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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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May 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May List 2023
URL Address
<a href="http://doi.org/10.1017/S1478951523000251" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1017/S1478951523000251</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Assessing well-being in pediatric palliative care: A pilot study about views of children, parents and health professionals
Publisher
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Palliative and Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
emotional well-being; palliative therapy; pilot study; psychologic assessment; wellbeing; article; child; clinical article; controlled study; cross-sectional study; demography; emotion; female; health practitioner; human; male; Palliative Care; perception; Pilot Projects; school child; vision; visual analog scale
Creator
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Toro-Perez D; Camprodon-Rosanas E; Navarro Vilarrubi S; Bolance C; Guillen M; Limonero JT
Description
An account of the resource
OBJECTIVES: Our research aims to compare the perception that children in the pediatric palliative care setting have of their emotional well-being, or that expressed by the parents, with the perception held by the professionals involved in their care. <br/>METHOD(S): In this cross-sectional study, the emotional well-being of 30 children with a mean age of 10.8 years (standard deviation [SD] = 6.1) is evaluated. Children, or parents where necessary, evaluate their situation with a question about emotional well-being on a 0-10 visual analog scale. For each child, a health professional also rates the child's emotional status using the same scale. <br/>RESULT(S): The average child's emotional well-being score provided by children or parents was 7.1 (SD = 1.6), while the average score given by health professionals was 5.6 (SD = 1.2). Children or parents graded the children's emotional well-being significantly higher than professionals (t-test = 4.6, p-value < .001). Health professionals rated the children's emotional well-being significantly lower when the disease status was progressive than when the disease was not (t-test = 2.2, p-value = .037). SIGNIFICANCE OF RESULTS: Children themselves, or their parents, report more positive evaluations of emotional well-being than health professionals. Sociodemographic and disease variables do not seem to have a direct influence on this perception, rather it is more likely that children, parents, and professionals focus on different aspects and that children or parents need to hold on to a more optimistic vision. We must emphasize that when this difference is more pronounced, it can be a warning sign that further analysis is required of the situation.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1017/S1478951523000251" target="_blank" rel="noreferrer noopener">10.1017/S1478951523000251</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Article
Bolance C
Camprodon-Rosanas E
Child
Clinical Article
Controlled Study
Cross-sectional Study
Demography
Emotion
emotional well-being
Female
Guillen M
health practitioner
Human
Limonero JT
Male
May List 2023
Navarro Vilarrubi S
Palliative And Supportive Care
Palliative Care
Palliative Therapy
Perception
Pilot Projects
Pilot Study
psychologic assessment
School Child
Toro-Perez D
vision
Visual Analog Scale
Wellbeing
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pbc.25228" target="_blank" rel="noreferrer">http://doi.org/10.1002/pbc.25228</a>
<a href="http://onlinelibrary.wiley.com/doi/10.1002/pbc.25228/abstract" target="_blank" rel="noreferrer">http://onlinelibrary.wiley.com/doi/10.1002/pbc.25228/abstract</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Grief reactions and impact of patient death on pediatric oncologists
Publisher
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Pediatric Blood & Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Pediatric; Grief; emotional well-being; oncologists; patient death
Creator
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Granek L; Bartels U; Scheinemann K; Labrecque M; Barrera M
Description
An account of the resource
Background To examine pediatric oncologists' grief reactions to patient death, and the impact patient death has on their personal and professional lives. Procedure The grounded theory method was used. Data was collected between March 2012 and July 2012 at two academic centres in Canada. Twenty-one out of 34 eligible pediatric oncologists at different stages of their career were recruited and interviewed about their experiences with patient death. Inclusion criteria were: being able to speak English and having had a patient die in their care. The participants formed three groups of oncologists at different stages of career including: fellows, junior oncologists, and senior oncologists who varied in sub-specialties, gender, and ethnicities. Results Pediatric oncologists reported a range of reactions to patient death including sadness, crying, sleep loss, exhaustion, feeling physically ill, and a sense of personal loss. They also reported self-questioning, guilt, feelings of failure and helplessness. The impact of these deaths had personal consequences that ranged from irritability at home, feeling disconnected from family members and friends, and becoming more desensitized towards death, to gaining a greater and more appreciative perspective on life. Professional impacts included concern about turnover or burnout at work and improving holistic care as a result of patient deaths. Conclusions Grief over patient death and the emotional labour involved in these losses are a robust part of the pediatric oncology workplace and have major impacts on pediatric oncologist's personal and professional lives. Interventions that focus on how to help pediatric oncologists deal with these reactions are needed. Pediatr Blood Cancer © 2014 Wiley Periodicals, Inc.
2014-09
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pbc.25228" target="_blank" rel="noreferrer">10.1002/pbc.25228</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Backlog
Barrera M
Bartels U
emotional well-being
Granek L
Grief
Journal Article
Labrecque M
oncologists
patient death
Pediatric
Pediatric Blood & Cancer
Scheinemann K