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Dublin Core
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Title
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January 2022 List
Text
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Citation List Month
January 2022 List
URL Address
<a href="http://doi.org/10.1177/23814683211039468" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/23814683211039468</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Intergenerational Decision Making: The Role of Family Relationships in Medical Decision Making
Publisher
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MDM Policy & Practice
Date
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2021
Subject
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advance care planning; end of life; shared decision making; children with special health care needs; spillover effects
Creator
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Lin JL; Lipstein EA; Wittenberg E; Tay D; Lundstrom R; Lundstrom GL; Sediqzadah S; Wright DR
Description
An account of the resource
A symposium held at the 42nd annual Society for Medical Decision Making conference on October 26, 2020, focused on intergenerational decision making. The symposium covered existing research and clinical experiences using formal presentations and moderated discussion and was attended by 43 people. Presentations focused on the roles of pediatric patients in decision making, caregiver decision making for a child with complex medical needs, caregiver involvement in advanced care planning, and the inclusion of spillover effects in economic evaluations. The moderated discussion, summarized in this article, highlighted existing resources and gaps in intergenerational decision making in four areas: decision aids, economic evaluation, participant perspectives, and measures. Intergenerational decision making is an understudied and poorly understood aspect of medical decision making that requires particular attention as our society ages and technological advances provide new innovations for life-sustaining measures across all stages of the lifespan.
Identifier
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<a href="http://doi.org/10.1177/23814683211039468" target="_blank" rel="noreferrer noopener">10.1177/23814683211039468</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Advance Care Planning
Children With Special Health Care Needs
End Of Life
January 2022 List
Lin JL
Lipstein EA
Lundstrom R
Lundstrom GL
MDM Policy & Practice
Sediqzadah S
shared decision making
spillover effects
Tay D
Wittenberg E
Wright DR
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Nurses' Experiences Of Spiritual Communication With Seriously Iii Children.
Publisher
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Journal Of Palliative Medicine
Date
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2016
Subject
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Methods; Nurse's Role; Pediatric Nursing; Child; Adolescent; Health Promotion; Nursing & Ancillary Services; Electronic Books; Local; Children's Health; Health & Fitness
Palliative Care Nursing Issues; Pediatric Palliative Care; Spirituality
Creator
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Ferrell B; Wittenberg E; Battista V; Walker G
Description
An account of the resource
The goal of this study was to explore nurse experiences in communication with children about spiritual topics in order to develop training in this area.
BACKGROUND:
Although spiritual care is essential in pediatric palliative care, few providers receive training about communication with ill children about spirituality.
METHODS:
Researchers developed a brief survey to prompt nurses to reflect on pediatric palliative care experiences that included spiritual discussions. Nurses attending training courses voluntarily submitted stories. Qualitative data were thematically analyzed by members of the research team, consisting of two researchers with expertise in palliative care, spirituality, and communication and two expert pediatric palliative care clinicians.
RESULTS:
Nurses' spiritual conversations with children revealed that children question God and the reason for their illness, have a desire to talk about the afterlife as a way of understanding their limited lifespan, and to share descriptions of an afterlife, in these cases described as heaven. Nurses conveyed the importance of being present and engaging in spiritual communication with children.
DISCUSSION:
Communication training is needed and should prepare providers to respond to a child's spiritual questioning, assist parents when the child initiates discussion about the afterlife, and help parent and child understand the spiritual meaning of their illness. Chaplains serve as spiritual care experts and can help train nurses to screen for spiritual distress, have greater competence in spiritual communication, and to collaborate with chaplains in care. Quality palliative care is incomplete without attention to spiritual care.
Identifier
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DOI: 10.1089/jpm.2016.0138
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adolescent
Battista V
Child
Children's Health
Electronic Books
Ferrell B
Health & Fitness
Health Promotion
Journal of Palliative Medicine
Local
Methods
Nurse's Role
Nursing & Ancillary Services
October 2016 List
Palliative Care Nursing Issues
Pediatric Nursing
Pediatric Palliative Care
Spirituality
Walker G
Wittenberg E