1
40
1
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Special Edition #1 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Special Edition #1 2022 List
URL Address
<a href="http://doi.org/10.1177/13634593211046850" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/13634593211046850</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Parental experiences of the liminal period of a child's fatal illness
Publisher
An entity responsible for making the resource available
Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
child; grounded theory; cancer and palliative care; death dying and bereavement; experiencing illness and narratives; patient-physician relationship
Creator
An entity primarily responsible for making the resource
Janusz B; Walkiewicz M
Description
An account of the resource
The article offers a description of parents' experiences of their child's ultimately fatal illness as it unfolds over the successive stages of medical treatment, in the context of the liminality theory. The parents (N = 23) were interviewed 1-4 years after their child's death. The research method involved conducting narrative interviews with parents in order to obtain a spontaneous narration of the child's illness as it unfolded. The grounded theory approach, including the narrative and performative aspects of such parental utterances, was applied as the main research strategy. The results provide insight into the main areas and processes of common parental experiences, such as the pervasive sense of becoming trapped in timelessness and ambiguity. Further states reported by parents included oscillating between a distancing stance and involvement, and a dualistic relationship with medical staff and the medical system: between alignment and disharmony. The study indicates the importance of treating delivery of such a diagnosis as a process rather than as a one-time event. The sense of ambiguity is treated as a kind of necessary parental coping mechanism, whilst the sense of timelessness gives parents a unique sense of time in which they do not have to think about the child's potentially imminent death.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/13634593211046850" target="_blank" rel="noreferrer noopener">10.1177/13634593211046850</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
2022 Special Edition 1 - Parent Perspectives
cancer and palliative care
Child
death dying and bereavement
experiencing illness and narratives
Grounded Theory
Health
Janusz B
patient-physician relationship
Walkiewicz M