4 with a perinatal palliative care birth plan. CONCLUSIONS: Only a small proportion of severe and incurable fetal disorders were potentially amenable to limitation of life-sustaining interventions. Perinatal palliative care may not be considered as an universal alternative to termination of pregnancy.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/1471-0528.16976" target="_blank" rel="noreferrer noopener">10.1111/1471-0528.16976</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Advance Care Planning
Anselem O
Azcona B
Bjog
Castel C
de Barbeyrac C
December 2021 List
fetal anomaly
Gaudin A
incurable anomaly
Kermorvant-Duchemin E
Lapillonne A
Letamendia E
life-limiting fetal diagnosis
Noël C
Noret M
Perinatal Palliative Care
Roth P
Roumegoux C
Stirnemann J
Viallard ML
Ville Y