Browse Items (221 total)

Tags: 2010, Adolescent, Adult, Age Factors, Bebbington A, characteristics, Child, Child Preschool, Cross-sectional Studies, Databases as Topic, Developmental Medicine and Child Neurology, Downs J, Female, Genotype, Ghosh S, Hand, Humans, Jacoby P, Kaufmann W E, Leonard H, Methyl-CpG-Binding Protein 2, Motor Activity, Mutation, Phenotype, Registries, Rett syndrome, Severity Of Illness Index, tone and motor problems, Trajectory, Video Recording, Walking, Williams A, Young Adult

Tags: 2021, Archives of Disease in Childhood, Children, Epidemiology, Fraser LK, Gibson-Smith D, Jarvis SW, Mortality, October 2021 List, Palliative Care, Young Adult

Tags: 2020, Adolescent, BMC Palliative Care, Continuity Of Patient Care, Cullen-Dean G, June 2021 List, Kerr H, Life-limiting Conditions, O'Halloran P, Price J, Widger K, Young Adult

Tags: 2011, Adams H, Adolescent, Adult, Analysis of Variance, Augustine E F, Beck C A, Child, Child Preschool, Cialone J, Cross-sectional Studies, Deblieck E A, Disabled Persons, Disease Progression, Dure L S, Genotype, Homozygote, Humans, Kwon J M, Levy E, Marshall F J, Membrane Glycoproteins, Mink J W, Molecular Chaperones, Mutation, NCL3, Neurology, Neuronal Ceroid-Lipofuscinoses, Neuropsychological Tests, Newhouse N J, Prospective Studies, Ramirez-Montealegre D, Regression Analysis, Reproducibility of Results, Rose K R, Rothberg P G, scale development, tone and motor problems, tool development, UBDRS, Vierhile A, Young Adult

Tags: 2021, Adolescent, April 2021 List, Child, Huang MC, Impact, Lin SC, Palliative & Supportive Care, Palliative Care, Systematic Review, Wuu HL, Yasmara D, Young Adult

Tags: 2019, 2022 Special Edition 1 - Parent Perspectives, Adolescent, Colombia, Emotions, Fathers, Grief, Infant, Lizcano PLDM, Male, Middle Aged, Moreno Fergusson ME, Newborn, Nursing Research, Palacios AM, Perinatal Death, Qualitative Research, Young Adult

Tags: 2009, Adolescent, Adult, Angelman Syndrome/epidemiology/psychology, Arron K, behavioral problems, Berg K, Burbidge C, characteristics, Child, Child Preschool, Cri-du-chat, Cri-du-Chat Syndrome/epidemiology/psychology, De Lange syndrome, De Lange Syndrome/epidemiology/psychology, Female, Fragile X Syndrome/epidemiology/psychology, Humans, Intellectual Disability/epidemiology/genetics/psychology, Journal of Autism and Developmental Disorders, London, Male, Middle Aged, Moss J, Oliver C, Phenotype, Prader-Willi Syndrome/epidemiology/psychology, Prevalence, repetitive behavior, Stereotyped Behavior, Surveys And Questionnaires, Syndrome, tone and motor problems, Trajectory, Young Adult

Tags: 2008, Adolescent, Adult, Arron K, Autistic Disorder/psychology, behavioral problems, Case-Control Studies, characteristics, Child, Child Preschool, Communication Disorders/psychology, Compulsive Behavior/psychology, De Lange syndrome, De Lange Syndrome/psychology, Female, global behavior disorder, Hall S, Humans, Male, Oliver C, Phenotype, Sloneem J, Surveys And Questionnaires, The British Journal of Psychiatry, Trajectory, Young Adult

Tags: 2018, Adult, Byrne M, Daho M, Female, Foe G, Humans, Infant, Intensive Care, Journal Of Perinatology, Male, Neonatal/og [Organization & Administration], New York, Newborn, November 2019 List, Palliative Care/mt [methods], Parents/px [psychology], Parravicini E, Patient Care Team/og [Organization & Administration], Patient Comfort/st [Standards], Practice Guidelines As Topic, Prospective Studies, Qualitative Research, Steinwurtzel R, Surveys And Questionnaires, Young Adult

Tags: 2021, Adolescent, Aftercare, BMC Health Services Research, Bratt EL, Chronic Disease, Continuity of patient care: patient transfer, Delivery of Health Care, February 2022 List, Goossens E, Health Personnel, Johansson B, Lost to follow-up, Moons P, Skogby S, Young Adult

Tags: 2021, Adolescent, Age Factors, Antiel RM, Biopsy, Blinman TA, Camazine MN, Catheterization, Child, Chronic Disease, Eghtesady P, Ethnicity, February 2022 List, Feudtner C, Hall M, Hospitalization, Infant, International Classification of Diseases, Lam SK, Nance ML, Newborn Infant, pediatric hospitals, Pediatrics, Preschool Child, Prosthesis Implantation, Race Factors, Retrospective Studies, Salvage Therapy, Surgical Procedures, Operative, Terminal Care, Traynor MD, United States, Young Adult

Tags: 2012, Adolescent, Adult, Aged, Archives Of Physical Medicine And Rehabilitation, Berard C, Child, Disability Evaluation, Ecochard R, Female, Fermanian J, Girardot F, Humans, Iwaz J, Male, MFM, Middle Aged, Mobility Limitation, motor function measure, Motor Skills, Muscular Dystrophy Duchenne/physiopathology/rehabilitation, Neuromuscular Diseases/physiopathology/rehabilitation, Payan C, Perception, Physical Therapy Modalities, Prospective Studies, Q3 conditions, scale development, SMA1, tone and motor problems, tool development, Vuillerot C, Young Adult

Tags: 2020, Adult, Attention, Bereavement, cancer center, Cancer Patient, Child, Childhood Cancer, chimeric antigen receptor T-cell immunotherapy, Current Opinion In Pediatrics, Devine K A, Distress Syndrome, evidence based practice center, hereditary tumor syndrome, Human, Infant, Oncology 2020 List, outcome assessment, Palliative Therapy, patient reported outcome, Psycho-Oncology, psychosocial care, Review, Sibling, Survivorship, Thompson A L, toddler, Wiener L, Young Adult

Tags: 2018, Adult, aggressiveness, Artificial Ventilation, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Death, Diagnosis, Female, Fushimi K, Hematologic Malignancy, Human, Intubation, Japan, Major Clinical Study, Male, Matsumoto K, Oncology 2019 List, Pediatric Blood and Cancer, Resuscitation, School Child, Shinjo D, Terminal Care, Yotani N, Young Adult

Tags: [No authors listed], 2016, Adolescent, August 2017 List, Charities, Child, Child Preschool, England, Healthcare Financing, Hospice And Palliative Care Nursing, Humans, Infant, Infant Newborn, Nursing Children and Young People, Palliative Care, Respite Care, State Medicine, Young Adult

Tags: 2023, Aasen ERHV, acquired immune deficiency syndrome, Adolescent, Adult, Advance Care Planning, Caregiver, Child, Cystic Fibrosis, Emotion, Female, Human, Journal of Pain and Symptom Management, June 2022 List, Lee A, Male, Medline, Neurology, oSovik ML, outcome assessment, Palliative Therapy, Patient Participation, pediatric patient, Randomized Controlled Trial (topic), Review, Stordal K, Systematic Review, Young Adult

Tags: 2021, 2023 SE5 - Low Resource Setting, Adinani H, Adolescent, Adult, antiretroviral therapy, antiretrovirus agent/dt [Drug Therapy], Article, Bacha J, bleomycin/cb [Drug Combination], bleomycin/dt [Drug Therapy], bleomycin/iv [Intravenous Drug Administration], Campbell L, cancer combination chemotherapy, Cancer Palliative Therapy, Cancer Recurrence, Cancer Survival, Child, Children, Cohort Analysis, dexamethasone/dt [Drug Therapy], doxorubicin/cb [Drug Combination], doxorubicin/dt [Drug Therapy], drug contraindication, El-Mallawany NK, Female, Follow Up, Human, Human immunodeficiency virus infection/dt [Drug Therapy], Kaposi sarcoma/dt [Drug Therapy], lack of drug effect, long term survival, Major Clinical Study, Male, Mehta P, multiple cycle treatment, Paclitaxel, paclitaxel/dt [Drug Therapy], Quality Of Life, Retrospective Study, Slone J, Tanzania, treatment duration, Treatment Outcome, Treatment Planning, trend study, vincristine/cb [Drug Combination], vincristine/dt [Drug Therapy], vincristine/iv [Intravenous Drug Administration], virus load, Young Adult

Tags: 2018, Adolescent, Adult, Arakawa A, cancer center, Cancer Patient, Cancer Staging, Child, Clinical Article, conference abstract, Controlled Study, Female, Home Care, Human, Ishiki H, Ishimaru S, Kumamoto T, Male, Nakajima M, Ogawa C, Oncology 2019 List, Pediatric Blood and Cancer, Retrospective Study, Satomi E, Shimizu M, Shirakawa N, Social Worker, Sonoda T, time of death, Young Adult

Tags: 2013, Adolescent, Arland LC, Backlog, Brain Neoplasms, Child, Colorado, Female, Foreman NK, Health Personnel, Hendricks-Ferguson VL, home care services, Hospice Care, Hospital Mortality, Humans, Infant, Journal Article, Journal for Specialists in Pediatric Nursing, Length Of Stay, Madden JR, Male, Newborn, Palliative Care, Patient Admission, Pearson J, Pediatric Nursing, Preschool, Program Development, Program Evaluation, Retrospective Studies, Terminal Care, Young Adult

Tags: 2018, Armoiry X, Atherton H, Caregivers, Child Health, Children, Court R, digital clinical communication, Family, Griffiths F, January 2018 List, Journal Of Medical Internet Research, Phelps EE, Professional-family Relations, Sturt J, Sutcliffe P, Taggart F, Walker CL, Young Adult

Tags: 2020, Adolescent, Adult, Advanced Cancer, Advanced Practice Nurse, Aged, al-Awamer A, Article, Avery J, Canada, Cancer Palliative Therapy, care behavior, clinician parent communication difficulty, counter transference, D'Agostino N M, Experience, Family, Female, Geist A, Gupta A, Health Personnel Attitude, Human, Journal of Oncology Practice, Kassam A, Kawaguchi S K, Mahtani R, Male, Mazzotta P, medical oncologist, Mosher P J, Oncology 2020 List, Perception, Physician, psychiatrist, Qualitative Research, radiation oncologist, Samadi M, Semi Structured Interview, Srikanthan A, Tam S, tertiary care center, Thematic Analysis, theoretical study, Young Adult, Zimmermann C

Tags: 2019, Adolescent, Adult, anxiety, Article, Barker MM, Beresford B, Bland M, Child, data extraction, Depression, Embase, Female, Fraser LK, Human, Human Tissue, Incidence, Interview, JAMA Pediatrics., Male, Medline, meta analysis, Monitoring, Organisation for Economic Co-operation and Development, Prevalence, psychologic assessment, Psycinfo, Regression Analysis, September 2019 List, synthesis, Systematic Review, Young Adult

Tags: 2019, Adaptation, Adolescent, Anthropology, Beecham E, Bluebond-Langner M, Brain Neoplasms/*psychology, Cancer, Child, Children, Coping, Cultural, enduring, Experiences, Female, Hargrave D, Health, Humans, Illness and Disease, Infant, Langner R, lived experience, Male, meta-ethnogrpahy, Metasynthesis, Method: interpretive methods, Oncology 2019 List, Parents/*psychology, Preschool, Psychological, psychosocial aspects, Qualitative Health Research, Qualitative Research, qualitative. Geographic: Taiwan, Quality Of Life, Quality of Life/*psychology, Resilience, Resistance, Survivorship, Young Adult

Tags: 2014, Adult, Attitude Of Health Personnel, Backlog, Beresford B, Clinical Medicine (london, England), Female, Great Britain, Health Services, Humans, Inpatients, Journal Article, Male, Minority Groups, Parents, Stuttard L, Young Adult

Tags: 2019, Adolescent, Adult, Article, Australia, Berger I, cancer center, challenges, enablers, Exploratory Research, Health Care Personnel, Health care professionals, Human, incurable disease, Joubert L, Journal of adolescent and young adult oncology., multidisciplinary, Oncology 2019 List, Semi Structured Interview, Thompson K, Young Adult

Tags: 2016, Acute Pain/therapy, Adolescent, Adult, Advance Directives, Aged, Attitude Of Health Personnel, Bidet G, Canada, Child, Child Preschool, Daoust L, Ducruet T, Duval M, Female, Humans, Humbert N, Infant, Infant Newborn, Journal of Palliative Medicine, Male, March 2016 List, Medical Staff Hospital/psychology, Middle Aged, Nursing Staff Hospital/psychology, Palliative Care/standards, Pediatric Nursing/standards, Practice Guidelines As Topic, Respiratory Distress Syndrome Adult/therapy, Surveys And Questionnaires, Toledano B, Young Adult

Tags: 2018, 2023 SE1 - Parent Perspectives, Adult Aged, Aged, Attitude To Health, Black A, Canada, Caregivers, Chang W, Charlton SG, Family and Patient Participation, family engagement, Hamilton C, Journal of Health Services Research & Policy, McNamee K, patient engagement in research, Patient experience, patient-oriented research, Psychology, Qualitative, Research Subjects, Researcher-Subject Relations, Strain K, Wallsworth C, Young Adult

Tags: 0 (Methyl-CpG-Binding Protein 2), 2016, Adolescent, Adult, American Journal of Medical Genetics Part A, Anderson B, Boban S, characteristics, Child, Child Preschool, Downs J, Epilepsy/di [diagnosis], Epilepsy/ge [Genetics], Epstein A, Genetic Association Studies, Genotype, Humans, Infant, Infant Newborn, Leonard H, Methyl-CpG-Binding Protein 2/ge [Genetics], Middle Aged, Murphy N, Mutation, Phenotype, Rett syndrome, Rett Syndrome/di [Diagnosis], Rett Syndrome/ge [Genetics], Rett Syndrome/pp [Physiopathology], Severity Of Illness Index, sleep disturbance/disorders, Sleep Wake Disorders/di [Diagnosis], Sleep Wake Disorders/ge [Genetics], Trajectory, Wong K, Young Adult

Tags:  Adolescent,  Child,  Chronic Disease,  Palliative Care,  Parents,  Quality of Life, 2022, Bogetz JF, DeCourcey DD, Health Personnel, Hospital Pediatrics, Humans, November 2022 List, Partin L, Revette A, Young Adult

Tags: 2011, Acute Disease, Adolescent, Adult, Aged, Analgesics, Backlog, Bair MJ, Blow FC, Bohnert AS, Case-Control Studies, Chronic Disease, Cohort Studies, Drug Prescriptions/statistics & numerical data, Female, Ganoczy D, Humans, Ilgen MA, JAMA, Journal Article, Male, McCarthy JF, Middle Aged, Opioid/administration & dosage/poisoning, Overdose/epidemiology, Pain/drug Therapy, Physician's Practice Patterns/statistics & numerical data, Risk, United States/epidemiology, Valenstein M, Veterans/statistics & numerical data, Young Adult

Tags: 2018, Adult, Advance Care Planning, Advance Care Planning/statistics & Numerical Data, Advance Directives, American journal of hospice & palliative care, April 2019 List, Attitude Of Health Personnel, Bowman M, Clergy/psychology, Decision Making, Female, Health Personnel/psychology, hospital-specific palliative care issues, Humans, Living Wills, Living Wills/psychology/statistics & numerical data, Male, Middle Aged, physician patient communication, Religion, Spirituality, St Cyr S, Stolf I A, Terminal Care/psychology, Young Adult

Tags: 2016, Adolescent, Adult, Attitudes, Brain Death/ diagnosis, brain-dead organ donation, Bresnahan M, communicating with family about brain death, Communication, Cross-sectional Studies, Decision Making, End-of-life Decision Making, Factor Analysis, Family, Female, first-person organ donation consent laws, Health Knowledge, Humans, Journal Of Health Psychology, Male, March 2018 List, Middle Aged, misconceptions about brain death, Practice, Reproducibility of Results, statistical, Tissue and Organ Procurement, Young Adult, Zhuang J

Tags: 2014, Adolescent, Adult, Backlog, Brooks JC, California, Cerebral Palsy, Child, Developmental Medicine and Child Neurology, Disabled Persons, Female, Humans, Infant, Journal Article, Kaplan-Meier Estimate, Life Expectancy, Male, Mortality, Preschool, Prognosis, Rosenbloom L, Shavelle RM, Strauss DJ, Tran Linh M, Wu YW, Young Adult

Tags: 2010, Adult, Analysis of Variance, Backlog, Brain Mapping, Brown CA, Cerebral Cortex/physiology, Dose-Response Relationship, Electroencephalography/methods, Evoked Potentials, Female, Humans, Jones AK, Journal Article, Lasers/adverse effects, Male, Meditation/methods, Middle Aged, Pain, Pain Measurement/methods, Pain Threshold/physiology, Pain/etiology/physiopathology/psychology/rehabilitation, Radiation, Regression Analysis, Somatosensory/physiology, Young Adult

Tags: 2015, Adolescent, Adult, BMJ Supportive & Palliative Care, Bravery R, Burbeck R, Candy B, Cross-sectional Study, England, Female, Health Care Survey, Home Care, Hospice, Hospice Care, Hospital Volunteer, Human, Internet, Low J, Male, Organization And Management, Palliative Therapy, Pediatrics, Procedures, Questionnaire, Sampson E L, Scott R, September 2017 List, Specialization, Statistics And Numerical Data, Young Adult

Tags: 2011, Adaptation, Adolescent, Adult, Backlog, Breau LM, Burkitt CC, Child, Developmental Disabilities/complications/psychology, Female, Humans, Intellectual Disability/complications/psychology, Journal Article, Male, Pain Measurement, Pain/complications/psychology, Parents/psychology, Preschool, Psychological, Questionnaires, Research in Developmental Disabilities, Social Support, Young Adult, Zabalia M

Tags: 2009, Adolescent, Adolescent Transitions, Aimaretti G, Allochis G, Backlog, Baldelli R, Bellone S, Binotti M, Bona G, Cadario F, Clinical Endocrinology, Diabetes Mellitus, Esposito S, Female, Glycosylated/metabolism, Hemoglobin A, Humans, Journal Article, Patient Satisfaction, Patient Transfer/methods, Pediatrics, Prodam F, Questionnaires, Retrospective Studies, Trada M, Type 1/metabolism/therapy, Young Adult

Tags: 2014, Adult, Aged, Cadell S, Caregivers/psychology, Child, Davies E, Disabled Children/psychology, Hemsworth D, Human Development, Humans, Liben S, Male, Middle Aged, Models Psychological, Palliative Care/psychology, Parents/psychology, Siden H, Smit QT, Steele R, Straatman L, The American Journal Of Orthopsychiatry, Young Adult

Tags: 2010, 80 And Over, Adaptation, Adolescent, Adult, Aged, Anxiety, Stress, And Coping, Backlog, Bereavement, Calhoun LG, Cann A, Danhauer SC, Domestic Violence/psychology, Factor Analysis, Female, Humans, Journal Article, Leukemia/psychology, Life Change Events, Male, Middle Aged, Psychological, Psychological Tests, Psychometrics, Reproducibility of Results, statistical, Taku K, Tedeschi RG, Triplett KN, Vishnevsky T, Young Adult

Tags: 2019, Adolescent, Adult, Baccalaureate, Carreno S P, Carrillo G M, Clinical Competence, Colombia, Diaz L C, Education, February 2020 List, Female, Gomez O J, Hospice and Palliative Care Nursing/ed [Education], Humans, International Journal of Palliative Nursing, Interviews As Topic, Male, Nursing, Students, Surveys And Questionnaires, Young Adult