1
40
3
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://adc.bmj.com/content/85/6/460" target="_blank" rel="noreferrer">http://adc.bmj.com/content/85/6/460</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Pain in cognitively impaired, non-communicating children
Publisher
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Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Pain; cognitive impairment; non-communicating
Creator
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Stallard P; Williams L; Lenton S; Velleman R
Description
An account of the resource
AIM To detail the everyday occurrence of pain in non-communicating children with cognitive impairment. METHODS Thirty four parents of cognitively impaired verbally non-communicating children completed pain diaries over a two week period. Each day, for five defined periods, parents rated whether their child had been in pain, and if so, its severity and duration. RESULTS Twenty five (73.5%) children experienced pain on at least one day, with moderate or severe levels of pain being experienced by 23 (67.6%). Four children (11.7%) experienced moderate or severe pain lasting longer than 30 minutes on five or more days. No child was receiving active pain management. CONCLUSIONS Everyday pain in children with severe cognitive impairment is common, yet is rarely actively treated.
2001-12
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2001
Archives of Disease in Childhood
Backlog
cognitive impairment
Journal Article
Lenton S
non-communicating
Pain
Stallard P
Velleman R
Williams L
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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March 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2018 List
URL Address
<a href="http://doi.org/10.3390/children5010013" target="_blank" rel="noreferrer">http://doi.org/10.3390/children5010013</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Total Pain' in Children with Severe Neurological Impairment
Publisher
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Children (basel)
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
cerebral palsy; Chronic Pain; cognitive impairment; neurological impairment; Paediatric palliative care; persistent pain; 'Total Pain'
Creator
An entity primarily responsible for making the resource
Warlow TA; Hain RDW
Description
An account of the resource
Many children with palliative care needs experience difficulty in managing pain. Perhaps none more so than those with severe neurological impairment. For many years; behaviours in these children were misunderstood. As a result; pain was poorly recognised and inadequately managed. Significant advances have been made in the assessment and management of pain in this challenging group of patients. We summarise these advances; drawing on our own experience working with infants; children and young adults with palliative care needs within a UK tertiary paediatric palliative care service. We expand on the recent understanding of 'Total Pain'; applying a holistic approach to pain assessment and management in children with severe neurological impairment.
2018-01
Identifier
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<a href="http://doi.org/10.3390/children5010013" target="_blank" rel="noreferrer">10.3390/children5010013</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
'Total Pain'
2018
Cerebral Palsy
Children (Basel)
Chronic Pain
cognitive impairment
Hain RDW
March 2018 List
neurological impairment
paediatric palliative care
persistent pain
Warlow TA
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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May 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2022 List
URL Address
<a href="http://doi.org/10.1002/pne2.12074" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/pne2.12074</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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"Communicating Lily's Pain": A reflective narrative commentary about co-creating a resource to provoke thinking and change about assessing and managing the pain of children with profound cognitive impairment
Publisher
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Paediatric and Neonatal Pain
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Children; Co-creation; Cognitive impairment; Narrative; Pain; Pediatrics
Creator
An entity primarily responsible for making the resource
Carter B; Young R; Munro J
Description
An account of the resource
This paper draws together about 20 years of research work and discovery and the development of a resource about pain assessment and management in children with profound cognitive impairment. The animation tells the story of an imagined child called Lily and the skills her mother uses and the challenges that her mother faces in assessing and managing Lily's pain. The animation is built on stories drawn from qualitative research findings, conversations while in clinical practice and with members of the general public, parent advisers and other sources. Most of the "evidence" came from stories shared by parents and healthcare professionals. This paper draws on some elements of socio-narratology and is predicated on the basis that stories are important and they can act on and with us. By using an animation to tell Lily's story, the intention was to communicate research findings to a wider and more diverse audience than the typical readership of an academic journal. The intention was to act in and on people's consciousness about children's pain and to strengthen relationships and create bonds between clinicians, parents, and children in pain to make their dialog more social, connected, and meaningful. All three of us-the researcher, the writer, and the animator-have been marked and "re-shaped" by our work related to creating Lily; we have learned more about children like Lily and their mothers, and we have learned more about ourselves and our humanity. This animation is still a story in progress, a story 'in the wild', a story (and a resource) we would like you to re-tell and share. The story of Lily's pain aimed to change the lives of parents and children and professionals. Our hope is that you can be part of that change. Copyright © 2022 The Authors. Paediatric and Neonatal Pain published by John Wiley & Sons Ltd.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pne2.12074" target="_blank" rel="noreferrer noopener">10.1002/pne2.12074</a>
2022
Carter B
Children
Co-creation
cognitive impairment
May 2022 List
Munro J
Narrative
Paediatric and Neonatal Pain
Pain
Pediatrics
Young R