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Dublin Core
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Title
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June 2022 List
Text
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Citation List Month
June 2022 List
URL Address
<a href="http://doi.org/10.1186/s12904-022-00933-4" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12904-022-00933-4</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Making room for life and death at the same time - a qualitative study of health and social care professionals' understanding and use of the concept of paediatric palliative care
Publisher
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BMC Palliative Care
Date
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2022
Subject
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Alleviation; Child; Concept; Health care professionals; Hospice and Palliative Care Nursing; Humans; Life limiting; Paediatric; Palliative care; Palliative Care/psychology; Pediatric; Ppc; Qualitative Research; Quality of Life; Social Support; Terminal care
Creator
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Winger A; Früh EA; Holmen H; Kvarme LG; Lee A; Lorentsen VB; Misvær N; Riiser K; Steindal SA
Description
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BACKGROUND: The concept of pediatric palliative care (PPC) is applied differently within the healthcare system and among healthcare professionals (HCPs). To our knowledge, no studies have investigated how multidisciplinary HCPs understand the concept of PPC and the aim of this study was to explore the concept of PPC from the view of HCP in a paediatric setting. METHODS: We employed an explorative and descriptive design and conducted four focus groups with a total of 21 HCPs working in hospitals with children in palliative care. The data were analysed using qualitative content analysis. RESULTS: The data analysis of the concept of pediatric palliative care resulted in two themes. The first theme "A frightening concept that evokes negative emotions," contains categories to explore the meaning, named "An unfamiliar and not meaningful concept, "A concept still associated with death and dying" and "Healthcare professionals' responsibility for introducing and using the concept and, to obtain a common meaning." The second theme was named "A broad and complementary concept," containing the categories "Total care for the child and the family," "Making room for life and death at the same time" and "The meaning of alleviation and palliative care." CONCLUSIONS: The included HCPs reflected differently around PPC but most of them highlighted quality of life, total care for the child and the child's family and interdisciplinary collaboration as core elements. Attention to and knowledge among HCPs might change the perception about PPC from a frightening concept to one that is accepted by all parties, implemented in practice and used as intended. However, our study reveals that there is still some work to do before PPC is understood and accepted by all those involved.
Identifier
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<a href="http://doi.org/10.1186/s12904-022-00933-4" target="_blank" rel="noreferrer noopener">10.1186/s12904-022-00933-4</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Alleviation
April 2022 List
BMC Palliative Care
Child
concept
Früh EA
Health care professionals
Holmen H
Hospice And Palliative Care Nursing
Humans
Kvarme LG
Lee A
Life Limiting
Lorentsen VB
Misvær N
Paediatric
Palliative Care
Palliative Care/psychology
Pediatric
Ppc
Qualitative Research
Quality Of Life
Riiser K
Social Support
Steindal SA
Terminal Care
Winger A