1
40
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Dublin Core
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Title
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April 2024 List
Text
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April List 2024
URL Address
<a href="http://doi.org/10.1016/j.jclinepi.2024.111286" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.jclinepi.2024.111286</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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PRECIOUS demonstrated satisfactory measurement properties for assessing the quality of care for children with serious illnesses
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Journal of Clinical Epidemiology
Date
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2024
Subject
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child; adult; article; female; human; major clinical study; male; palliative therapy; hospitalization; follow up; adolescent; therapy; caregiver support; correlation coefficient; psychometry; Cronbach alpha coefficient; internal consistency; person centered care; convergent validity; exploratory factor analysis; root mean squared error; test retest reliability
Creator
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Ang FJL; Bun Cheung Y; Gandhi M; Ostbye T; Malhotra C; Malhotra R; Cristelle Chow CT; Heng Chong P; Amin Z; Teresa Tan SZ; Tewani K; Hanim Buang SN; Finkelstein EA
Description
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Objective: To determine the measurement properties of PRECIOUS, a parent-reported measure of Quality of Care (QoC) for seriously ill children across care settings and illness trajectories. Study design and setting: Parents self-administered baseline and two-week follow-up surveys online. Exploratory Factor Analysis (EFA) was used to determine PRECIOUS's factor structure and select items. Internal consistency was evaluated with Cronbach's α, test-retest reliability with intraclass correlation coefficients (ICCs), and convergent validity with Spearman's correlations between PRECIOUS scales and subscales of Measure of Processes of Care (MPOC-20) and Quality of Children's Palliative Care Instrument (QCPCI). Results: Of 152 parents [108 (71%) mothers, 44 (29%) fathers] who completed the baseline survey, 123 (81%) completed follow-up. EFA grouped PRECIOUS into 5 scales: Collaborative and goal-concordant care (12 items), Caregiver support and respectful care (15 items), Access to financial and medical resources (5 items), Reducing caregiving stressors (9 items), and Hospitalization-specific processes (4 items). Root Mean Square Error of Approximation was 0.040 and Comparative Fit Index was 0.980. Cronbach's α ranged from 0.85 to 0.96. ICCs ranged from 0.72 to 0.86. Significant correlations with MPOC-20 and QCPCI confirmed convergent validity. The original 56-item tool was reduced to 45-items. Conclusion: PRECIOUS demonstrates satisfactory measurement properties for assessing QoC for seriously ill children.
Identifier
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<a href="http://doi.org/10.1016/j.jclinepi.2024.111286" target="_blank" rel="noreferrer noopener">10.1016/j.jclinepi.2024.111286</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2024
Adolescent
Adult
Amin Z
Ang FJL
April List 2024
Article
Bun Cheung Y
Caregiver Support
Child
convergent validity
correlation coefficient
Cristelle Chow CT
Cronbach alpha coefficient
exploratory factor analysis
Female
Finkelstein EA
Follow Up
Gandhi M
Hanim Buang SN
Heng Chong P
Hospitalization
Human
Internal Consistency
Journal Of Clinical Epidemiology
Major Clinical Study
Male
Malhotra C
Malhotra R
Ostbye T
Palliative Therapy
person centered care
psychometry
root mean squared error
Teresa Tan SZ
test retest reliability
Tewani K
Therapy
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
November 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2022 List
URL Address
<a href="http://doi.org/10.1016/j.amsu.2022.104729" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.amsu.2022.104729</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Palliative Care Nurse: A Quantitative Study of Caring for Neonates at End-Of-Life Stage
Publisher
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Annals of Medicine and Surgery
Date
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2022
Subject
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Care Behavior; Health Care Quality; Intensive Care; Nurse; Nursing Care; Palliative Therapy; Terminal Care; Article; Checklist; Content Validity; Controlled Study; Correlation Coefficient; Face Validity; Human; Infant; Neonatal Intensive Care Unit; Newborn; Practice Guideline; Reliability
Creator
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Shahintab S; Nourian M; Rassouli M; Pourhoseingholi MA
Description
An account of the resource
Objective: This study aimed to evaluate the quality of the care provided to newborns at End-of-Life (EOL) stages and compare the care which is already being given to the infants admitted to the NICUs of the selected hospital in (XXX) with the existing standards. Knowing how End-of-Life nursing care is provided, compared with the standard in the terminal stage of neonates' life can provide accurate information for policies, research, and educational practices. Method(s): In this descriptive study, 100 nursing care services, provided to neonates at the EOL stages and their parents, were observed and compared to the standard checklist which had been developed based on the literature review and existing standards in 2015. The study setting included the NICUs of the four hospitals affiliated to (XXX) The Content and Face Validity of the checklist were determined based on specialists' comments. The Content Validity Index was 94.85%, and its reliability was evaluated too through the inter-rater correlation coefficient (ICC = 0.715). Result(s): Only 11.49% of EOL nursing care services were given properly and 77.92% were not given at all. Results showed that 10.59% of EOL nursing care services were performed improperly. Conclusion(s): The overall rate of accordance with the EOL nursing care standards was poor (16.78%). Nursing care given to infants and their parents at EOL stages is far from the standards. This can be due to various reasons, such as inadequate training and the lack of comprehensive guidelines.Copyright © 2022 The Authors
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.amsu.2022.104729" target="_blank" rel="noreferrer noopener">10.1016/j.amsu.2022.104729</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Article
Infant
Newborn
Nurse
Terminal Care
2022
Annals of Medicine and Surgery
care behavior
Checklist
content validity
Controlled Study
correlation coefficient
face validity
Health Care Quality
Human
Intensive Care
Neonatal Intensive Care Unit
Nourian M
November 2022 List
Nursing Care
Palliative Therapy
Pourhoseingholi MA
Practice Guideline
Rassouli M
Reliability
Shahintab S