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Dublin Core
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Title
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June 2021 List
Text
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Citation List Month
June 2021 List
URL Address
<a href="http://doi.org/10.3390/children8030218" target="_blank" rel="noreferrer noopener">http://doi.org/10.3390/children8030218</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Keeping Hope Possible Toolkit: The Development and Evaluation of a Psychosocial Intervention for Parents of Infants, Children and Adolescents with Life Limiting and Life Threatening Illnesses
Publisher
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Children
Date
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2021
Subject
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children; complex healthcare needs; hope; intervention; life limiting illness; life threatening illness; parents; psychosocial
Creator
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Bally JMG; Burles M; Spurr S; Holtslander L; Hodgson-Viden H; Sinha R; Zimmer M
Description
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BACKGROUND: Globally, many infants and children are diagnosed with illnesses that impose limitations on their well-being and life course trajectory. Children's care becomes the central focus of family life. Inadequate support for parents is detrimental to their well-being and management of their child's care and support needs. METHODS: The second phase of this evaluation study followed a quasi-experimental crossover design to test a theory-based psychosocial intervention, the Keeping Hope Possible Toolkit. Fifty-nine participants were randomly assigned to one of two sequence groups, with measures of hope, feelings of control, distress, and uncertainty completed pre- and post-intervention, and at a three-month follow-up. Qualitative interviews sought to assess participant experiences with the intervention, along with acceptability and feasibility. RESULTS: Significant influence on parental distress was found, and the qualitative findings reveal benefits of the intervention for parental wellbeing. The intervention effectively offered practical and emotional support to diverse family caregivers. CONCLUSIONS: The evidence-informed KHP intervention can be used by healthcare providers to intervene with family caregivers to support their dynamic emotions including hope, need to live in the moment and remember self, and social preferences. In doing so, parents' critical caregiving activities can be sustained and their child's health and wellbeing optimized.
Identifier
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<a href="http://doi.org/10.3390/children8030218" target="_blank" rel="noreferrer noopener">10.3390/children8030218</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Bally JMG
Burles M
Children
complex healthcare needs
Hodgson-Viden H
Holtslander L
Hope
Intervention
June 2021 List
life limiting illness
Life Threatening illness
Parents
psychosocial
Sinha R
Spurr S
Zimmer M