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Dublin Core
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Title
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March 2022 List
Text
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Citation List Month
March 2022 List
URL Address
<a href="http://doi.org/10.1007/s40653-021-00428-z" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s40653-021-00428-z</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Health Care Providers' Perspectives on COVID-19 and Medical Neglect in Children with Life-Threatening Complex Chronic Conditions
Publisher
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Journal of Child & Adolescent Trauma
Date
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2022
Subject
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children with life-threatening conditions; complex chronic conditions; Covid-19; medical neglect; perspectives of health care professionals
Creator
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Cleveland RW; Deming RS; Helton G; Wilson CR; Ullrich CK
Description
An account of the resource
PURPOSE: Little is known regarding medical neglect in children with Life-Threatening Complex Chronic Conditions (LT-CCCs). We examined the impact of COVID-19 on concern for medical neglect in this population. METHODS: Qualitative interview study of multi-disciplinary health care providers (HCPs) from critical care, palliative care, and complex care services on the topic of medical neglect in children with LT-CCCs. We used inductive thematic analysis to generate themes. Findings presented herein are derived from a sub-analysis of the larger study that focused specifically on discussion of COVID-19 by HCPs. RESULTS: 9 of the 20 HCPs interviewed mentioned COVID-19 as influencing situations of potential medical neglect. These 9 represent all disciplines and teams. Interviewees reported COVID-19 increased burden on parents and likelihood of medical neglect due to: 1) Familial distancing from medical and social support and, 2) Changes to medical care delivery that impaired the medical community's ability to engage and support families. CONCLUSIONS: The COVID-19 pandemic has exposed the fragility of the medical and social systems that supports families of children with LT-CCCs. These findings are consistent with previous literature that suggest that the COVID-19 pandemic has increased the risk for child maltreatment. It additionally highlights the vulnerability of this patient population.
Identifier
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<a href="http://doi.org/10.1007/s40653-021-00428-z" target="_blank" rel="noreferrer noopener">10.1007/s40653-021-00428-z</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
children with life-threatening conditions
Cleveland RW
Complex Chronic Conditions
COVID-19
Deming RS
Helton G
Journal of Child & Adolescent Trauma
March 2022 List
medical neglect
Perspectives Of Health Care Professionals
Ullrich CK
Wilson CR
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2019 List
URL Address
<a href="http://doi.org/10.1177/1049909119860249" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909119860249</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Effectiveness of a Volunteer Training Program on the Learning Support of Children in Hospice Palliative Care
Publisher
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American Journal of Hospice and Palliative Care
Date
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2019
Subject
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pediatric palliative care; children with life-threatening conditions; children's hospice; learning support; sharing experiences; volunteers
Creator
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Niinomi K; Soejima M; Hiraga K; Kodama S; Okazaki S; Nakao S
Description
An account of the resource
BACKGROUND: Volunteers are expected to play a key role in children's hospice. However, there is a lack of information about how to cultivate effective volunteer training programs. OBJECTIVE: To verify the effect of a training program on volunteers' confidence in providing learning support and sharing experiences with children with life-threatening conditions and their families in a children's hospice. METHODS: In this pre-post study, participants were 48 undergraduate and graduate students from 3 universities in Japan. They received 5 lectures on children's hospice learning support. They evaluated the training program by rating their self-confidence in meeting each of the 15 program goals on a questionnaire. RESULTS: An exploratory factor analysis of the questionnaire yielded 12 goals in 4 factors: understanding of one's own and others' mental state, accommodating the learning needs of children with life-threatening conditions, understanding and accommodating the physical state of children with life-threatening conditions, and understanding the significance of children's hospice. A paired t test revealed that participants' self-confidence had increased significantly in 3 of these 4 factors after the program. However, the score for accommodating the learning needs of children with life-threatening conditions decreased but not significantly. CONCLUSION: Although it needs some improvements, the program was effective for improving volunteers' self-confidence in and understanding of learning support and sharing experiences with children with life-threatening conditions.
Identifier
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<a href="http://doi.org/10.1177/1049909119860249" target="_blank" rel="noreferrer noopener">10.1177/1049909119860249</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
American Journal Of Hospice And Palliative Care
children with life-threatening conditions
Children's Hospice
Hiraga K
Kodama S
learning support
Nakao S
Niinomi K
Okazaki S
Pediatric Palliative Care
September 2019 List
sharing experiences
Soejima M
Volunteers