<?xml version="1.0" encoding="UTF-8"?>
<itemContainer xmlns="http://omeka.org/schemas/omeka-xml/v5" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://omeka.org/schemas/omeka-xml/v5 http://omeka.org/schemas/omeka-xml/v5/omeka-xml-5-0.xsd" uri="https://pedpalascnetlibrary.omeka.net/items/browse?tags=as+an+awareness+and+acceptance+that+slowly+develops.+New+models+of+care+that+incorporate+palliative+care+throughout+the+disease+trajectory+are+recommended.&amp;sort_field=added&amp;sort_dir=d&amp;output=omeka-xml" accessDate="2026-06-14T15:25:38-04:00">
  <miscellaneousContainer>
    <pagination>
      <pageNumber>1</pageNumber>
      <perPage>40</perPage>
      <totalResults>1</totalResults>
    </pagination>
  </miscellaneousContainer>
  <item itemId="13481" public="1" featured="0">
    <itemType itemTypeId="1">
      <name>Text</name>
      <description>A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.</description>
      <elementContainer>
        <element elementId="53">
          <name>Citation List Month</name>
          <description/>
          <elementTextContainer>
            <elementText elementTextId="89981">
              <text>Backlog</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="56">
          <name>URL Address</name>
          <description/>
          <elementTextContainer>
            <elementText elementTextId="89988">
              <text>&lt;a href="http://doi.org/10.1111/j.1365-2354.2005.00520.x" target="_blank" rel="noreferrer"&gt;http://doi.org/10.1111/j.1365-2354.2005.00520.x&lt;/a&gt;</text>
            </elementText>
          </elementTextContainer>
        </element>
      </elementContainer>
    </itemType>
    <elementSetContainer>
      <elementSet elementSetId="1">
        <name>Dublin Core</name>
        <description>The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.</description>
        <elementContainer>
          <element elementId="50">
            <name>Title</name>
            <description>A name given to the resource</description>
            <elementTextContainer>
              <elementText elementTextId="89982">
                <text>When a child cannot be cured - reflections of health professionals</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="45">
            <name>Publisher</name>
            <description>An entity responsible for making the resource available</description>
            <elementTextContainer>
              <elementText elementTextId="89983">
                <text>European Journal Of Cancer Care</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="40">
            <name>Date</name>
            <description>A point or period of time associated with an event in the lifecycle of the resource</description>
            <elementTextContainer>
              <elementText elementTextId="89984">
                <text>2005</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="49">
            <name>Subject</name>
            <description>The topic of the resource</description>
            <elementTextContainer>
              <elementText elementTextId="89985">
                <text>Adaptation; PedPal Lit; as an awareness and acceptance that slowly develops. New models of care that incorporate palliative care throughout the disease trajectory are recommended.; especially following relapse where there is reduced clarity surrounding the child's outcome. Prognostic uncertainty and continued hope for survival make the shift to palliation difficult; PsychologicalAttitude of Health Personnel Attitude to Health Child Humans Medical Oncology Neoplasms/mortality/psychology/therapy Oncologic Nursing Palliative Care/psychology Prognosis Social Work Treatment Failure Uncertainty; raising questions about the applicability of traditional palliative care models for these children and their families. Decision making in this context is complicated by a lack of clarity; uncertainty and continued hope. Shifting the focus of care from cure to palliation is not experienced as a discrete event but rather</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="39">
            <name>Creator</name>
            <description>An entity primarily responsible for making the resource</description>
            <elementTextContainer>
              <elementText elementTextId="89986">
                <text>De Graves S; Aranda S</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="43">
            <name>Identifier</name>
            <description>An unambiguous reference to the resource within a given context</description>
            <elementTextContainer>
              <elementText elementTextId="89987">
                <text>&lt;a href="http://doi.org/10.1111/j.1365-2354.2005.00520.x" target="_blank" rel="noreferrer"&gt;10.1111/j.1365-2354.2005.00520.x&lt;/a&gt;</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="47">
            <name>Rights</name>
            <description>Information about rights held in and over the resource</description>
            <elementTextContainer>
              <elementText elementTextId="89989">
                <text>Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="51">
            <name>Type</name>
            <description>The nature or genre of the resource</description>
            <elementTextContainer>
              <elementText elementTextId="89990">
                <text>Journal Article</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="41">
            <name>Description</name>
            <description>An account of the resource</description>
            <elementTextContainer>
              <elementText elementTextId="89994">
                <text>2005</text>
              </elementText>
            </elementTextContainer>
          </element>
        </elementContainer>
      </elementSet>
    </elementSetContainer>
    <tagContainer>
      <tag tagId="5094">
        <name>2005</name>
      </tag>
      <tag tagId="131">
        <name>Adaptation</name>
      </tag>
      <tag tagId="14260">
        <name>Aranda S</name>
      </tag>
      <tag tagId="19102">
        <name>as an awareness and acceptance that slowly develops. New models of care that incorporate palliative care throughout the disease trajectory are recommended.</name>
      </tag>
      <tag tagId="7679">
        <name>Backlog</name>
      </tag>
      <tag tagId="19107">
        <name>De Graves S</name>
      </tag>
      <tag tagId="19103">
        <name>especially following relapse where there is reduced clarity surrounding the child's outcome. Prognostic uncertainty and continued hope for survival make the shift to palliation difficult</name>
      </tag>
      <tag tagId="8968">
        <name>European Journal Of Cancer Care</name>
      </tag>
      <tag tagId="7682">
        <name>Journal Article</name>
      </tag>
      <tag tagId="14212">
        <name>PedPal Lit</name>
      </tag>
      <tag tagId="19104">
        <name>PsychologicalAttitude of Health Personnel Attitude to Health Child Humans Medical Oncology Neoplasms/mortality/psychology/therapy Oncologic Nursing Palliative Care/psychology Prognosis Social Work Treatment Failure Uncertainty</name>
      </tag>
      <tag tagId="19105">
        <name>raising questions about the applicability of traditional palliative care models for these children and their families. Decision making in this context is complicated by a lack of clarity</name>
      </tag>
      <tag tagId="19106">
        <name>uncertainty and continued hope. Shifting the focus of care from cure to palliation is not experienced as a discrete event but rather</name>
      </tag>
    </tagContainer>
  </item>
</itemContainer>
