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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2019 Oncology List
Text
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Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1177/1049732318786484" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049732318786484</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Children's and Parents' Conceptualization of Quality of Life in Children With Brain Tumors: A Meta-Ethnographic Exploration
Publisher
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Qualitative Health Research
Date
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2019
Subject
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adaptation; Adaptation; Adolescent; Anthropology; Brain Neoplasms/*psychology; cancer; Child; children; coping; Cultural; enduring; experiences; Female; health; Humans; illness and disease; Infant; lived experience; Male; meta-ethnogrpahy; metasynthesis; Method: interpretive methods; Parents/*psychology; Preschool; Psychological; psychosocial aspects; Qualitative Research; qualitative. Geographic: Taiwan; quality of life; Quality of Life/*psychology; resilience; Resilience; resistance; survivorship; Young Adult
Creator
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Beecham E; Langner R; Hargrave D; Bluebond-Langner M
Description
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The concept of quality of life (QoL) is used in consultations to plan the care and treatment of children and young people (CYP) with brain tumors (BTs). The way in which CYP, their parents, and their health care professionals (HCP) each understand the term has not been adequately investigated. This study aimed to review the current qualitative research on CYP, parents' and clinicians' concepts of QoL for CYP with BTs using meta-ethnography. Six studies were found, which reflected on the concept of QoL in CYP with BTs; all explored the CYP's perspective and one study also touched upon parents' concept. A conceptual model is presented. Normalcy (a "new normal") was found to be the key element in the concept. This study calls for a conception of QoL, which foregrounds normalcy over the more common health-related quality of life (HRQoL) and the need to understand the concept from all perspectives and accommodate change over time.
Identifier
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<a href="http://doi.org/10.1177/1049732318786484" target="_blank" rel="noreferrer noopener">10.1177/1049732318786484</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Adaptation
Adolescent
Anthropology
Beecham E
Bluebond-Langner M
Brain Neoplasms/*psychology
Cancer
Child
Children
Coping
Cultural
enduring
Experiences
Female
Hargrave D
Health
Humans
Illness and Disease
Infant
Langner R
lived experience
Male
meta-ethnogrpahy
Metasynthesis
Method: interpretive methods
Oncology 2019 List
Parents/*psychology
Preschool
Psychological
psychosocial aspects
Qualitative Health Research
Qualitative Research
qualitative. Geographic: Taiwan
Quality Of Life
Quality of Life/*psychology
Resilience
Resistance
Survivorship
Young Adult