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Dublin Core
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Title
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2018 Oncology List
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Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/10.1007/s00431-018-3170-6" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1007/s00431-018-3170-6</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The timing and circumstances of the implementation of pediatric palliative care in Hungarian pediatric oncology
Publisher
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European Journal of Pediatrics
Date
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2018
Subject
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child death; parent; family; terminal care; priority journal; psychologist; doctor patient relation; constructive feedback; childhood cancer; cancer palliative therapy; cohort analysis; oncologist; structured interview; human; article; female; male; adult; exploratory research; time to treatment; ambivalence; data analysis software; Hungarian (citizen); Hungary
Creator
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Nyiro J; Zorgo S; Eniko F; Hegedus K; Hauser P
Description
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Despite the continuous improvement of pediatric palliative care, medical professionals still face various barriers regarding its implementation; our aim was to investigate this question in Hungarian pediatric oncology practice. Structured interviews were carried out in person with physicians from the Hungarian Pediatric Oncology Group (n = 22). Codes were generated inductively with the aid of Atlas.ti 6.0 software. Most physicians placed the palliative care discussion at the end of curative treatment (n = 21) and preferred to conduct it in a team setting (n = 18), mainly in the presence of a psychologist. Preparing parents for the child's death can occur during the palliative care discussion (n = 3), in the child's final days/h (n = 6), gradually (n = 10), or never (n = 3). There are words consciously utilized and avoided during this discussion, with the word "death" proving to be the most ambivalent (utilized n = 5, avoided n = 6). Conclusions: There is no widely accepted unified practice among pediatric oncologists concerning the implementation of palliative care in Hungary. Despite the international recommendation, the common practice of timing is still at the end of curative treatment. Physicians rely on multidisciplinary teamwork, where the psychologist's role is the most prominent in this discussion.What is Known:* There is an international consensus that palliative care should commence at the diagnosis of a pediatric malignant disease regardless of illness outcome.* Barriers to the early implementation of palliative care in pediatric oncology involve resource-based and attitudinal factors.What is New:* In Hungary, where pediatric oncologists are sole decision-makers, early implementation of palliative care is rare.* There is a strong preference among physicians for working within a team, while also asserting that presence of team members may decrease the level of intimacy.
Identifier
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<a href="http://doi.org/%2010.1007/s00431-018-3170-6" target="_blank" rel="noreferrer noopener">10.1007/s00431-018-3170-6</a>
2018
Adult
ambivalence
Article
Cancer Palliative Therapy
Child Death
Childhood Cancer
Cohort Analysis
constructive feedback
Data Analysis Software
Doctor Patient Relation
Eniko F
European Journal of Pediatrics
Exploratory Research
Family
Female
Hauser P
Hegedus K
Human
Hungarian (citizen)
Hungary
Male
Nyiro J
Oncologist
Oncology 2018 List
Parent
Priority Journal
Psychologist
Structured Interview
Terminal Care
time to treatment
Zorgo S