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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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September 2020 List
Text
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September 2020 List
URL Address
<a href="http://doi.org/10.1007/s00467-020-04584-6" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s00467-020-04584-6</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Rapid response in the COVID-19 pandemic: a Delphi study from the European Pediatric Dialysis Working Group
Publisher
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Pediatric Nephrology
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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Adolescent; Child; Chronic/complications/*therapy; Coronavirus Infections/complications/prevention & control/*therapy; COVID-19; Delphi; Delphi Technique; Dialysis; Europe; Evidence-Based Medicine; Humans; Infant; Infection Control; Pandemics; Pandemics/prevention & control; Pneumonia; Preschool; Renal Dialysis; Renal Insufficiency; transplantation; Viral/complications/prevention & control/*therapy
Creator
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Eibensteiner F; Ritschl V; Ariceta G; Jankauskiene A; Klaus G; Paglialonga F; Edefonti A; Ranchin B; Schmitt C P; Shroff R; Stefanidis C J; Walle J V; Verrina E; Vondrak K; Zurowska A; Stamm T; Aufricht C
Description
An account of the resource
BACKGROUND: COVID-19 was declared a global health emergency. Since children are less than 1% of reported cases, there is limited information to develop evidence-based practice recommendations. The objective of this study was to rapidly gather expert knowledge and experience to guide the care of children with chronic kidney disease during the COVID-19 pandemic. METHODS: A four-round multi-center Delphi exercise was conducted among 13 centers in 11 European countries of the European Pediatric Dialysis Working Group (EPDWG) between March, 16th and 20th 2020. Results were analyzed using a mixed methods qualitative approach and descriptive statistics. RESULTS: Thirteen COVID-19 specific topics of particular need for guidance were identified. Main themes encompassed testing strategies and results (n = 4), changes in use of current therapeutics (n = 3), preventive measurements of transmission and management of COVID-19 (n = 3), and changes in standard clinical care (n = 3). Patterns of center-specific responses varied according to regulations and to availability of guidelines. CONCLUSIONS: As limited quantitative evidence is available in real time during the rapid spread of the COVID-19 pandemic, qualitative expert knowledge and experience represent the best evidence available. This Delphi exercise demonstrates that use of mixed methodologies embedded in an established network of experts allowed prompt analysis of pediatric nephrologists' response to COVID-19 during this fast-emerging public health crisis. Such rapid sharing of knowledge and local practices is essential to timely and optimal guidance for medical management of specific patient groups in multi-country health care systems such as those of Europe and the US.
Identifier
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<a href="http://doi.org/10.1007/s00467-020-04584-6" target="_blank" rel="noreferrer noopener">10.1007/s00467-020-04584-6</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Adolescent
Ariceta G
Aufricht C
Child
Chronic/complications/*therapy
Coronavirus Infections/complications/prevention & control/*therapy
COVID-19
Delphi
Delphi Technique
dialysis
Edefonti A
Eibensteiner F
Europe
Evidence-based Medicine
Humans
Infant
Infection Control
Jankauskiene A
Klaus G
Paglialonga F
Pandemics
Pandemics/prevention & control
Pediatric Nephrology
Pneumonia
Preschool
Ranchin B
Renal Dialysis
Renal Insufficiency
Ritschl V
Schmitt C P
September 2020 List
Shroff R
Stamm T
Stefanidis C J
Transplantation
Verrina E
Viral/complications/prevention & control/*therapy
Vondrak K
Walle J V
Zurowska A
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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May 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2022 List
URL Address
<a href="http://doi.org/10.34067/kid.0000282021" target="_blank" rel="noreferrer noopener">http://doi.org/10.34067/kid.0000282021</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Adding Life to Their Years: The Current State of Pediatric Palliative Care in CKD
Publisher
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Kidney360
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
Adult; Child; chronic kidney disease; dialysis; end stage kidney disease; geriatric and palliative nephrology; Hospice and Palliative Care Nursing; Humans; kidney supportive care; Nephrology; Palliative Care/psychology; pediatric nephrology; pediatric palliative care; Quality of Life; Renal Insufficiency Chronic/therapy
Creator
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House TR; Wightman A
Description
An account of the resource
Despite continued advances in medical treatment, pediatric CKD remains an unremitting, burdensome condition characterized by decreased quality of life and earlier death. These burdens underscore the need for integration of pediatric palliative care (PPC) into nephrology practice. PPC is an evolving field that strives to (1) relieve physical, psychologic, social, practical, and existential suffering; (2) improve quality of life; (3) facilitate decision making; and (4) assist with care coordination in children with life-threatening or life-shortening conditions. Integration of palliative care into routine care has already begun for adults with kidney disease and children with other chronic diseases; however, similar integration has not occurred in pediatric nephrology. This review serves to provide a comprehensive definition of PPC, highlight the unmet need in pediatric nephrology and current integration efforts, discuss the state of palliative care in adult nephrology and analogous chronic pediatric disease states, and introduce future opportunities for study.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.34067/kid.0000282021" target="_blank" rel="noreferrer noopener">10.34067/kid.0000282021</a>
2021
Adult
Child
chronic kidney disease
dialysis
end stage kidney disease
geriatric and palliative nephrology
Hospice And Palliative Care Nursing
House TR
Humans
kidney supportive care
Kidney360
May 2022 List
Nephrology
Palliative Care/psychology
Pediatric Nephrology
Pediatric Palliative Care
Quality Of Life
Renal Insufficiency Chronic/therapy
Wightman A
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
February 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2019 List
URL Address
<a href="http://doi.org/10.1111/apa.14688" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/10.1111/apa.14688</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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A survey demonstrates limited palliative care structures in paediatric nephrology from the perspective of a multidisciplinary healthcare team
Publisher
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Acta Paediatr
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Children; palliative care; dialysis; chronic kidney disease; end stage renal disease
Creator
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Thumfart J; Bethe D; Wagner S; Pommer W; Rheinlander C; Muller D
Description
An account of the resource
AIM: Children and adolescents with end stage renal disease face a high morbidity and mortality. Palliative care provides a multidisciplinary approach to reduce disease burden and improve quality of life. This study evaluated concepts and current structures of palliative care from the perspective of a multidisciplinary paediatric nephrology team including physicians, nurses and psychosocial health professionals. METHODS: Evaluation was done by an online survey sent to the members of the German Society of Nephrology and to the nurse managers of German paediatric dialysis centres between April 9th 2018 and May 31th 2018. RESULTS: Out of the 52 respondents, 54% were physicians, 21% nurses and 25% psychosocial health professionals. The quality of actual palliative care service was rated as moderate (3.3 on a scale from one to six). Specialised palliative care teams (54%) and the caring paediatric nephrologist (50%) were considered as primarily responsible for palliative care. Two-thirds wished for training in palliative care. In only 15% of the respondents' centres, palliative care specialisation existed. CONCLUSION: Palliative care structures in paediatric nephrology were not sufficient in the view of the multidisciplinary healthcare team. Therefore, efforts should be taken to integrate palliative care into the routine treatment of children and adolescents with chronic kidney diseases. This article is protected by copyright. All rights reserved.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/apa.14688" target="_blank" rel="noreferrer noopener">10.1111/apa.14688</a>
2018
Acta Paediatr
Bethe D
Children
chronic kidney disease
dialysis
End Stage Renal Disease
February 2019 List
Muller D
Palliative Care
Pommer W
Rheinlander C
Thumfart J
Wagner S