Psychometric properties of the Turkish version of the Stress Scale for Nurses Providing End-of-Life Care for Children
child; Terminal Care; terminal care; article; controlled study; human; Psychometrics; content validity; construct validity; reliability; nurse; wellbeing; intervention study; checklist; pediatric nurse; Turkey (republic); physiological stress; confirmatory factor analysis; Cronbach alpha coefficient; internal consistency
OBJECTIVES: This study was carried out to evaluate the validity and reliability of the Stress Scale for Pediatric Nurses Performing End-of-Life Care for Children in Turkey. METHOD(S): This was a methodological study conducted with 222 pediatric nurses. Data were collected using the information form for pediatric nurses and the "stress scale for nurses performing end-of-life care for children." Content and construct validity, item analysis, confirmatory factor analysis and internal consistency were used to evaluate the data. The Global Pharmaceutical Regulatory Affairs Summit checklist was followed in this study. RESULT(S): The content validity index of the scale was 0.93. Item-total score correlation values ranged from 0.594 to 0.885. The 5-factor structure of the scale was confirmed as a result of confirmatory factor analysis. Factor loads were greater than 0.30, and fit indices were greater than 0.80. The Cronbach's alpha coefficient of the Turkish version of the scale was 0.97. SIGNIFICANCE OF RESULTS: The stress scale for nurses performing end-of-life care for children is a valid and reliable measurement tool for the Turkish sample. This scale facilitates the assessment of the stress levels of pediatric nurses who provide end-of-life care to children. Also, this scale can be used in interventional studies to improve the well-being of pediatric nurses.
Ayran G; Cevik Ozdemir HN
Palliative and Supportive Care
2023
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1017/S147895152200181X" target="_blank" rel="noreferrer noopener">10.1017/S147895152200181X</a>
Poverty and pediatric palliative care: what can we do?
Child Poverty Tool and Resource Guide; content validity; life limiting illness; Pediatric palliative care; qualitative methods; social determinants of health
It has been recognized that families of children with life-limiting health conditions struggle with significant financial demands, yet may not have awareness of resources available to them. Additionally, health care providers may not be aware of the socioeconomic needs of families they care for. This article describes a mixed-methods study examining the content validity and utility for health care providers of a poverty screening tool and companion resource guide for the pediatric palliative care population. The study found high relevance and validity of the tool. Significant barriers to implementing the screening tool in clinical practice were described by participants, including: concerns regarding time required, roles and responsibilities, and discomfort in asking about income. Implications for practice and suggestions for improving the tool are discussed. Screening and attention to the social determinants of health lie within the scope of practice of all health care providers. Social workers can play a leadership role in this work.
2014
Beaune L; Leavens A; Muskat B; Ford-Jones L; Rapoport A; Zlotnik SR; Morinis J; Chapman LA
Journal of Social Work in End-of-Life & Palliative Care
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1080/15524256.2014.906375" target="_blank" rel="noreferrer">10.1080/15524256.2014.906375</a>
Palliative Care Nurse: A Quantitative Study of Caring for Neonates at End-Of-Life Stage
Care Behavior; Health Care Quality; Intensive Care; Nurse; Nursing Care; Palliative Therapy; Terminal Care; Article; Checklist; Content Validity; Controlled Study; Correlation Coefficient; Face Validity; Human; Infant; Neonatal Intensive Care Unit; Newborn; Practice Guideline; Reliability
Objective: This study aimed to evaluate the quality of the care provided to newborns at End-of-Life (EOL) stages and compare the care which is already being given to the infants admitted to the NICUs of the selected hospital in (XXX) with the existing standards. Knowing how End-of-Life nursing care is provided, compared with the standard in the terminal stage of neonates' life can provide accurate information for policies, research, and educational practices. Method(s): In this descriptive study, 100 nursing care services, provided to neonates at the EOL stages and their parents, were observed and compared to the standard checklist which had been developed based on the literature review and existing standards in 2015. The study setting included the NICUs of the four hospitals affiliated to (XXX) The Content and Face Validity of the checklist were determined based on specialists' comments. The Content Validity Index was 94.85%, and its reliability was evaluated too through the inter-rater correlation coefficient (ICC = 0.715). Result(s): Only 11.49% of EOL nursing care services were given properly and 77.92% were not given at all. Results showed that 10.59% of EOL nursing care services were performed improperly. Conclusion(s): The overall rate of accordance with the EOL nursing care standards was poor (16.78%). Nursing care given to infants and their parents at EOL stages is far from the standards. This can be due to various reasons, such as inadequate training and the lack of comprehensive guidelines.Copyright © 2022 The Authors
Shahintab S; Nourian M; Rassouli M; Pourhoseingholi MA
Annals of Medicine and Surgery
2022
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1016/j.amsu.2022.104729" target="_blank" rel="noreferrer noopener">10.1016/j.amsu.2022.104729</a>