Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer
PedPal Lit; Adolescent Adult Age Factors Child Child Development Child Welfare Female Humans Male Neoplasms/psychologyParent-Child Relations PsychometricsQuality of Life Reproducibility of Results Research Support; and comparison of group means. In addition; intraclass correlation (ICC); parent-proxy of QOL for adolescents provides significantly different information than self-report and proxy data of QOL for adolescents should be used with caution.; parents can provide valid information about their QOL. However; QOLCC) were completed by 141 patients (82 children and 59 adolescents) and 141 of their parents. Three different statistical approaches were employed to evaluate convergence of self-report and proxy-report: product-moment correction coefficient; scatter bias was used to examine the degree of differences across the range of measurement. Our findings indicate that neither Pearson product correlation
2005
Chang PC; Yeh CH
Psycho-oncology
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1002/pon.828" target="_blank" rel="noreferrer">10.1002/pon.828</a>
Evaluating quality of life in children with cancer using children's self-reports and parent-proxy reports
PedPal Lit; Adolescent Child Data Collection Female Humans Longitudinal Studies Male Neoplasms/classification/drug therapy/psychology Nursing Research Parents ProxyQuality of Life Reproducibility of Results Research Support; Non-U.S. Gov't Severity of Illness Index
BACKGROUND: Assessment of quality of life (QOL) of children is complex due to the developmental differences in understanding the content being measured. The validity of parent-proxy reports versus children's self-reports remains to be clarified. OBJECTIVES: To examine the agreement on QOL measures between children's self-reports and parent-proxy reports at different points in time, including at baseline and at 6-month follow up, as well as the change in scores between 6-month follow up and baseline. METHOD: A longitudinal study of QOL assessment of children with cancer for parents and children was conducted. At baseline assessment, 126 children with cancer and at least one of their parents participated (n = 252). Forty boys, 25 girls, and their parents (n = 130) completed the 6-month follow up assessment. RESULTS: Parents tended to report better QOL than did the children at both baseline and 6-month follow up assessments in both the on- and off-treatment groups. Agreement on QOL measure between children and parent proxies varied as a result of the following factors: treatment status (on and off treatment), time (at baseline vs. at 6-month follow up), and changes in score between the time of the baseline assessment and the 6-month follow up. The effects of time, age, gender, and severity of illness had different degrees of significance as predictors on various subscales. DISCUSSION: The predictors of agreement between patients' reports and parent-proxy reports, including the passage of time (from baseline to 6-month follow up), gender, age, and illness severity, have not been conclusively determined. Further studies are needed to examine patient-proxy agreement during a longer follow up period at more than two points in time and using the same patients through the stages of confirmation of diagnosis, acceptance of diagnosis, treatment, and after treatment.
2005
Yeh CH; Chang CW; Chang PC
Nursing Research
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1097/00006199-200509000-00010" target="_blank" rel="noreferrer">10.1097/00006199-200509000-00010</a>
Gender differences of parental distress in children with cancer
gender
2002
Yeh CH
Journal Of Advanced Nursing
2002
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1046/j.1365-2648.2000.02227.x" target="_blank" rel="noreferrer">10.1046/j.1365-2648.2000.02227.x</a>
Adaptational process of parents of pediatric oncology patients
Child; Female; Humans; Male; Adult; Data Collection; Aged; Middle Aged; Family Relations; Religion; Family Health; adolescent; Preschool; Non-U.S. Gov't; Research Support; Adaptation; Psychological; Caregivers/psychology; infant; Parents/psychology; Psychological; Stress; social support; Neoplasms/psychology; Taiwan/ethnology
This study, based on grounded theory, explores the adaptational process of parents of pediatric oncology patients. Thirty-two Taiwanese parents (26 mothers and 6 fathers) were interviewed. Data were collected through individual in-depth and focus group interviews, observations, medical chart review, nurses' note, and researchers' reflexive journals. The findings suggest that parents adapt to their children's cancer by a dynamic process; i.e., they modify their coping tasks and related strategies as clinical events (e.g., diagnosis, side effects, relapses, or death) occur. This adaptational process consisted of five components: confronting treatment, maintaining family integrity, establishing support, maintaining emotional well-being, and searching for spiritual meaning. Related factors such as coping tasks are described.
2000
Yeh CH; Lee TT; Chen ML; Li W
Pediatric Hematology And Oncology
2000
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1080/088800100276479" target="_blank" rel="noreferrer">10.1080/088800100276479</a>