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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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December 2018 List
Text
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Citation List Month
December 2018 List
URL Address
<a href="http://doi.org/10.1080/09687599.2018.1498321" target="_blank" rel="noreferrer noopener"> http://doi.o rg/10.1080/09687599.2018.1498321</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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'We didn't tell everybody because everybody didn't need to know': An examination of parental disability-disclosure of spina bifida
Publisher
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Disability & Society
Date
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2018
Subject
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qualitative study; No terms assigned; communication privacy management; disability-disclosure; self-disclosure; spina bifida
Creator
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Copeland K; Lasater BAL
Description
An account of the resource
This qualitative study sheds light on the process that parents go through as they learn of a spina bifida diagnosis and the communication strategies that are used to discuss an expected disability diagnosis with others. Interviews with 30 participants discovered that there were immediate disclosures made with family and close friends. Additionally, circumstantial disclosures took place when returning to routine behaviors. Participants described five distinctive criteria that developed a privacy boundary: self-blame, grief, helping others cope, maintaining privacy of child, and stigma. Implications for parents, medical professionals, and communication scholars are discussed.
Identifier
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<a href="http://doi.org/10.1080/09687599.2018.1498321" target="_blank" rel="noreferrer noopener">10.1080/09687599.2018.1498321</a>
2018
communication privacy management
Copeland K
December 2018 List
Disability & Society
disability-disclosure
Lasater BAL
Qualitative Study
self-disclosure
spina bifida