1
40
8
-
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Title
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June 2023 List
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June 2022 List
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<a href="https://www.mdpi.com/2227-9067/10/3/482">https://www.mdpi.com/2227-9067/10/3/482</a>
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Palliative care education in an Australian undergraduate pharmacy curriculum: an exploratory descriptive study
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International Journal of Pharmacy Practice
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2023
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Palliative Care; Education; Adolescence; Adult; Female; Human; Male; Questionnaires; Surveys; Australia; Clinical Reasoning; Communication; Confidence; Curriculum; Descriptive Research; Descriptive Statistics; Education Pharmacy; Empathy; Exploratory Research; Mann-Whitney U Test; Prospective Studies; Qualitative Studies; Reflection; Self Concept; Students Undergraduate; Thematic Analysis
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Ong JA; Rego J; Ung T; Kumar S; Ash K; Saini B; Yates P
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<a href="https://www.mdpi.com/2227-9067/10/3/482"><span>10.1093/ijpp/riac093</span></a>
2023
Adolescence
Adult
Ash K
Australia
clinical reasoning
Communication
Confidence
Curriculum
Descriptive Research
Descriptive Statistics
Education
Education Pharmacy
Empathy
Exploratory Research
Female
Human
International Journal of Pharmacy Practice
June 2022 List
Kumar S
Male
Mann-Whitney U Test
Ong JA
Palliative Care
Prospective Studies
Qualitative Studies
Questionnaires
Reflection
Rego J
Saini B
Self Concept
Students Undergraduate
surveys
Thematic Analysis
Ung T
Yates P
-
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<a href="http://doi.org/10.1111/1467-9566.13437" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/1467-9566.13437</a>
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Attending to child agency in paediatric palliative care consultations: Adults' use of tag questions directed to the child
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Sociology of Health and Illness
Date
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2022
Subject
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Child agency; Conversation analysis; Pediatric palliative care; Tag questions
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Ekberg K; Ekberg S; Weinglass L; Herbert A; Rendle-Short J; Bluebond-Langner M; Yates P; Bradford N; Danby S
Description
An account of the resource
Children's agency in their own lives is increasingly recognised as important, including within paediatric health care. The issue of acknowledging child agency is complex in the context of paediatric palliative care, where children have serious and complex conditions that often impact their ability to verbally communicate with others. This study explores how clinicians and parents/guardians direct talk towards a child patient when they are present in a consultation. Conversation analysis methods were used to examine 74 video-recorded paediatric palliative care consultations. Detailed turn-by-turn examination of the recorded consultations identified the recurrent use of a practice described by linguists as a 'tag question', which follows some statement (e.g. 'he loves that, don't ya'). Both clinicians and parents/guardians often directed these tag questions towards the child patient. Analysis demonstrated how these tag questions: (1) validated the child's epistemic authority over what was being said and (2) made a child's response a possible, but not necessary, next action. The findings are discussed in relation to the sociology of child agency and how this agency is acknowledged and displayed within and through social interaction. This research provides direct evidence of children's competence as informants about their own symptoms. Copyright © 2022 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL (SHIL).
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<a href="http://doi.org/10.1111/1467-9566.13437" target="_blank" rel="noreferrer noopener">10.1111/1467-9566.13437</a>
2022
April 2022 List
Bluebond-Langner M
Bradford N
Child agency
Conversation Analysis
Danby S
Ekberg K
Ekberg S
Herbert A
Pediatric Palliative Care
Rendle-Short J
Sociology of Health and Illness
Tag questions
Weinglass L
Yates P
-
Dublin Core
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Title
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April 2021 List
Text
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April 2021 List
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<a href="http://doi.org/10.1177/0269216319888988" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0269216319888988</a>
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Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care
Publisher
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Palliative Medicine
Date
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2020
Subject
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child; Humans; Pediatrics; Communication; Family/psychology; Professional-Family Relations; paediatrics; Palliative care; Advance Care Planning; Delphi technique; Stakeholder Participation; prompt list; Reminder Systems/instrumentation
Creator
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Ekberg S; Herbert A; Johns K; Tarrant G; Sansone H; Yates P; Danby S; Bradford NK
Description
An account of the resource
BACKGROUND: Effective communication is a cornerstone of quality paediatric palliative care. Families report struggling, however, to know what to discuss, with whom, and when. Although question prompt lists exist for adult palliative care, they do not suit the unique circumstances of paediatric palliative care. AIM: To develop a prompt list suitable for paediatric palliative care. DESIGN: Underpinned by Delphi methodology, a six-phase procedure was adopted: (1) drafting items based on the findings of a literature review, (2) condensing the list of items based on group discussion, (3) refining items based on a survey of expert healthcare professionals, (4) additional refining of items based on another survey of professionals, (5) further refining of items based on cognitive interviews with family members, and (6) final review by healthcare professional and family member groups. PARTICIPANTS: Three participant groups were involved during various phases: (1) members of an Australasian paediatric palliative care national reference group, (2) healthcare professionals associated with a local paediatric palliative care service, and (3) family members who were users of the same local service. RESULTS: Through multi-phase consultation across participant groups, the draft question prompt list was refined progressively to 28 items, split across two booklets to allow end-of-life items to be provided separately, and reconceptualised as a discussion prompt list rather than a question prompt list. CONCLUSION: By involving representatives of major stakeholder groups, this study has facilitated the design of a prompt list suited to the circumstances of paediatric palliative care. Future research should trial the effectiveness of this resource.
Identifier
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<a href="http://doi.org/10.1177/0269216319888988" target="_blank" rel="noreferrer noopener">10.1177/0269216319888988</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Advance Care Planning
April 2021 List
Bradford NK
Child
Communication
Danby S
Delphi Technique
Ekberg S
Family/psychology
Herbert A
Humans
Johns K
Paediatrics
Palliative Care
Palliative Medicine
Pediatrics
Professional-family Relations
prompt list
Reminder Systems/instrumentation
Sansone H
Stakeholder Participation
Tarrant G
Yates P
-
Dublin Core
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Title
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December 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2020 List
URL Address
<a href="http://doi.org/10.1136/bmjspcare-2020-002449" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/bmjspcare-2020-002449</a>
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Analysis of health administration data to inform health service planning for paediatric palliative care
Publisher
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BMJ Supportive & Palliative Care
Date
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2020
Subject
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chronic conditions; hospital care; paediatrics
Creator
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Bowers AP; Bradford N; Chan RJ; Herbert A; Yates P
Description
An account of the resource
BACKGROUND: Health service planning in paediatric palliative care is complex, with the diverse geographical and demographic characteristics adding to the challenge of developing services across different nations. Accurate and reliable data are essential to inform effective, efficient and equitable health services. AIM: To quantify health service usage by children and young people aged 0-21 years with a life-limiting condition admitted to hospital and health service facilities in Queensland, Australia during the 2011 and 2016 calendar years, and describe the clinical and demographic characteristics associated with health services usage. DESIGN: Retrospective health administrative data linkage of clinical and demographic information with hospital admissions was extracted using International Statistical Classification of Diseases and Related Health Problems, Tenth Revision Australian Modification (ICD-10-AM) diagnostic codes. Data were analysed using descriptive statistics. SETTING/PARTICIPANTS: Individuals aged 0-21 years with a life-limiting condition admitted to a Queensland Public Hospital and Health Service or private hospital. RESULTS: Hospital admissions increased from 17 955 in 2011 to 23 273 in 2016, an increase of 5318 (29.6%). The greatest percentage increase in admissions were for those aged 16-18 years (58.1%, n=1050), and those with non-oncological conditions (36.2%, n=4256). The greatest number of admissions by ICD-10-AM chapter for 2011 and 2016 were by individuals with neoplasms (6174, 34.4% and 7206, 31.0% respectively). Overall, the number of admissions by Indigenous children and young people increased by 70.2% (n=838). CONCLUSIONS: Administrative data are useful to describe clinical and demographic characteristics and quantify health service usage. Available data suggest a growing demand for health services by children eligible for palliative care that will require an appropriate response from health service planners.
Identifier
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<a href="http://doi.org/10.1136/bmjspcare-2020-002449" target="_blank" rel="noreferrer noopener">10.1136/bmjspcare-2020-002449</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
BMJ Supportive & Palliative Care
Bowers AP
Bradford N
Chan RJ
chronic conditions
December 2020 List
Herbert A
Hospital care
Paediatrics
Yates P
-
Dublin Core
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Title
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April 2019 List
Text
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April 2019 List
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<a href="http://doi.org/10.1016/j.pec.2018.08.014" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1016/j.pec.2018.08.014</a>
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Discussing death: Making end of life implicit or explicit in paediatric palliative care consultations
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Patient Education & Counseling
Date
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2019
Creator
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Ekberg Stuart; Danby Susan; Rendle-Short J; Herbert A; Bradford NK; Yates P
Description
An account of the resource
Objective: To consider whether and how family members and clinicians discuss end of life during paediatric palliative care consultations.Methods: Nine naturally occurring paediatric palliative care consultations were video recorded and analysed using conversation analytic methods.Analysis: Focusing on three consultations in which end of life was treated as a certain outcome, analysis explored ways in which end of life was made either implicit or explicit within these consultations. Our analysis suggests that end of life was made explicit when: 1) ancillary to the current focus of discussion, 2) in relation to someone else's child, or 3) specifically relevant to the local context of the discussion. More commonly, in all other instances in the data, end of life was made implicit during discussions relating to this matter.Conclusion: This preliminary research indicates that the local context of a conversation can influence how end of life is mentioned and discussed.Practice Implications: Clinicians often are encouraged to promote honest and 'open' discussions about end of life. Our findings show that it is not necessary to explicitly mention end of life in order to discuss it.
Identifier
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<a href="http://doi.org/10.1016/j.pec.2018.08.014" target="_blank" rel="noreferrer noopener">10.1016/j.pec.2018.08.014</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
April 2019 List
Bradford NK
Danby Susan
Ekberg Stuart
Herbert A
Patient Education & Counseling
Rendle-Short J
Yates P
-
Dublin Core
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Title
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March 2018 List
Text
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Citation List Month
March 2018 List
URL Address
<a href="http://doi.org/10.11124/jbisrir-2015-2413" target="_blank" rel="noreferrer">http://doi.org/10.11124/jbisrir-2015-2413</a>
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Healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions: a qualitative systematic review protocol
Publisher
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Jbi Database Of Systematic Reviews And Implementation Reports
Date
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2015
Subject
The topic of the resource
Communication; Critical Illness/px [Psychology]; Palliative Care/px [Psychology]; Parents/px [Psychology]; Professional-Family Relations; adolescent; Adult; Child; Female; Health Personnel/px [Psychology]; Humans; infant; Male; Newborn; Preschool; Qualitative Research; Young Adult
Creator
An entity primarily responsible for making the resource
Ekberg S; Bradford N; Herbert A; Danby S; Yates P
Description
An account of the resource
REVIEW QUESTION/OBJECTIVE: The objective of this review is to identify and synthesize the best international qualitative evidence on healthcare users' experiences of communication with healthcare professionals about children who have life-limiting conditions. For the purposes of this review, "healthcare users" will be taken to include children who have life-limiting conditions and their families. The question to be addressed is:What are healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions? BACKGROUND: The prospect of the death of a child from an incurable medical condition is harrowing, yet finding a way to discuss this prospect is crucial to maximize the quality of life for such children and their families. High-quality communication is well recognized as a core skill health care professionals need to maximize the quality of care they provide. This skill is valued by service users, who consistently rate it as one of the highest priorities for the care they receive. Evidence suggests, however, that healthcare professionals can feel ill-equipped or uncomfortable communicating with and about such children. Therefore, it is important to understand what represents high-quality communication and what is involved in accomplishing this within pediatric palliative care.In recent decades there has been an increased focus on providing palliative care for children who have life-limiting conditions. These are conditions for which no cure is available and for which the probable outcome is premature death. Palliative care may also be appropriate for children who have life-threatening conditions; these are conditions where there is not only a high probability of premature death but also a chance of long-term survival into adulthood Although pediatric palliative care is underpinned by the same philosophy as adult palliative care, children who have life-limiting conditions and their families have particular needs that distinguish them from users of adult palliative care. For example, at a physical level children are more likely than adults to have non-malignant conditions that follow trajectories in which children oscillate between feeling relatively well and acutely unwell. The social dynamic of their care is also radically different, particularly given the role of parents or guardians in making surrogate decisions about their child's care. Such factors warrant considering pediatric palliative care as distinct from palliative care more generally.Although the particular circumstances of children who have life-limiting conditions have led to development of pediatric palliative care, the particular provisions of this care differs among countries. One aspect of variation is the age range of patients. Pediatric palliative care is usually provided to neonates, infants, children, adolescents and young adults, but international variations in the definitions of these age ranges, particularly for adolescents and young adults, means pediatric palliative care is provided to different age groups in different countries. This review therefore adopts a pragmatic rather than an age-based definition of a pediatric palliative care, considering all studies relating to service users who are being cared for by pediatric rather than adult healthcare services.In catering for the unique needs of children who have life-limiting conditions and their families, pediatric palliative care aims to achieve pain and symptom management, enhanced dignity and quality of life, and psychosocial and spiritual care. It also seeks to incorporate care for patients' broader families and facilitating access to appropriate services and support. High-quality communication is crucial for achieving these aims. It enables healthcare users and providers to make decisions that underpin the care that is provided and the quality of the life that is possible for patients and their families.Although both users and providers recognize the value of high-quality communication with and about children who have life-limiting conditions, this does not mean that these stakeholders necessarily share the same perspective of what constitutes high-quality communication and the best way of accomplishing this. Focusing on healthcare users' experiences of communication with healthcare professionals about children who have life-limiting conditions, the present review will explore the subjective impact of professionals' communication on the people for whom they provide care. It may be necessary to consider a range of contextual factors to understand healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions. For instance, age, developmental stage, cognitive capacity, emotional and social strengths, and family dynamics can influence a child's level of involvement in discussions about their condition and care.13,28,29,35 Although there are factors that appear more consistent across the range of pediatric palliative care users, such as parents' preferences for being treated by healthcare professionals as partners in making decisions about the care of their child, there is not always such consistency.29 Nor is it clear whether such findings can be generalized across different cultural contexts.13,36 In appraising existing research, this systematic review will therefore consider the relationship between the context of individual studies and their reported findings. Background The primary aim of this review is to identify, appraise and synthesize existing qualitative evidence of healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions. The review will consider relevant details of these findings, particularly whether factors like age are relevant for understanding particular experiences of communication. An outcome of this review will be the identification of best available qualitative evidence that can be used to inform professional practice, as well as an identification of priorities for future research in pediatric palliative care. Background A preliminary search in MEDLINE and CINAHL found primary studies exploring healthcare users' experiences of aspects of communicating with healthcare professionals about children who have life-limiting conditions. A search was also conducted for existing systematic reviews in PubMed, CINAHL, EMBASE, PsycINFO, the Cochrane Database of Systematic Reviews, the JBI Database of Systematic Reviews and Implementation Reports, and PROSPERO. No systematic reviews on this topic were found.
2015-11
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.11124/jbisrir-2015-2413" target="_blank" rel="noreferrer">10.11124/jbisrir-2015-2413</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2015
Adolescent
Adult
Bradford N
Child
Communication
Critical Illness/px [psychology]
Danby S
Ekberg S
Female
Health Personnel/px [psychology]
Herbert A
Humans
Infant
Jbi Database Of Systematic Reviews And Implementation Reports
Male
March 2018 List
Newborn
Palliative Care/px [psychology]
Parents/px [psychology]
Preschool
Professional-family Relations
Qualitative Research
Yates P
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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March 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2018 List
Dublin Core
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Title
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Palliative Care. Workforce Development
Publisher
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Australian Nursing & Midwifery Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Clinical Competence; education; Hospice and Palliative Care Nursing/ed [Education]; Hospice and Palliative Care Nursing/ma [Manpower]; Australia; continuing; Humans; nursing
Creator
An entity primarily responsible for making the resource
Ash K; Yates P
Description
An account of the resource
Palliative care is delivered in almost all settings where healthcare is provided, including neonatal units, paediatric services, acute hospitals, general practices, community settings and aged care services. People who are dying have needs which require that nurses are able to deliver high quality evidence based and compassionate care no matter what their setting of practice.
2016
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Ash K
Australia
Australian Nursing & Midwifery Journal
Clinical Competence
Continuing
Education
Hospice and Palliative Care Nursing/ed [Education]
Hospice and Palliative Care Nursing/ma [Manpower]
Humans
March 2018 List
Nursing
Yates P
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2017 List
Dublin Core
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Title
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Affording Opportunities To Discuss Deterioration In Paediatric Palliative Care Consultations: A Conversation Analytic Study
Publisher
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Bmj Supportive & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Child; Communication; Family Management; Only Child; Paediatrics; Palliative Care; Prognosis; Referral And Consultation
Creator
An entity primarily responsible for making the resource
Ekberg S; Danby S; Herbert A; Bradford N; Yates P
Description
An account of the resource
OBJECTIVE: Discussing the potential deterioration of a child who has a life-limiting condition has recognised benefits for future care, but can be challenging in a clinical context where uncertain illness trajectories are common. Existing research is restricted to indirect forms of evidence such as self-report data from clinicians and families. This study directly explores how discussions about deterioration are managed within actual paediatric palliative care consultations. METHODS: 9 consultations were video recorded in an Australian paediatric palliative care service. Each consultation involved the same paediatric palliative care specialist. Conversation analysis was used to identify and explore recurrent ways in which discussions about deterioration came to be realised. FINDINGS: The study identified two communicative practices used by a paediatric palliative care specialist that afforded opportunities to discuss deterioration: (1) soliciting the family's agenda for the consultation; (2) initiating and maintaining topics where discussing deterioration is a relevant possibility. Across these different practices, a common feature was indirect initiation of discussions about deterioration. This approach made such discussions possible, but without mandating or even suggesting that such discussion must occur. CONCLUSIONS: These communicative practices balance the benefit of discussing deterioration against a recognised importance of allowing discussions to be directed by a child's family. This was achieved by creating opportunities for discussing deterioration, without making such discussions necessary.
Identifier
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10.1136/bmjspcare-2016-001130
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
BMJ Supportive & Palliative Care
Bradford N
Child
Communication
Danby S
Ekberg S
Family Management
Herbert A
May 2017 List
Only Child
Paediatrics
Palliative Care
Prognosis
Referral And Consultation
Yates P