1 40 2 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource March 2023 List Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month March List 2023 URL Address <a href="http://doi.org/https://dx.doi.org/10.1002/pbc.29952" target="_blank" rel="noreferrer noopener"> http://doi.org/https://dx.doi.org/10.1002/pbc.29952</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Bereaved Parents' Perspective on Communication of Transition to Palliative Care in Pediatric Oncology - Hungarian Experience Publisher An entity responsible for making the resource available Pediatric Blood and Cancer Date A point or period of time associated with an event in the lifecycle of the resource 2022 Subject The topic of the resource Bereavement; Child; childhood cancer; clinical article; communication protocol; conference abstract; consultation; Female; genetic transcription; Human; Hungary; Male; nonverbal communication; Palliative Therapy; semi structured interview; Terminal Care Creator An entity primarily responsible for making the resource Foldesi E; Zorgo S; Nyiro J; Hegedus K; Hauser P Description An account of the resource Background and Aims: Transition to palliative care (PC) is a critical aspect of pediatric oncology requiring a high level of communication skills from doctors, which could be best judged by parents of children died in cancer. Our aim was to explore parents' perspectives regarding the timing of the consultation on implementing PC, as well as facets of verbal and non-verbal communication in Hungary. Method(s): Semi-structured interviews were conducted with parents who had lost their child to cancer within the past 1-5 years. Interview transcripts (n=23) were scrutinized with Interpretative Phenomenological Analysis. Result(s): Parents frequently associated palliation with end-of-life care and clearly delimited the transition to PC after curative treatments had been exhausted. Parents were ambivalent regarding using the word "death" during this consultation and often did not receive information on what to expect (e.g., regarding symptoms) and who to turn to for further information or support (e.g., concerning bereavement). Conclusion(s): Although significant progress could be observed in the organization of pediatric palliative care in Hungary, there is still no widely accepted communication method for communication of transition to sole PC. There is a need for a culturally-sensitive approach to refining recommendations on word-use and communication protocol in pediatric PC also in Hungary. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/https://dx.doi.org/10.1002/pbc.29952" target="_blank" rel="noreferrer noopener">https://dx.doi.org/10.1002/pbc.29952</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2022 Bereavement Child Childhood Cancer Clinical Article communication protocol conference abstract Consultation Female Foldesi E genetic transcription Hauser P Hegedus K Human Hungary Male March List 2023 Nonverbal Communication Nyiro J Palliative Therapy Pediatric Blood and Cancer Semi Structured Interview Terminal Care Zorgo S Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oncology Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month Oncology 2017 List URL Address <a href="http://doi.org/10.1556/650.2017.30815" target="_blank" rel="noreferrer">http://doi.org/10.1556/650.2017.30815</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource [Difficulties in communication with parents of pediatric cancer patients during the transition to palliative care] Publisher An entity responsible for making the resource available Orvosi Hetilap Date A point or period of time associated with an event in the lifecycle of the resource 2017 Subject The topic of the resource Attitude Of Health Personnel; Cancer Palliative Therapy; Childhood Cancer; Communication Barrier; Communication Barriers; Critical Illness/nu [nursing]; Palliative Care/mt [methods]; Parental Attitude; Physician-patient Relations; Article; Cancer Mortality; Cancer Patient; Cancer Therapy; Child; Critical Illness/px [psychology]; Disease Management; Dying; Empathy; Female; Human; Humans; Interpersonal Communication; Medical Expert; Oncologist; Palliative Care/px [psychology]; Parent-child Relations; Parents/px [psychology]; Pediatrician; Psychologist; Quality Of Health Care; Self Defense; Structured Interview Creator An entity primarily responsible for making the resource Nyiro J; Hauser P; Zorgo S; Hegedus K Description An account of the resource INTRODUCTION: Adequate communication by medical personnel is especially important at certain points during the treatment of childhood cancer patients. AIM: To investigate the timing and manner of communication with parents concerning the introduction of palliative care in pediatric oncology. METHOD: Structured interviews, containing 14 questions, were carried out with physicians working in pediatric oncology (n = 22). Codes were generated inductively with the aid of Atlas.ti 6.0 software. RESULTS: Interviews show a tendency of a one-step transition to palliative care following curative therapy. Another expert is usually involved in communication, most likely a psychologist. Regarding communication, there are expressions utilized or avoided, such as expressing clarity, self-defense and empathy. The communication of death and dying was the most contradictory. CONCLUSION: This was the first investigation regarding communication in pediatric palliative care in Hungary. Our results show that a modern perspective of palliative communication is present, but necessitates more time to become entrenched. Orv Hetil. 2017; 158(30): 1175-1181. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1556/650.2017.30815" target="_blank" rel="noreferrer">10.1556/650.2017.30815</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2017 Article Attitude Of Health Personnel Cancer Mortality Cancer Palliative Therapy Cancer Patient Cancer Therapy Child Childhood Cancer Communication Barrier Communication Barriers Critical Illness/nu [nursing] Critical Illness/px [psychology] Disease Management Dying Empathy Female Hauser P Hegedus K Human Humans Interpersonal Communication Medical Expert Nyiro J Oncologist Oncology 2017 List Orvosi Hetilap Palliative Care/mt [methods] Palliative Care/px [psychology] Parent-child Relations Parental Attitude Parents/px [psychology] Pediatrician Physician-patient Relations Psychologist Quality Of Health Care Self Defense Structured Interview Zorgo S