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Text
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Citation List Month
October 2017 List
Notes
<p>Using Smart Source Parsing<br />( (pp Date of Publication: August 2017</p>
Dublin Core
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Title
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Single-center Experience Providing Palliative Care To Pediatric Patients With End-stage Renal Disease
Publisher
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Journal Of Palliative Medicine
Date
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2017
Subject
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End Stage Renal Disease; Palliative Therapy; Article; Child; Clinical Article; Consultation; Emotional Stress; Female; Human; Interdisciplinary Communication; Male; Medical Record Review; Parent; Social Support
Creator
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Keefer P; Lehmann K; Shanley M; Woloszyk T; Khang E; Luckritz K; Saul D
Description
An account of the resource
Background: End-stage renal disease (ESRD) affects nearly 1400 new children each year in the United States. Morbidity and mortality rates remain high for pediatric patients with ESRD, including those that have received a renal transplant. Objective: To better understand ESRD patients referred to palliative care, including their physical symptoms, topics discussed, and themes emerging during initial palliative care consultation. Design/Subjects: This study is a retrospective chart review of pediatric ESRD patients who received a palliative care consult. Physical symptoms, core topics, and themes were identified by the interprofessional study team. Results: The study team found 35 patients met inclusion criteria during the study period. The most common standard palliative care metric noted was "complex or time-intensive communication and interdisciplinary social support." Pain was the most common physical symptom addressed with goals of care and communication the most common topics discussed. Themes emerging described the emotional distress of patients and parents as well as prognostic discussions. Conclusions: This study demonstrates one institution's experience with pediatric ESRD patients undergoing consultation with the pediatric palliative care service. More research is necessary in this population to better describe the best focus for palliative care teams.
Identifier
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10.1089/jpm.2016.0353
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Article
Child
Clinical Article
Consultation
Emotional Stress
End Stage Renal Disease
Female
Human
Interdisciplinary Communication
Journal of Palliative Medicine
Keefer P
Khang E
Lehmann K
Luckritz K
Male
Medical Record Review
October 2017 List
Palliative Therapy
Parent
Saul D
Shanley M
Social Support
Woloszyk T