1
40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2018 List
URL Address
<a href="http://doi.org/10.1007/s11019-017-9754-5" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s11019-017-9754-5</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Withdrawal of artificial nutrition and hydration in neonatal intensive care: parents' and healthcare practitioners' views
Publisher
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Medicine, Health Care & Philosophy
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Health Personnel/es [Ethics]; Health Personnel/px [Psychology]; Intensive Care Units; Parents/px [Psychology]; Withholding Treatment/es [Ethics]; Decision Making/es [Ethics]; France; Humans; Infant; Interviews as Topic; Morals; Neonatal/es [Ethics]; Newborn
Creator
An entity primarily responsible for making the resource
Fournier V; Belghiti E; Brunet L; Spranzi M
Description
An account of the resource
Withdrawing Artificial Nutrition and Hydration (WANH) in the neonatal intensive care units (NICUs) has long been controversial. In France, the practice has become a legal option since 2005. But even though, the question remains as to what the stakeholders' experience is, and whether they consider it ethically appropriate. In order to contribute to the debate, we initiated a study in 2009 to evaluate parental and health care professionals (HCP) perspectives, after they experienced WAHN for a newborn. The study included 25 cases from 5 different clinical neonatology departments. We interviewed both the parents and some of the HCP who cared for the baby, at least 6 months after this latter deceased. We proceeded through in-depth individual qualitative interviews. Content was analyzed for themes and patterns that emerged from the data. Some parents expressed that WANH offered an opportunity to the family to spend a few demedicalized days with the baby before she dies, without any tubes and machines, and to be well supported by the HCP during this palliative stage. But others evaluated the practice in retrospect as a terrible ordeal. All said that, at least, the time of waiting for death to ensue should not last too long. After a few days, it becomes unbearable because of the transformation of the baby's appearance and because they, as parents, began to wonder if she was not dying from starvation rather than from her initial disease. An important proportion of HCP also expressed some kind of ethical unease. This was due to the psychological violence involved in the decision for a human being to stop feeding a little one, and also to the difficulty to deal with the fundamental intention behind the decision of WANH: indeed, could it be claim that it does not presuppose the intention of provoking the infant's death? The discussion focuses on the point to know if WANH can be considered as a source of progress from an ethical point of view, particularly in comparison with earlier practices-that in France could involve active euthanasia by lethal injection. We argue that when HCP are merely focused on avoiding that WAHN could be construed as a way of intending to hasten the baby's death, the practice is at risk to be implemented in a way that becomes ethically counterproductive. Focusing on this intention easily distract the clinical teams from what should be their ultimate concern, namely the baby's comfort during the dying process, as well as the support owned to her parents. To conclude, we suggest that the ethical priorities, when WANH is decided, should be the support due to the patient and her family on the one hand, and, on the other hand to implement it in such a way that at least the baby seems to have died of her initial disease and never of starvation. This means that HCP have a duty to control the timing of death, even though this might be incompatible with the worry to avoid the intention of hastening the baby's death.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s11019-017-9754-5" target="_blank" rel="noreferrer noopener">10.1007/s11019-017-9754-5</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here.
2017
Belghiti E
Brunet L
Decision Making/es [Ethics]
Fournier V
France
Health Personnel/es [Ethics]
Health Personnel/px [psychology]
Humans
Infant
Intensive Care Units
Interviews As Topic
Medicine, Health Care & Philosophy
Morals
Neonatal/es [Ethics]
Newborn
October 2018 List
Parents/px [psychology]
September 2018 List
Spranzi M
Withholding Treatment/es [ethics]
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2017 List
URL Address
<a href="http://dx.doi.org/10.1016/S0140-6736(08)60402-X" target="_blank" rel="noreferrer">http://dx.doi.org/10.1016/S0140-6736(08)60402-X</a>
Notes
<p>Kodish, Eric<br />S0140-6736(08)60402-X</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Paediatric ethics: a repudiation of the Groningen protocol
Publisher
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Lancet
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Decision Making; Ethics Clinical; Euthanasia/es [ethics]; Infanticide/es [ethics]; Humans; Infant Newborn; Netherlands; Withholding Treatment/es [ethics]
Creator
An entity primarily responsible for making the resource
Kodish E
Identifier
An unambiguous reference to the resource within a given context
<a href="http://dx.doi.org/10.1016/S0140-6736(08)60402-X" target="_blank" rel="noreferrer">10.1016/S0140-6736(08)60402-X</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2008
December 2017 List
Decision Making
Ethics Clinical
Euthanasia/es [ethics]
Humans
Infant Newborn
Infanticide/es [ethics]
Kodish E
Lancet
Netherlands
Withholding Treatment/es [ethics]
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2017 List
URL Address
<a href="https://doi.org/10.1080/15524256.2016.1200518">https://doi.org/10.1080/15524256.2016.1200518</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Exhaust All Measures: Ethical Issues In Pediatric End-of-life Care
Publisher
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Journal of Social Work in End-of-life and Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Parents/px [psychology]; Pediatrics; Social Workers/px [psychology]; Terminal Care/es [ethics]; Terminal Care/px [psychology]; Decision Making; Family; Health Personnel/px [psychology]; Humans; Interviews As Topic; Professional-family Relations; Terminal Care/st [standards]; Withholding Treatment/es [ethics]
Creator
An entity primarily responsible for making the resource
Thieleman KJ; Wallace C; Cimino AN; Rueda HA
Description
An account of the resource
The death of a child may have a profound impact on parents, family members, and health care providers who provided care for the child. Unique challenges are faced by parents of seriously ill children as they must serve as the legal authority for health care decisions of children under age 18, although the child's wishes must also be considered. Social workers must balance core social work values, bioethical values, and psychosocial issues presented by such situations. While studies have been conducted with physicians and nurses regarding ethical issues in pediatric end-of-life care settings, little is known about how social workers experience these conflicts. This article utilizes two vignettes to illustrate potential ethical issues in this setting and applies the National Association of Social Workers Standards for Palliative and End of Life Care (NASW, 2004 ) to explore options for their resolution. These vignettes provide descriptions of possible reactions in this setting and can be used as a basis for further exploration of ethics in pediatric end-of-life care from a social work perspective.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://doi.org/10.1080/15524256.2016.1200518">10.1080/15524256.2016.1200518</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Cimino AN
Decision Making
Family
Health Personnel/px [psychology]
Humans
Interviews As Topic
Journal of Social Work in End-of-Life & Palliative Care
Parents/px [psychology]
Pediatrics
Professional-family Relations
Rueda HA
September 2017 List
Social Workers/px [psychology]
Terminal Care/es [ethics]
Terminal Care/px [psychology]
Terminal Care/st [standards]
Thieleman KJ
Wallace C
Withholding Treatment/es [ethics]