1
40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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August 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2020 List
URL Address
<a href="http://doi.org/10.1055/a-1179-0530" target="_blank" rel="noreferrer noopener">http://doi.org/10.1055/a-1179-0530</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Extending the Concept of Advance Care Planning to the Perinatal Period
Publisher
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Klinische Padiatrie
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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palliative care; pregnancy; life-limiting disease; neonate; birth plan; prenatal counselling
Creator
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Garten L; von der Hude K; Strahleck T; Krones T
Description
An account of the resource
Easier access to prenatal diagnostic procedures led to its widespread use as a screening measure. Hence, today it is more common for life-limiting illnesses to be diagnosed during fetal life. The concept of Advance Care Planning (ACP) provides a framework for caregivers, families and their multidisciplinary teams to anticipate and plan ahead for potential future medical decisions so that the affected children are reliably treated according to their parents' individual values and wishes. In the perinatal context, ACP also has the potential to tackle the needs of unborn or newborn children with life-limiting illnesses and their families better, avoid unnecessary and burdensome measures and focus upon goals that are valuable and meaningful to both child and family.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1055/a-1179-0530" target="_blank" rel="noreferrer noopener">10.1055/a-1179-0530</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
August 2020 List
birth plan
Garten L
Klinische Pädiatrie
Krones T
life-limiting disease
Neonate
Palliative Care
Pregnancy
prenatal counselling
Strahleck T
von der Hude K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
November 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2020 List
URL Address
<a href="http://doi.org/10.3389/fped.2020.00556" target="_blank" rel="noreferrer noopener">http://doi.org/10.3389/fped.2020.00556</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Perinatal Palliative Care Birth Planning as Advance Care Planning
Publisher
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Frontiers in Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
advance care planning; birth plan; life-limiting diagnosis; neonatal; perinatal palliative care
Creator
An entity primarily responsible for making the resource
Cortezzo D E; Ellis K; Schlegel A
Description
An account of the resource
Purpose of Review: A significant number of pregnancies are complicated by a fetus with a life-limiting diagnosis. As diagnoses are made earlier in the pregnancy, families experience anticipatory grief and are faced with navigating goals of care for a baby that has yet to be born. With the support of the care team, families can begin to grieve, plan, and make meaningful memories during the duration of the pregnancy, the birth of their baby, and life of the child. Creating a palliative care birth plan, which expands beyond the traditional concept for delivery planning to include prenatal, perinatal, and neonatal care has become an important method for parents to process the diagnosis, for parents to document their wishes, and for members of the care team to communicate with the goal of supporting and enhancing the experience of the family. This articles reviews recent and relevant literature on the importance of birth planning and the role of perinatal palliative care when a life-limiting fetal diagnosis is made. Recent Findings: The process of birth planning is an important component of perinatal palliative care. Through this process, families can express their fears, values, hopes, and wishes. It also offers an opportunity for providers to communicate these wishes for the remainder of the pregnancy, the delivery, birth, and time afterwards. This has been demonstrated to decrease maternal stress and promote family centered care. Summary: Perinatal birth planning is an important component of perinatal palliative care when a fetus has a life-limiting diagnosis. The process of birth planning can be supportive and therapeutic as well as an important communication tool. With multiple practices and designs of perinatal palliative care programs, there are no standard tools even though important components have been identified. Ultimately, the strategies outlined here can be used as advance care planning tools.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3389/fped.2020.00556" target="_blank" rel="noreferrer noopener">10.3389/fped.2020.00556</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Advance Care Planning
birth plan
Cortezzo D E
Ellis K
Frontiers in Pediatrics
life-limiting diagnosis
Neonatal
November 2020 List
Perinatal Palliative Care
Schlegel A
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September List 2023
URL Address
<a href="http://doi.org/10.1002/nop2.1928" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1002/nop2.1928</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parental experiences of prenatal education when preparing for labor and birth of infant with a lethal diagnosis
Publisher
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Nursing Open
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Infant; perinatal palliative care; birth plan; life-limiting fetal condition; perinatal palliative education; prenatal classes
Creator
An entity primarily responsible for making the resource
Tataj-Puzyna U; Baranowska B; Szlendak B; Szabat M; Węgrzynowska M
Description
An account of the resource
AIM: The aim of this study was to describe the unique experiences of parents facing a Life Limiting Fetal Conditions (LLFC) diagnosis, who chose to continue with their pregnancy, as they prepare for childbirth through individual and group prenatal education. DESIGN: A qualitative study. METHODS: We employed the phenomenological approach and the Colaizzi strategy to analyse semi-structured interviews. Thirteen persons were interviewed. The participants were couples (n = 6) and women (n = 7) who received LLFC and were preparing for birth. RESULTS: We described three main paths of prenatal education chosen by parents with LLFC: 'Searching for normality' concerned people participating in conventional prenatal classes (AC) who tried to avoid confronting the situation they faced; 'Searching for communitas' concerned the participation in special AC selected for the opportunity of sharing experiences; 'Searching for an individual way' concerned people who resorted to individual preparation for childbirth, often as a result of delayed planning. Parents should have a choice of various paths of birth preparation, that best meet their preferences.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/nop2.1928" target="_blank" rel="noreferrer noopener">10.1002/nop2.1928</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Baranowska B
birth plan
Infant
life-limiting fetal condition
Nursing Open
Perinatal Palliative Care
perinatal palliative education
prenatal classes
September List 2056
Szabat M
Szlendak B
Tataj-Puzyna U
Węgrzynowska M