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Text
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<a href="https://www.basw.co.uk/system/files/resources/basw_111132-4_0.pdf">https://www.basw.co.uk/system/files/resources/basw_111132-4_0.pdf</a>
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Title
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A time and place: what people want at the end of life
Date
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2013
Creator
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Ryder S; Wood C; Salter J
Description
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This report investigates the elements of care that are important to individuals at the end of their life. It argues that for too long the focus has been where people want to die rather than how. It delves deeper into the components of care that people feel are important, and explores more fully what each of these means. There were three phases to this piece of research. The first involved in-depth interviews with five experts in the fields of palliative and end of life care, to get a sense of how, in their professional opinion, place and preference are currently shaping services for people approaching the end of life, the appropriateness of this, and the capacity of different care settings to deliver peoples’ preferences. The second phase involved commissioning a survey of 2,038 members of the public, in which people were asked to prioritise aspects associated with a good death (things like being free from pain, being surrounded by loved ones, and having dignity and respect) the things that would be important to them personally during their final days of life. To understand how these preferences map on to different locations, people were then asked how well they felt the same list of features were delivered across four different end of life care settings – home, hospital, hospice and nursing or residential care home. The resulting analysis was able to compare peoples’ answers to each of these questions in relation to their previous experience of spending time with a family member or friend during their final days of life, and where this occurred. Finally, a focus group was hosted, with nine bereaved relatives of people who had died in different locations (in hospital, in a hospice, or at home), to explore how their expectations of dying in different places – both positive and negative – were met, and where the reality differed from their expectations.
2013
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Report
Subject
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older people; end of life care; user views; surveys; focus groups; personalization; choice
2013
Backlog
Journal Article
Ryder S
Salter J
Wood C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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Backlog
URL Address
<a href="http://doi.org/10.1007/s00482-008-0690-4" target="_blank" rel="noreferrer">http://doi.org/10.1007/s00482-008-0690-4</a>
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IMPaCCT: standards of paediatric palliative care.
Publisher
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Schmerz (berlin, Germany)
Date
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2008
Creator
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Craig F; Abu-Saad HH; Benini F; Kuttner L; Wood C; Feraris PC; Zernikow B
Description
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The needs of children and families living with life-limiting and life-threatening illness are similar across all European countries. Meeting these needs requires a comprehensive and integrative approach, with the input of a skilled multidisciplinary paediatric team. It is essential that the core standards for paediatric palliative care recommended in this document of the European Association for Palliative Care (EAPC) now be implemented across Europe.
2008
Identifier
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<a href="http://doi.org/10.1007/s00482-008-0690-4" target="_blank" rel="noreferrer">10.1007/s00482-008-0690-4</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2008
Abu-Saad HH
Backlog
Benini F
Craig F
Feraris PC
Journal Article
Kuttner L
Schmerz (berlin, Germany)
Wood C
Zernikow B