1
40
2
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2018 List
URL Address
<a href="http://doi.org/10.1136/medethics-2018-104896" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/medethics-2018-104896</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Medical Assistance in Dying at a paediatric hospital
Publisher
An entity responsible for making the resource available
Journal of Medical Ethics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Creator
An entity primarily responsible for making the resource
DeMichelis C; Zlotnik SR; Rapoport A
Description
An account of the resource
This article explores the ethical challenges of providing Medical Assistance in Dying (MAID) in a paediatric setting. More specifically, we focus on the theoretical questions that came to light when we were asked to develop a policy for responding to MAID requests at our tertiary paediatric institution. We illuminate a central point of conceptual confusion about the nature of MAID that emerges at the level of practice, and explore the various entailments for clinicians and patients that would flow from different understandings. Finally, we consider the ethical challenges of building policy on what is still an extremely controversial social practice. While MAID is currently available to capable patients in Canada who are 18 years or older—a small but important subsection of the population our hospital serves—we write our policy with an eye to the near future when capable young people may gain access to MAID. We propose that an opportunity exists for MAID-providing institutions to reduce social stigma surrounding this practice, but not without potentially serious consequences for practitioners and institutions themselves. Thus, this paper is intended as a road map through the still-emerging legal and ethical landscape of paediatric MAID. We offer a view of the roads taken and considered along the way, and our justifications for travelling the paths we chose. By providing a record of our in-progress thinking, we hope to stimulate wider discussion about the issues and questions encountered in this work.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/medethics-2018-104896" target="_blank" rel="noreferrer noopener">10.1136/medethics-2018-104896</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here.
2018
DeMichelis C
Journal of Medical Ethics
October 2018 List
Rapoport A
September 2018 List
Zlotnik SR
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/15524256.2014.906375" target="_blank" rel="noreferrer">http://doi.org/10.1080/15524256.2014.906375</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Poverty and pediatric palliative care: what can we do?
Publisher
An entity responsible for making the resource available
Journal of Social Work in End-of-Life & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Child Poverty Tool and Resource Guide; content validity; life limiting illness; Pediatric palliative care; qualitative methods; social determinants of health
Creator
An entity primarily responsible for making the resource
Beaune L; Leavens A; Muskat B; Ford-Jones L; Rapoport A; Zlotnik SR; Morinis J; Chapman LA
Description
An account of the resource
It has been recognized that families of children with life-limiting health conditions struggle with significant financial demands, yet may not have awareness of resources available to them. Additionally, health care providers may not be aware of the socioeconomic needs of families they care for. This article describes a mixed-methods study examining the content validity and utility for health care providers of a poverty screening tool and companion resource guide for the pediatric palliative care population. The study found high relevance and validity of the tool. Significant barriers to implementing the screening tool in clinical practice were described by participants, including: concerns regarding time required, roles and responsibilities, and discomfort in asking about income. Implications for practice and suggestions for improving the tool are discussed. Screening and attention to the social determinants of health lie within the scope of practice of all health care providers. Social workers can play a leadership role in this work.
2014
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/15524256.2014.906375" target="_blank" rel="noreferrer">10.1080/15524256.2014.906375</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Backlog
Beaune L
Chapman LA
Child Poverty Tool and Resource Guide
content validity
Ford-Jones L
Journal Article
Journal of Social Work in End-of-Life & Palliative Care
Leavens A
life limiting illness
Morinis J
Muskat B
Pediatric Palliative Care
Qualitative Methods
Rapoport A
social determinants of health
Zlotnik SR